Article Figures & Data
Figures
- Figure 1.
Map of the 23-county catchment area for the Intellectual/Developmental Disabilities Referral Clinic in western North Carolina. Counties are shaded to reflect the catchment area of the Mountain Area Health Education Center (MAHEC; green), counties with medical residents trained at the referral clinic (patterned), and counties without a MAHEC affiliation (white). Bubble size and color reflect the density of referrals made from that county during the study period.
Tables
N % Total 184 100.0 Appointment year 2017 11 6.0 2018 37 20.1 2019 52 28.3 2020 23 12.5 2021 20 10.9 2022 31 16.8 2023 10 5.4 Patient sex Male 120 65.2 Female 64 34.8 Rurality Non-rural 159 86.4 Rural 25 13.6 Insurance Medicaid 119 64.7 Medicare 25 13.6 Private 21 11.4 Dual eligible/other 48 26.1 Uninsured/self 1 0.5 LME/MCO patient 135 73.4 Registry of unmet needs Not screened 24 13.0 Received waiver 80 43.5 Not on registry 17 9.2 On registry 25 13.6 Unknown 38 20.7 Living situation Family home 117 63.6 Independent 9 4.9 Supportive living 3 1.6 Adult/family care home 4 2.2 ICF 9 4.9 AFL 40 21.7 Other 2 1.1 Guardianship Self 51 27.7 Full family 101 54.9 Limited family 6 3.3 Full paid 25 13.6 Limited paid 1 0.5 Age, mean (SD) 31.29 16.3 Age, median (IQR) 24.00 18.5 Distance, mean (SD) 20.41 21.4 Distance, median (IQR) 12.50 21.3 Travel time, mean (SD) 27.08 21.8 Travel time, median (IQR) 20.00 19.0 Note: Insurance categories are not independent and do not sum to 100%.
Abbreviations: AFL, Alternative family living; ICF, Intermediate care facility; LME/MCO, Local management entity/managed care organization; SD, Standard deviation; IQR, Inter-quartile range.
N % Total 184 100.0 Incoming referral place Developmental pediatrics 7 3.8 MAHEC (non-psychiatry) 70 38.0 MAHEC psychiatry 2 1.1 Missing/unknown 65 35.3 Other family medicine 32 17.4 Other pediatrics 8 4.4 Incoming referral reason Advanced care planning 2 1.1 Behavior change 15 8.2 Behavioral health 6 3.3 GI Issues 2 1.1 Health maintenance 9 4.9 Menses management 2 1.1 Overall assessment 80 43.5 Service coordination 26 14.1 Transfer of care 31 16.8 Transition planning 11 5.9 Primary diagnosis IDD 49 26.6 ASD 69 37.5 Congenital/chromosomal 14 7.6 Down syndrome 17 9.3 Cerebral palsy 28 15.2 Other DD 7 3.8 Secondary diagnosis IDD 66 35.9 ASD 7 3.8 Congenital/chromosomal 5 2.7 Down syndrome 4 2.2 Cerebral palsy 3 1.6 Other DD 4 2.2 None 95 51.6 Patient records received 88 47.8 Outgoing referral made 70 38.0 Physical therapy 5 2.7 Occupational therapy 3 1.6 Speech therapy 3 1.6 Behavioral health counseling 6 3.3 Psychiatry 15 8.2 Orthopedics 4 2.2 Endocrinology 1 0.5 Pulmonary 3 1.6 Neurology 6 3.3 Cardiology 1 0.5 Ear/nose/throat 4 2.2 Other medical service 32 17.4 Legal services 2 1.1 Dental care No 72 39.1 Yes, inadequate 72 39.1 Yes, adequate 40 21.8 Note: Outgoing referral categories are not independent and do not sum to the total number of patients receiving referrals.
Abbreviations: ASD, Autism spectrum disorder; IDD, Intellectual and developmental disabilities; MAHEC, Mountain area health education center.
