Children’s Special Health Care Needs and Caregivers’ Well-Being During the COVID-19 Pandemic

References

1. 1.↵
   U.S. Department of Health & Human Services, Health Resources & Services Administration, Maternal & child health, children and youth with special health care needs (CYSHCN). (2023, May 1). Available at: https://mchb.hrsa.gov/programs-impact/focus-areas/children-youth-special-health-care-needs-cyshcn#ref1. Accessed June 3,2023.
2. 2.↵
   1. Fusar-Poli L,
   2. Surace T,
   3. Meo V,
   4. et al

   . Psychological well-being, and family distress of Italian caregivers during the COVID-19 outbreak. J Community Psychol 2022;50:2243–59. Dec 12. Epub ahead of print.

   OpenUrl
3. 3.↵
   1. Hagerman TK,
   2. McKernan GP,
   3. Carle AC,
   4. Yu JA,
   5. Stover AD,
   6. Houtrow AJ

   . the mental and physical health of mothers of children with special health care needs in the United States. Matern Child Health J 2022;26:500–10. Epub 2022 Jan 24.

   OpenUrl
4. 4.↵
   1. Kaji N,
   2. Ando S,
   3. Nishida A,
   4. et al

   . Children with special health care needs and mothers' anxiety/depression: Findings from the Tokyo Teen Cohort study. Psychiatry Clin Neurosci 2021;75:394–400.

   OpenUrl
5. 5.↵
   1. Graaf G,
   2. Baiden P,
   3. Keyes L,
   4. Boyd G

   . Barriers to mental health services for parents and siblings of children with special health care needs. J Child Fam Stud 2022;31:881–95.

   OpenUrl
6. 6.↵
   1. Masi A,
   2. Mendoza Diaz A,
   3. Tully L,
   4. et al

   . Impact of the COVID-19 pandemic on the well-being of children with neurodevelopmental disabilities and their parents. J Paediatr Child Health 2021 May;57:631–6.

   OpenUrlPubMed
7. 7.↵
   1. Pecor KW,
   2. Barbayannis G,
   3. Yang M,
   4. et al

   . Quality of LIFE CHANGES DURING the COVID-19 pandemic for caregivers of children with ADHD and/or ASD. Int J Environ Res Public Health 2021;18:3667.

   OpenUrl
8. 8.↵
   1. Chafouleas SM,
   2. Iovino EA

   . Comparing the initial impact of COVID-19 on burden and psychological distress among family caregivers of children with and without developmental disabilities. Sch Psychol 2021;36:358–66.

   OpenUrl
9. 9.↵
   1. Lim TSH,
   2. Tan MY,
   3. Aishworiya R,
   4. et al

   . Factors contributing to psychological ill-effects and resilience of caregivers of children with developmental disabilities during a nation-wide lockdown during the COVID-19 pandemic. J Autism Dev Disord 2022;52:3026–11.

   OpenUrl
10. 10.↵
    1. Russell BS,
    2. Hutchison M,
    3. Tambling R,
    4. Tomkunas AJ,
    5. Horton AL

    . Initial challenges of caregiving during COVID-19: caregiver burden, mental health, and the parent-child relationship. Child Psychiatry Hum Dev 2020;51:671–82.

    OpenUrlCrossRefPubMed
11. 11.↵
    1. Gassman-Pines A,
    2. Ananat EO,
    3. Fitz-Henley J

    . 2nd. COVID-19 and parent-child psychological well-being. Pediatrics 2020;146:e2020007294.

    OpenUrlCrossRefPubMed
12. 12.↵
    1. Gadermann AC,
    2. Thomson KC,
    3. Richardson CG,
    4. et al

    . Examining the impacts of the COVID-19 pandemic on family mental health in Canada: findings from a national cross-sectional study. BMJ Open 2021;11:e042871.

    OpenUrlAbstract/FREE Full Text
13. 13.↵
    1. Ghandour RM,
    2. Jones JR,
    3. Lebrun-Harris LA,
    4. et al

    . The design and implementation of the 2016 National Survey of Children's Health. Matern Child Health J 2018;22:1093–102.

    OpenUrl
14. 14.↵
    1. Bethell CD,
    2. Read D,
    3. Stein RE,
    4. Blumberg SJ,
    5. Wells N,
    6. Newacheck PW

    . Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambul Pediatr 2002;2:38–48.

    OpenUrlCrossRefPubMedWeb of Science
15. 15.↵
    1. Jones RM,
    2. Anyigbo C,
    3. Morris H,
    4. Tumin D,
    5. Jamison S

    . Does a medical home buffer the association between child poverty and poor health? J Health Care Poor Underserved 2021;32:1935–48.

    OpenUrl
16. 16.↵
    1. Salanti G,
    2. Peter N,
    3. Tonia T

    , MHCOVID Crowd Investigatorset al. The impact of the COVID-19 pandemic and associated control measures on the mental health of the general population: a systematic review and dose-response meta-analysis. Ann Intern Med 2022;175:1560–71. Advance online publication.

    OpenUrl
17. 17.↵
    1. Romley JA,
    2. Shah AK,
    3. Chung PJ,
    4. Elliott MN,
    5. Vestal KD,
    6. Schuster MA

    . Family-provided health care for children with special health care needs. Pediatrics 2017;139:e20161287.

    OpenUrlCrossRefPubMed
18. 18.↵
    1. Willner P,
    2. Rose J,
    3. Stenfert Kroese B,
    4. et al

    . Effect of the COVID-19 pandemic on the mental health of carers of people with intellectual disabilities. J Appl Res Intellect Disabil 2020;33:1523–33.

    OpenUrlCrossRefPubMed
19. 19.↵
    1. Geweniger A,
    2. Haddad A,
    3. Barth M,
    4. et al

    . Mental health of children with and without special healthcare needs and of their caregivers during COVID-19: a cross-sectional study. BMJ Paediatrics Open, 2022;6:e001509.

    OpenUrlAbstract/FREE Full Text
20. 20.↵
    1. Sutter EN,
    2. Francis LS,
    3. Francis SM,
    4. et al

    . Disrupted access to therapies and impact on well-being during the COVID-19 pandemic for children with motor impairment and their caregivers. Am J Phys Med Rehabil 2021;100:821–30.

    OpenUrl
21. 21.↵
    1. Gallegos C,
    2. Aldridge MD,
    3. Connor K,
    4. Zuba L

    . Parenting a child with a chronic illness during a pandemic. J Pediatr Nurs 2022;66:64–9.

    OpenUrl
22. 22.↵
    Caring for children and youth with special health care needs during the COVID-19 pandemic. (2022, February 28). American Academy of Pediatrics. Available at: https://www.aap.org/en/pages/2019-novel-coronavirus-covid-19-infections/clinical-guidance/caring-for-children-and-youth-with-special-health-care-needs-during-the-covid-19-pandemic/. Accessed October 24, 2022.
23. 23.↵
    1. Grumi S,
    2. Provenzi L,
    3. Gardani A

    . Engaging with families through on-line rehabilitation for children during the Emergency (EnFORCE) Groupet al. Rehabilitation services lockdown during the COVID-19 emergency: the mental health response of caregivers of children with neurodevelopmental disabilities. Disabil Rehabil 2021;43:27–32.

    OpenUrlPubMed
24. 24.↵
    1. Geweniger A,
    2. Barth M,
    3. Haddad AD,
    4. et al

    . Impact of the COVID-19 pandemic on mental health outcomes of healthy children, children with special health care needs and their caregivers-results of a cross-sectional study. Front Pediatr 2022;10:759066.

    OpenUrl
25. 25.↵
    1. Thomson KC,
    2. Jenkins E,
    3. Gill R,
    4. et al

    . Impacts of the COVID-19 pandemic on family mental health in Canada: findings from a multi-round cross-sectional study. IJERPH 2021;18:12080.

    OpenUrl
26. 26.↵
    1. Fusar-Poli L,
    2. Martinez M,
    3. Surace T,
    4. et al

    . The psychological impact of the COVID-19 lockdown: a comparison between caregivers of autistic and non-autistic individuals in Italy. Brain sciences 2022;12:116.

    OpenUrl
27. 27.↵
    1. Duckett MJ,
    2. Guy MR

    . Home and community-based services waivers. Health care financing review 2000;22:123–5.

    OpenUrl
28. 28.↵
    NSDHHS NC Medicaid Division of Health Benefits. (2021). North Carolina January 2022 quarterly report for the implementation of the American Rescue Plan Act of 2021, Section 9817 – 10% FMAP Increase for HCBS.
29. 29.↵
    1. Williams E,
    2. Musumeci M

    . (2020, August 26). Children with special health care needs: coverage, affordability, and HCBS access. Kaiser Family Foundation. Available at: https://www.kff.org/medicaid/issue-brief/state-actions-to-sustain-medicaid-long-term-services-and-supports-during-covid-19/.