Research ArticleOriginal Research

Multistakeholder Perspectives on Data Sharing to Address Patient Food Insecurity

Andrea Lynn Nederveld, Jodi Holtrop, Kelsey Fife Duarte, Macharnie Skalecki and Elena T. Broaddus-Shea
The Journal of the American Board of Family Medicine January 2022, 35 (1) 85-95; DOI: https://doi.org/10.3122/jabfm.2022.01.210093

References

  1. 1.↵
    Institute of Medicine. Capturing social and behavioral domains and measures in electronic health records: phase 2. Washington (DC): National Academies Press; 2014.
  2. 2.↵
    1. Fraze TK,
    2. Brewster AL,
    3. Lewis VA,
    4. Beidler LB,
    5. Murray GF,
    6. Colla CH
    . Prevalence of screening for food insecurity, housing instability, utility needs, transportation needs, and interpersonal violence by US physician practices and hospitals. JAMA Netw Open 2019;2:e1911514-e1911514.
    OpenUrl
  3. 3.↵
    1. Andermann A
    . Screening for social determinants of health in clinical care: moving from the margins to the mainstream. Public Health Rev 2018;39:19.
    OpenUrlCrossRef
  4. 4.↵
    1. Page-Reeves J,
    2. Moffett ML,
    3. Steimel L,
    4. Smith DT
    . The evolution of an innovative community-engaged health navigator program to address social determinants of health. Prog Community Health Partnersh 2016;10:603–10.
    OpenUrl
  5. 5.↵
    1. Smith S,
    2. Malinak D,
    3. Chang J,
    4. et al
    . Implementation of a food insecurity screening and referral program in student-run free clinics in San Diego, California. Prev Med Rep 2017;5:134–9.
    OpenUrl
  6. 6.↵
    1. Hager ER,
    2. Quigg AM,
    3. Black MM,
    4. et al
    . Development and validity of a 2-item screen to identify families at risk for food insecurity. Pediatrics 2010;126:e26–e32.
    OpenUrlAbstract/FREE Full Text
  7. 7.↵
    Council on Community Pediatrics, Committee on Nutrition. Promoting food security for all children. Pediatrics 2015;136:e1431–e1438.
    OpenUrlAbstract/FREE Full Text
  8. 8.↵
    US Department of Agriculture Economic Research Service [Internet]. Definitions of food security; 2020 [cited 2020 Dec 16]. Available from: http://www.ers.usda.gov/topics/food-nutrition-assistance/food-security-in-the-us/definitions-of-food-security.aspx.
  9. 9.↵
    Feeding America [Internet]. Facts about poverty and hunger in America; 2020 [cited 2021 Jan 26]. Available from: https://www.feedingamerica.org/hunger-in-america/facts.
  10. 10.↵
    1. Schanzenbach D,
    2. Pitts A
    . How much has food insecurity risen? Evidence from the census household pulse survey. Institute for Policy Research Rapid Research Report; 2020.
  11. 11.↵
    1. Cullen D,
    2. Abel D,
    3. Attridge M,
    4. Fein JA
    . Exploring the gap: food insecurity and resource engagement. Acad Pediatr 2021;21:440–5.
    OpenUrl
  12. 12.↵
    1. Garg A,
    2. Marino M,
    3. Vikani AR,
    4. Solomon BS
    . Addressing families' unmet social needs within pediatric primary care: the health leads model. Clin Pediatr (Phila) 2012;51:1191–3.
    OpenUrlCrossRefPubMed
  13. 13.↵
    1. Redding S,
    2. Conrey E,
    3. Porter K,
    4. Paulson J,
    5. Hughes K,
    6. Redding M
    . Pathways community care coordination in low birth weight prevention. Matern Child Health J 2015;19:643–50.
    OpenUrlPubMed
  14. 14.↵
    1. Gottlieb L,
    2. Hessler D,
    3. Long D,
    4. Amaya A,
    5. Adler N
    . A randomized trial on screening for social determinants of health: the iScreen study. Pediatrics 2014;134:e1611–e1618.
    OpenUrlAbstract/FREE Full Text
  15. 15.↵
    1. Hassan A,
    2. Scherer EA,
    3. Pikcilingis A,
    4. et al
    . Improving social determinants of health: effectiveness of a web-based intervention. Am J Prev Med 2015;49:822–31.
    OpenUrlCrossRefPubMed
  16. 16.↵
    1. Peek ME,
    2. Odoms-Young A,
    3. Quinn MT,
    4. Gorawara-Bhat R,
    5. Wilson SC,
    6. Chin MH
    . Race and shared decision-making: perspectives of African-Americans with diabetes. Soc Sci Med 2010;71:1–9.
    OpenUrlCrossRefPubMed
  17. 17.↵
    1. James R,
    2. Tsosie R,
    3. Sahota P
    , Kiana Group, et al. Exploring pathways to trust: a tribal perspective on data sharing. Genet Med 2014;16:820–6.
    OpenUrl
  18. 18.↵
    1. Abdelhamid M,
    2. Gaia J,
    3. Sanders GL
    . Putting the focus back on the patient: how privacy concerns affect personal health information sharing intentions. J Med Internet Res 2017;19:e169.
    OpenUrl
  19. 19.↵
    1. Bansal G,
    2. Zahedi FM,
    3. Gefen D
    . The impact of personal dispositions on information sensitivity, privacy concern and trust in disclosing health information online. Decision Support Systems 2010;49:138–50.
    OpenUrlCrossRef
  20. 20.↵
    1. Barnidge E,
    2. Krupsky K,
    3. LaBarge G,
    4. Arthur J
    . Food insecurity screening in pediatric clinical settings: a caregivers' perspective. Matern Child Health J 2020;24:101–9.
    OpenUrl
  21. 21.↵
    1. Cullen D,
    2. Attridge M,
    3. Fein JA
    . Food for thought: a qualitative evaluation of caregiver preferences for food insecurity screening and resource referral. Acad Pediatr 2020;20:1157–62.
    OpenUrl
  22. 22.↵
    1. Rogers AJ,
    2. Hamity C,
    3. Sharp AL,
    4. Jackson AH,
    5. Schickedanz AB
    . Patients' attitudes and perceptions regarding social needs screening and navigation: multi-site survey in a large integrated health system. J Gen Intern Med 2020;35:1389–95.
    OpenUrlCrossRef
  23. 23.↵
    1. Taylor LA,
    2. Byhoff E
    . Money moves the mare: the response of community‐based organizations to health care's embrace of social determinants. Milbank Q 2021;99:171–208.
    OpenUrl
  24. 24.↵
    1. Creswell J
    . Educational research: planning, conducting, and evaluating quantitative and qualitative research. 2nd ed. Ann Arbor (MI): Merrill; 2005.
  25. 25.↵
    1. Tong A,
    2. Sainsbury P,
    3. Craig J
    . Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care 2007;19:349–57.
    OpenUrlCrossRefPubMedWeb of Science
  26. 26.↵
    United States Census Bureau [Internet]. QuickFacts Mesa County, Colorado; 2019 [cited 2020 Dec 21]. Available from: https://www.census.gov/quickfacts/fact/table/CO,mesacountycolorado/PST045219.
  27. 27.↵
    Feeding America [Internet]. Food insecurity in Mesa County; 2018 [cited 2021 Feb 24]. Available from: http://map.feedingamerica.org/county/2018/overall/colorado/county/mesa.
  28. 28.↵
    1. Taylor B,
    2. Henshall C,
    3. Kenyon S,
    4. Litchfield I,
    5. Greenfield S
    . Can rapid approaches to qualitative analysis deliver timely, valid findings to clinical leaders? A mixed methods study comparing rapid and thematic analysis. BMJ Open 2018;8:e019993.
    OpenUrlAbstract/FREE Full Text
  29. 29.↵
    1. Gale RC,
    2. Wu J,
    3. Erhardt T,
    4. et al
    . Comparison of rapid vs in-depth qualitative analytic methods from a process evaluation of academic detailing in the Veterans Health Administration. Implement Sci 2019;14:11.
    OpenUrlPubMed
  30. 30.↵
    1. Palinkas LA,
    2. Zatzick D
    . Rapid assessment procedure informed clinical ethnography (RAPICE) in pragmatic clinical trials of mental health services implementation: methods and applied case study. Adm Policy Ment Health 2019;46:255–70.
    OpenUrlPubMed
  31. 31.↵
    1. Palinkas LA,
    2. Mendon SJ,
    3. Hamilton AB
    . Innovations in mixed methods evaluations. Annu Rev Public Health 2019;40:423–42.
    OpenUrl
  32. 32.↵
    1. Saldana JC
    . An introduction to codes and coding. In: The coding manual for qualitative researchers. Los Angeles: Sage; 2016.
  33. 33.↵
    Services USCaI [Internet]. Final rules on public charge ground of inadmissibility; 2020 [cited 2021 Jan 26]. Available from: https://www.uscis.gov/archive/final-rule-on-public-charge-ground-of-inadmissibility.
  34. 34.↵
    1. Bean A,
    2. Jaynes J,
    3. Sexton T
    . Determining the shared population between service providers: How Tulsa is preserving privacy and sharing data for social good. Asemio; 2019.
  35. 35.↵
    1. Aagaard J,
    2. Hethcoat G
    . The social determinants of health: the next HIPAA frontier. 27th National HIPAA Summit; 2018.
  36. 36.↵
    1. Gaines-Turner T,
    2. Simmons JC,
    3. Chilton M
    . Recommendations from SNAP participants to improve wages and end stigma. Am J Public Health 2019;109:1664–7.
    OpenUrl
  37. 37.↵
    1. Garthwaite K
    . Stigma, shame and “people like us”: an ethnographic study of foodbank use in the UK. J Poverty Soc Justice 2016;24:277–89.
    OpenUrl
  38. 38.↵
    1. Pak T-Y
    . Welfare stigma as a risk factor for major depressive disorder: evidence from the Supplemental Nutrition Assistance Program. J Affective Disorders 2020;260:53–60.
    OpenUrl
  39. 39.↵
    1. El Zein A,
    2. Mathews AE,
    3. House L,
    4. Shelnutt KP
    . Why are hungry college students not seeking help? Predictors of and barriers to using an on-campus food pantry. Nutrients 2018;10:1163.
    OpenUrl
  40. 40.↵
    1. Runkle NK,
    2. Nelson DA
    . The silence of food insecurity: disconnections between primary care and community organizations. J Patient Cent Res Rev 2021;8:31–8.
    OpenUrl
  41. 41.↵
    1. Singh H,
    2. Spitzmueller C,
    3. Petersen NJ,
    4. Sawhney MK,
    5. Sittig DF
    . Information overload and missed test results in electronic health record–based settings. JAMA Intern Med 2013;173:702–4.
    OpenUrl
  42. 42.↵
    1. Solberg LI
    . Theory vs practice: should primary care practice take on social determinants of health now? No. Ann Fam Med 2016;14:102–3.
    OpenUrlFREE Full Text
  43. 43.↵
    1. Gottlieb L,
    2. Ackerman S,
    3. Wing H,
    4. Manchanda R
    . Understanding Medicaid managed care investments in members' social determinants of health. Popul Health Manag 2017;20:302–8.
    OpenUrlPubMed
  44. 44.↵
    1. McCarthy ML,
    2. Zheng Z,
    3. Wilder ME,
    4. et al
    . Latent class analysis to represent social determinant of health risk groups in the Medicaid cohort of the District of Columbia. Medical Care 2021;59:251–8.
    OpenUrlPubMed
  45. 45.↵
    1. DeWit EL,
    2. Meissen-Sebelius EM,
    3. Shook RP,
    4. et al
    . Beyond clinical food prescriptions and mobile markets: parent views on the role of a healthcare institution in increasing healthy eating in food insecure families. Nutr J 2020;19:1–12.
    OpenUrlCrossRef
  46. 46.↵
    1. Fincher D,
    2. VanderEnde K,
    3. Colbert K,
    4. Houry D,
    5. Smith LS,
    6. Yount KM
    . Effect of face-to-face interview versus computer-assisted self-interview on disclosure of intimate partner violence among African American women in WIC clinics. J Interpers Violence 2015;30:818–38.
    OpenUrlCrossRefPubMed
  47. 47.↵
    1. Chang L,
    2. Krosnick JA
    . Comparing oral interviewing with self-administered computerized questionnaires: an experiment. Public Opinion Quarterly 2010;74:154–67.
    OpenUrlCrossRefWeb of Science
  48. 48.↵
    1. Bowling A
    . Mode of questionnaire administration can have serious effects on data quality. J Public Health (Oxf) 2005;27:281–91.
    OpenUrlCrossRefPubMedWeb of Science
  49. 49.↵
    1. Capell B,
    2. Tzafrir SS,
    3. Enosh G,
    4. Dolan SL
    . Explaining sexual minorities' disclosure: the role of trust embedded in organizational practices. Organization Studies 2018;39:947–73.
    OpenUrl
  50. 50.↵
    1. Ganzini L,
    2. Denneson LM,
    3. Press N,
    4. et al
    . Trust is the basis for effective suicide risk screening and assessment in veterans. J Gen Intern Med 2013;28:1215–21.
    OpenUrlCrossRefPubMed
  51. 51.↵
    1. Schoenthaler A,
    2. Hassan I,
    3. Fiscella K
    . The time is now: fostering relationship-centered discussions about patients' social determinants of health. Patient Educ Couns 2019;102:810–4.
    OpenUrl
  52. 52.↵
    1. Pannucci CJ,
    2. Wilkins EG
    . Identifying and avoiding bias in research. Plast Reconstr Surg 2010;126:619–25.
    OpenUrlCrossRefPubMed
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