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Research ArticleOriginal Research

All in the Family: A Qualitative Study of the Early Experiences of Adults with Younger Onset Type 2 Diabetes

Anjali Gopalan, Maruta A. Blatchins, Karen K. Xu, Andrea Altschuler, Cassondra J. Marshall, Danielle M. Hessler, Alicia Fernandez and Richard W. Grant
The Journal of the American Board of Family Medicine March 2022, 35 (2) 341-351; DOI: https://doi.org/10.3122/jabfm.2022.02.210223
Anjali Gopalan
From the Kaiser Permanente Northern California, Division of Research, Oakland, CA (AG, MAB, KKX, AA, and RWG); University of California, Berkeley, Division of Community Health Science, Berkeley, CA (CJM); University of California San Francisco (DMH and AF).
MD, MS
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Maruta A. Blatchins
From the Kaiser Permanente Northern California, Division of Research, Oakland, CA (AG, MAB, KKX, AA, and RWG); University of California, Berkeley, Division of Community Health Science, Berkeley, CA (CJM); University of California San Francisco (DMH and AF).
BS
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Karen K. Xu
From the Kaiser Permanente Northern California, Division of Research, Oakland, CA (AG, MAB, KKX, AA, and RWG); University of California, Berkeley, Division of Community Health Science, Berkeley, CA (CJM); University of California San Francisco (DMH and AF).
BS
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Andrea Altschuler
From the Kaiser Permanente Northern California, Division of Research, Oakland, CA (AG, MAB, KKX, AA, and RWG); University of California, Berkeley, Division of Community Health Science, Berkeley, CA (CJM); University of California San Francisco (DMH and AF).
PhD
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Cassondra J. Marshall
From the Kaiser Permanente Northern California, Division of Research, Oakland, CA (AG, MAB, KKX, AA, and RWG); University of California, Berkeley, Division of Community Health Science, Berkeley, CA (CJM); University of California San Francisco (DMH and AF).
DrPH, MPH
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Danielle M. Hessler
From the Kaiser Permanente Northern California, Division of Research, Oakland, CA (AG, MAB, KKX, AA, and RWG); University of California, Berkeley, Division of Community Health Science, Berkeley, CA (CJM); University of California San Francisco (DMH and AF).
PhD
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Alicia Fernandez
From the Kaiser Permanente Northern California, Division of Research, Oakland, CA (AG, MAB, KKX, AA, and RWG); University of California, Berkeley, Division of Community Health Science, Berkeley, CA (CJM); University of California San Francisco (DMH and AF).
MD
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Richard W. Grant
From the Kaiser Permanente Northern California, Division of Research, Oakland, CA (AG, MAB, KKX, AA, and RWG); University of California, Berkeley, Division of Community Health Science, Berkeley, CA (CJM); University of California San Francisco (DMH and AF).
MD, MPH
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  • Article
  • Figures & Data
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Article Figures & Data

Tables

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    Table 1.

    Focus Group Participant Characteristics (n = 41)

    Characteristicn (%)
    Age, mean (SD)38.4 (5.8)
    Gender
        Male21 (51)
        Female20 (49)
    Ethnicity/race*
        Latinx10 (24)
        Black12 (29)
        White12 (29)
        Multiple/other7 (17)
    Academic attainment
        Less than high school2 (5)
        High school graduate or GED8 (20)
        Some college8 (20)
        2-year college10 (24)
        4-year college6 (15)
        Master's degree or higher7 (17)
    At least one family member with diabetes27 (66)
    At least one child <18 years at home (% yes)24 (59)
    Diagnosis HbA1c, mean (SD)8.1 (2.0)
    Pre-focus group HbA1c, mean (SD)7 (1.7)
    Pre-focus group HbA1c <7% (% yes)16 (39%)
    • ↵* Self-reported on survey administered during focus group meeting

    • Abbreviations: SD, standard deviation; GED, General Education Development.

    • View popup
    Table 2.

    The Influence of Family History of Type 2 Diabetes on Early Self-Management

    ThemesRepresentative QuotesMapping to COM-B
    Perceived facilitators1. Knowledge about type 2 diabetes from observing or speaking with family membersI guess I didn't feel overwhelmed because I've been around it so much with my parents and my siblings. So, a lot of the terminology, I was already familiar with. (Participant [P] 6)
    [My dad] was telling me you need to do everything that you can to avoid getting full-blown diabetes…you need to get more exercise, overhaul your diet right now. (P38)
    Capability
    2. The diabetes-related experiences of older relatives…my mom's the one who start telling me…she was about 40 years old when she had diabetes, so she's now 80…She never like, “Have to go to the hospital for this or need glasses, or need…” I mean, she's healthier than me. (P3)
    …I have that in mind, my great-grandfather…He lived to be 97. Small, frequent meals walk two to three times a day…That's what I'm gonna keep doing until I die. (P12)
    …I really thought about doing the weight loss surgery, you know, because once I hear “diabetes”—my dad died from diabetes and I kinda got scared. (P1)
    [My mom] said that I was going to be fine, that I was young, that I could take control of it… she just told me to take care of myself so I wouldn't end up like her. (P4)
    Motivation
    Perceived barriers3. Futility/inevitability related to family history of type 2 diabetes[My brother] said, “You knew this was coming, right?"…And I was like, “Yeah. I mean I knew, but, you know, I was trying to avoid it.” (P18)
    [type 2 diabetes] runs on both sides. So, I'm screwed. (P34)
    Motivation
    • Abbreviations: SD, standard deviation; GED, General Education Development.

    • View popup
    Table 3.

    The Role of Children in Parents' Type 2 Diabetes Self-Management

    ThemeRepresentative QuotesMapping to COM-B
    Perceived Facilitators1. Children provide encouragement, directly support self-management activities, and easily adapt to household changes[My kids] they tell me, too, “Daddy…you need to take care of yourself because I want you to walk me down the aisle.” (Participant [P] 7)
    …my daughter… “dad, you can't get that. You can't eat that.” (P25)
    If I bring any kind of sweets in the house, [my son] call his self saving me by eating it up. (P26)
    But like when I buy healthy stuff my daughter is like so into it…I'll buy like yogurts or fruit, or whatever, salads and she'll say, “Oh, mommy can you buy me some of that?” Like she's interested in eating that other than cookies or ice cream or doughnuts, or stuff like that. I think it's wonderful. (P9)
    Opportunity
    2. Desire to be healthy and present for children…I need to be healthy for my kids…when I had kids it wasn't like oh, “I want to be the mom who sits in a park and lets my kids go off and play while I sit there and do nothing.” (P8)
    Dude, I cannot let this take me down. I have two children, I gotta be there for both of them. I'm planning on seeing my grandchildren, I'm hoping my great-grans…so I gotta handle this myself. (P18)
    Motivation
    3. Desire to model healthy behaviors for children and to prevent children from developing diabetes…we walk as a family because I like to teach them, you know, that exercise is – it's good, and it's okay to do it. And I just think it's better when they see me doing it. That way, they start doing it, too. (P4)
    …no candy…not in grandma's house. I'm going to give them broccoli, carrots, this and that. But no candy. No soda…I have done so many mistakes raising [my kids]…if someone would've came to me and explained to me…I would never gave [my kids] all that junk. (P39)
    Perceived Barriers4. Children do not want to adapt/do not like healthier foodThey don't want oatmeal. Well they will, if they put sugar and a whole bunch of crap in there. (P8)Opportunity
    5. Insufficient time for self-managementAnd how do you still find time to exercise multiple times per week when you get home from work, you put the baby to sleep, and I'm ready to go to sleep, too…but I still have hours of work… (P31)
    I'm gonna get home and [exercise]…And then it never happens…I've got the little one, who's running around the house…it's always the thought process and just not following through or not having time. (P19)
    I have like a relax app…sometimes I do put that on and just try to de-stress, but it seems with kids when they see someone sitting and not doing anything… (P8)
    6. Prioritizing your children's needs over your ownI'm spending all of my time watching out for them…I'm already done, that's the way that I see it. (P38)
    I did make an appointment with a nutritionist, but then in typical mom fashion a kid got sick with asthma, and that becomes a priority… (P8)
    Motivation
    • Abbreviation: Capability-Opportunity-Motivation-Behavior (COMB).

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The Journal of the American Board of Family     Medicine: 35 (2)
The Journal of the American Board of Family Medicine
Vol. 35, Issue 2
March/April 2022
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All in the Family: A Qualitative Study of the Early Experiences of Adults with Younger Onset Type 2 Diabetes
Anjali Gopalan, Maruta A. Blatchins, Karen K. Xu, Andrea Altschuler, Cassondra J. Marshall, Danielle M. Hessler, Alicia Fernandez, Richard W. Grant
The Journal of the American Board of Family Medicine Mar 2022, 35 (2) 341-351; DOI: 10.3122/jabfm.2022.02.210223

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All in the Family: A Qualitative Study of the Early Experiences of Adults with Younger Onset Type 2 Diabetes
Anjali Gopalan, Maruta A. Blatchins, Karen K. Xu, Andrea Altschuler, Cassondra J. Marshall, Danielle M. Hessler, Alicia Fernandez, Richard W. Grant
The Journal of the American Board of Family Medicine Mar 2022, 35 (2) 341-351; DOI: 10.3122/jabfm.2022.02.210223
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Keywords

  • Age of Onset
  • Focus Groups
  • Motivation
  • Parenting
  • Qualitative Research
  • Self-Management
  • Type 2 Diabetes Mellitus

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