Policies and Resources Identified by Youth as Being Important to Prepare for Caregiving Responsibilities

References

1. 1.↵
   1. Raj M,
   2. Feldman S,
   3. Platt JE,
   4. Chang T

   . “If it needs to be done, it needs to be done”: National survey of youth experiences and perspectives on caregiving. J Adolesc Heal 2021 Oct;69(4):664–67.

   OpenUrl
2. 2.↵
   1. Levine C

   [Internet] More than 1 million young caregivers live In the United States, but policies supporting them are still ‘emerging.’ Health Affairs Blog, August 7, 2017. Available from: https://www.healthaffairs.org/do/10.1377/forefront.20170807.061390/full/.
3. 3.↵
   1. Levine C,
   2. Hunt GG,
   3. Halper D,
   4. Hart AY,
   5. Lautz J,
   6. Gould DA

   . Young adult caregivers: A first look at an unstudied population. Am J Public Health 2005;95(11):2071–5.

   OpenUrlCrossRefPubMedWeb of Science
4. 4.↵
   1. Hunt G,
   2. Levine C,
   3. Naiditch L

   . Young caregivers in the US; 2005. Available from: https://www.caregiving.org/wp-content/uploads/2020/05/youngcaregivers.pdf.
5. 5.↵
   1. Bevans M,
   2. Sternberg EM

   . Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA 2012;307:398–403.

   OpenUrlCrossRefPubMedWeb of Science
6. 6.↵
   1. Adelman RD,
   2. Tmanova LL,
   3. Delgado D,
   4. Dion S,
   5. Lachs MS

   . Caregiver burden: a clinical review. JAMA 2014;311:1052–60.

   OpenUrlCrossRefPubMedWeb of Science
7. 7.↵
   1. Siskowski C

   . Young caregivers: effect of family health situations on school performance. J Sch Nurs 2006;22(3):163–9.

   OpenUrlCrossRefPubMed
8. 8.↵
   1. Williams JC,
   2. Devaux R,
   3. Petrac P,
   4. Feinberg L

   . Protecting family caregivers from employment discrimination, Report by AARP Public Policy Institute; 2012. Available from: https://cancercaregiversaz.com/wp-content/uploads/2018/05/2016-AARP-Protecting-Family-Caregivers-from-Employment-Discrimination.pdf.
9. 9.↵
   1. Lopez-Anuarbe M,
   2. Kohli P

   . Understanding male caregivers' emotional, financial, and physical burden in the United States. Healthcare 2019;7:72.

   OpenUrl
10. 10.↵
    1. Doupnik SK,
    2. Hill D,
    3. Palakshappa D,
    4. et al

    . Parent coping support interventions during acute pediatric hospitalizations: a meta-analysis. Pediatrics 2017;140.
11. 11.↵
    1. Waller A,
    2. Dilworth S,
    3. Mansfield E,
    4. Sanson-Fisher R

    . Computer and telephone delivered interventions to support caregivers of people with dementia: a systematic review of research output and quality. BMC Geriatr 2017 Nov 16;17(1):265.

    OpenUrlPubMed
12. 12.↵
    1. Lynch J,
    2. Cahalan R

    . The impact of spinal cord injury on the quality of life of primary family caregivers: a literature review. Spinal Cord 2017;55:964–78.

    OpenUrl
13. 13.↵
    1. Shin JY,
    2. Choi SW

    . Interventions to promote caregiver resilience. Curr Opin Support Palliat Care 2020;14:60–6.

    OpenUrl
14. 14.↵
    1. Napoles AM,
    2. Chadiha L,
    3. Eversley R,
    4. et al

    . Developing culturally sensitive dementia caregiver interventions: are we there yet? Am J Alzheimers Dis Other Demen 2010;25:389–406.

    OpenUrlCrossRefPubMed
15. 15.↵
    1. Schulz R,
    2. O'Brien A,
    3. Czaja S,
    4. et al

    . Dementia caregiver intervention research: in search of clinical significance. Gerontologist 2002;42:589–602.

    OpenUrlCrossRefPubMedWeb of Science
16. 16.↵
    1. Raj M,
    2. Singer PM

    . Redefining caregiving as an imperative for supporting caregivers: challenges and opportunities. J Gen Intern Med 2021;36:3844–6.

    OpenUrl
17. 17.↵
    Family and Medical Leave Act [Internet]. U.S. Department of Labor; 2019 (accessed 15 January 2019). Available from: https://www.dol.gov/whd/fmla/.
18. 18.↵
    1. Kavanaugh MS,
    2. Stamatopoulos V,
    3. Cohen D,
    4. Zhang L

    . Unacknowledged caregivers: a scoping review of research on caregiving youth in the United States. Adolescent Res Rev 2016;1:29–49.

    OpenUrl
19. 19.↵
    1. Kavanaugh MS,
    2. Stamatopoulos V

    . Young carers, the overlooked caregiving population: introduction to a special issue. Child Adolesc Soc Work J. 2021;38:487–9.

    OpenUrl
20. 20.↵
    1. Choi H,
    2. Heisler M,
    3. Norton EC,
    4. Langa KM,
    5. Cho T-C,
    6. Connell CM

    . Family care availability and implications for informal and formal care used by adults With Dementia In The US. Health Aff 2021 Sep;40(9):1359–67.

    OpenUrl
21. 21.↵
    1. Feinberg LF

    . The dual pressures of family caregiving and employment.; 2016. Available from: https://www.aarp.org/content/dam/aarp/ppi/2016-03/The-Dual-Pressures-off-Family-Caregiving-and-Employment.pdf.
22. 22.↵
    1. Leu A,
    2. Becker S

    . A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers.’ J Youth Stud 2017;20:750–62.

    OpenUrl
23. 23.↵
    1. Sprague Martinez LS,
    2. Yan CT,
    3. Augsberger A,
    4. et al

    . Changing the face of health care delivery: The importance of youth participation. Health Aff 2020;39.
24. 24.↵
    1. Lenhart A

    . Teens and mobile phones over the past five years: Pew internet looks back. Pew Res Cent. 2009; Published online.
25. 25.↵
    1. Lenhart A

    . Teens, technology and friendships: Video games, social media and mobile phones play an integral role in how teens meet and interact with friends.; 2015. Available from: https://www.pewresearch.org/internet/2015/08/06/teens-technology-and-friendships/.
26. 26.↵
    1. DeJonckheere M,
    2. Nichols LP,
    3. Moniz MH,
    4. et al

    . MyVoice national text message survey of youth aged 14 to 24 years: Study Protocol. JMIR Res Protoc 2017;6:e247.

    OpenUrl
27. 27.↵
    MyVoice Question Bank [Internet]. Hear My Voice Now; 2021 (accessed 17 September 2021). Available from: www.hearmyvoicenow.org/questionbank/.
28. 28.↵
    1. Watkins DC

    . Rapid and rigorous qualitative data analysis: the “RADaR” technique for applied research. Int J Qual Methods 2017;16:(1–9).

    OpenUrl
29. 29.↵
    1. Schulz R,
    2. Eden J

    1. Schulz R,
    2. Eden J

    . Family caregiving roles and impacts. In: Schulz R, Eden J, eds. Families caring for an aging America. National Academies Press; 2016.
30. 30.↵
    1. Clarke AM,
    2. Kuosmanen T,
    3. Barry MM

    . A systematic review of online youth mental health promotion and prevention interventions. J Youth Adolesc 2015;44:90–113.

    OpenUrlCrossRefPubMed
31. 31.↵
    1. Cummings JR,
    2. Wen H,
    3. Druss BG

    . Improving access to mental health services for youth in the United States. JAMA 2013;309:553–4.

    OpenUrlCrossRefPubMed
32. 32.↵
    1. Schuiteman S,
    2. Chua K-P,
    3. Plegue M,
    4. et al

    . Self-management of health care among youth: implications for policies on transitions of care. J Adolesc Health 2020;66:616–22.

    OpenUrlPubMed
33. 33.↵
    1. Heymann J,
    2. Sprague A,
    3. Earle A,
    4. et al

    . US sick leave in global context: US eligibility rules widen inequalities despite readily available solutions. Health Aff 2021;40(9);1501–9.

    OpenUrl
34. 34.↵
    1. Chen M

    . The growing costs and burden of family caregiving of older adults: a review of paid sick leave and family leave policies. Gerontologist 2016;56:391–6.

    OpenUrlCrossRefPubMed
35. 35.↵
    1. Heymann J,
    2. Sprague A

    . Why adopting a national paid sick leave law is critical to health and to reducing racial and socioeconomic disparities—long past due. JAMA Heal Forum 2021;2.
36. 36.↵
    1. Dean G

    . Wisconsin's Senate approves a bill allowing 14 year olds to work as late as 11 p.m., and supporters say it could help plug the labor shortage [Internet]. Business Insider; 2021 (accessed 21 October 2021). Available from: https://www.businessinsider.in/policy/economy/news/wisconsins-senate-approves-a-bill-allowing-14-year-olds-to-work-as-late-as-11-p-m-and-supporters-say-it-could-help-plug-the-labor-shortage/articleshow/87186883.cms.
37. 37.↵
    1. Molloy L,
    2. Beckett P,
    3. Chidarikire S,
    4. Merrick TT,
    5. Guha M,
    6. Patton D

    . Culture, the Stigma of Mental Illness, and Young People. J Psychosoc Nurs Ment Health Serv 2020;58:15–8.

    OpenUrl