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Research ArticleSpecial Communications

The Marriage of Community-based Participatory Research and Practice-based Research Networks: Can It Work? –A Research Involving Outpatient Settings Network (RIOS Net) Study

Robert L. Williams, Brian M. Shelley, Andrew L. Sussman and ; on behalf of RIOS Net clinicians
The Journal of the American Board of Family Medicine July 2009, 22 (4) 428-435; DOI: https://doi.org/10.3122/jabfm.2009.04.090060
Robert L. Williams
MD, MPH
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Brian M. Shelley
MD
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Andrew L. Sussman
PhD, MCRP
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    Table 1.

    Key Elements of Community-Based Participatory Research3–8

    • Community participation in determining research agenda

    • Community participation in developing/refining research protocol

    • Community participation in data collection and analysis

    • Reporting research results to the community

    • Community benefit from research

    • Community participation in presenting research results to scientific community

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    Table 2.

    Cost Categories in Support of Enhanced Community Participation in Example Research Project

    Cost CategoriesElements
    Personnel
    • Investigators meet with community representatives and groups during project development

    • Outreach staff participate in investigator meetings during project development

    • Investigators meet with CAB throughout the study development and operation

    • Investigators meet with community groups during data collection and analysis

    • Investigator/outreach staff present research results to community groups

    Travel
    • Investigator and staff travel costs to meet with community groups throughout the course of the project

    • CAB member travel

    Meeting Support
    • Honoraria to community members, including CAB members, directly participating in formation and operation of the study

    • Added telephone costs arranging community meetings

    • Associated costs of holding community meetings

    • CAB, community advisory board.

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    Table 3.

    Proposed Community-Based Participatory Research Approaches for Practice-Based Research Networks (PBRNs)

    Elements of Community-Based Participatory ResearchProposed Applications in PBRNs
    Community participation in determining research agenda
    • CAB

    • Community membership in network board of directors

    • Outreach to community groups for input into network priorities

    Community participation in developing/refining research protocol
    • Vet protocols with CAB

    • Solicit community input through outreach contacts or through relevant community groups

    Community participation in data collection and analysis
    • Engage CAB members in review of data collection plans and interpretation of results

    • Engage study participants in review/interpretation of results

    Reporting research results to the community
    • Provide report of findings to CAB, emphasizing steps to be taken to use results to improve health

    • Outreach to community stakeholder groups to report results and application to improve health

    • Report to study participants

    Community benefit from research
    • Compensation to study participants

    • Employment/training of community members in research

    • Assistance with community action to apply research results to health improvement

    • Increased knowledge

    Community participation in presenting research results to scientific community
    • Engage interested community member(s) or member of CAB in reporting research results

    • CAB, community advisory board.

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The Journal of the American Board of Family Medicine: 22 (4)
The Journal of the American Board of Family Medicine
Vol. 22, Issue 4
July-August 2009
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The Marriage of Community-based Participatory Research and Practice-based Research Networks: Can It Work? –A Research Involving Outpatient Settings Network (RIOS Net) Study
Robert L. Williams, Brian M. Shelley, Andrew L. Sussman
The Journal of the American Board of Family Medicine Jul 2009, 22 (4) 428-435; DOI: 10.3122/jabfm.2009.04.090060

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The Marriage of Community-based Participatory Research and Practice-based Research Networks: Can It Work? –A Research Involving Outpatient Settings Network (RIOS Net) Study
Robert L. Williams, Brian M. Shelley, Andrew L. Sussman
The Journal of the American Board of Family Medicine Jul 2009, 22 (4) 428-435; DOI: 10.3122/jabfm.2009.04.090060
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