Research ArticleOriginal Research
Advancing the Patient EXperience (APEX) in COPD Registry: Study Design and Strengths
Barbara P. Yawn, Alan Kaplan, Wilson D. Pace, Janwillem W. H. Kocks, Lakmini Bulathsinhala, Victoria A. Carter, Ku-Lang Chang, Chelsea L. Edwards, Chester Fox, Gabriela Gaona, Gokul Gopalan, MeiLan K. Han, Maja Kruszyk, Chantal E. Le Lievre, Cathy D. Mahle, Barry Make, Zoe K. Philip, Chris Price, Amanda R. Ratigan, Asif Shaikh, Neil Skolnik, Brooklyn Stanley and David B. Price
The Journal of the American Board of Family
Medicine January 2021, 34 (1) 22-31; DOI: https://doi.org/10.3122/jabfm.2021.01.200351
Barbara P. Yawn
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Alan Kaplan
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Wilson D. Pace
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Janwillem W. H. Kocks
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Lakmini Bulathsinhala
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Victoria A. Carter
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Ku-Lang Chang
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Chelsea L. Edwards
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Chester Fox
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Gabriela Gaona
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Gokul Gopalan
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
MeiLan K. Han
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Maja Kruszyk
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Chantal E. Le Lievre
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Cathy D. Mahle
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Barry Make
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Zoe K. Philip
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Chris Price
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Amanda R. Ratigan
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Asif Shaikh
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Neil Skolnik
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
Brooklyn Stanley
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
David B. Price
the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).

Article Information
vol. 34 no. 1 22-31
PubMed
Published By
Print ISSN
Online ISSN
History
- Received for publication July 9, 2020
- Revision received September 30, 2020
- Accepted for publication September 30, 2020
- Published online January 15, 2021.
Copyright & Usage
© Copyright 2021 by the American Board of Family Medicine.
Author Information
- Barbara P. Yawn, MD, MSc, MSPH, FAAFP,
- Alan Kaplan, MD, CCFP (EM), FCFP,
- Wilson D. Pace, MD,
- Janwillem W. H. Kocks, MD, PhD,
- Lakmini Bulathsinhala, MPH,
- Victoria A. Carter, BSc,
- Ku-Lang Chang, MD, FAAFP, MRO,
- Chelsea L. Edwards, PhD,
- Chester Fox, MD, FAAFP,
- Gabriela Gaona, MPH,
- Gokul Gopalan, MD, MPH,
- MeiLan K. Han, MD, MSc,
- Maja Kruszyk, BEng,
- Chantal E. Le Lievre, BPH,
- Cathy D. Mahle, PhD, MBA,
- Barry Make, MD,
- Zoe K. Philip, MPH,
- Chris Price, LLB,
- Amanda R. Ratigan, PhD, MPH,
- Asif Shaikh, MD, MPH,
- Neil Skolnik, MD,
- Brooklyn Stanley, MSc and
- David B. Price, FRCGP
- From the University of Minnesota, Minneapolis, MN (BPY); COPD Foundation, Washington DC (BPY); Observational and Pragmatic Research Institute, Singapore, Singapore (AK, JWHK, DBP); 4Family Physician Airways Group of Canada, Stouffville, Canada (AK); University of Toronto, Toronto, Canada (AK); DARTNet Institute, Aurora, CO (WDP, CF, GGa, ZKP, ARR); University of Colorado, Denver, CO (WDP); General Practitioners Research Institute, Groningen, Netherlands (JWHK); Optimum Patient Care, Cambridge, UK (LB, VAC, CLE, MK, CELL, CP, BS, DBP); College of Medicine, University of Florida, Gainesville, FL (KLC); University at Buffalo, Buffalo, NY (CF); Boehringer Ingelheim, Ridgefield, CT (GGo, CDM, AS); University of Michigan, Ann Arbor, MI (MKH); Department of Medicine, National Jewish Health, Denver, CO (BM); Thomas Jefferson University, Jenkintown, PA (NS); Abington Jefferson Health, Jenkintown, PA (NS); Centre of Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Aberdeen, UK (DBP).
- Corresponding author: David B. Price, FRCGP, Academic Primary Care, Division of Applied Health Sciences, University of Aberdeen, Polwarth Building, Foresterhill, Aberdeen AB25 2ZD, UK (E-mail: dprice{at}opri.sg).
Cited By...
In this issue
The Journal of the American Board of Family
Medicine
Vol. 34, Issue 1
January/February 2021
Advancing the Patient EXperience (APEX) in COPD Registry: Study Design and Strengths
Barbara P. Yawn, Alan Kaplan, Wilson D. Pace, Janwillem W. H. Kocks, Lakmini Bulathsinhala, Victoria A. Carter, Ku-Lang Chang, Chelsea L. Edwards, Chester Fox, Gabriela Gaona, Gokul Gopalan, MeiLan K. Han, Maja Kruszyk, Chantal E. Le Lievre, Cathy D. Mahle, Barry Make, Zoe K. Philip, Chris Price, Amanda R. Ratigan, Asif Shaikh, Neil Skolnik, Brooklyn Stanley, David B. Price
The Journal of the American Board of Family
Medicine Jan 2021, 34 (1) 22-31; DOI: 10.3122/jabfm.2021.01.200351
Advancing the Patient EXperience (APEX) in COPD Registry: Study Design and Strengths
Barbara P. Yawn, Alan Kaplan, Wilson D. Pace, Janwillem W. H. Kocks, Lakmini Bulathsinhala, Victoria A. Carter, Ku-Lang Chang, Chelsea L. Edwards, Chester Fox, Gabriela Gaona, Gokul Gopalan, MeiLan K. Han, Maja Kruszyk, Chantal E. Le Lievre, Cathy D. Mahle, Barry Make, Zoe K. Philip, Chris Price, Amanda R. Ratigan, Asif Shaikh, Neil Skolnik, Brooklyn Stanley, David B. Price
The Journal of the American Board of Family
Medicine Jan 2021, 34 (1) 22-31; DOI: 10.3122/jabfm.2021.01.200351
Jump to section
Related Articles
- No related articles found.