Bringing Parent Voices into a Pediatric Research Network Through a Virtual Parent Panel

References

1. 1.↵
   1. Riley-Behringer M,
   2. Davis MM,
   3. Werner JJ,
   4. Fagnan LJ,
   5. Stange KC

   . The evolving collaborative relationship between practice-based research networks (PBRNs) and Clinical and Translational Science Awardees (CTSAs). J Clin Trans Sci 2017;1:301–9.

   OpenUrl
2. 2.↵
   1. Westfall JM,
   2. Mold J,
   3. Fagnan L

   . Practice-based research—“Blue Highways” on the NIH roadmap. JAMA 2007;297:403–6.

   OpenUrlCrossRefPubMedWeb of Science
3. 3.↵
   1. Westfall JM,
   2. VanVorst RF,
   3. Main DS,
   4. Herbert C

   . Community-based participatory research in practice-based research networks. Ann Fam Med 2006;4:8–14.

   OpenUrlAbstract/FREE Full Text
4. 4.↵
   1. Westfall JM,
   2. Roper R,
   3. Gaglioti A,
   4. Nease DE. Jr.

   . Practice-based research networks: strategic opportunities to advance implementation research for health equity. Ethn Dis 2019;29:113–8.

   OpenUrl
5. 5.↵
   1. Hoberman A

   . The research home: partnering with families. Acad Pediatr 2014;14:549–53.

   OpenUrlPubMed
6. 6.↵
   1. Westfall JM,
   2. Fagnan LJ,
   3. Handley M,
   4. et al

   . Practice-based research is community engagement. J Am Board Fam Med 2009;22:423–7.

   OpenUrlFREE Full Text
7. 7.↵
   1. Westfall JM,
   2. Ingram B,
   3. Navarro D,
   4. et al

   . Engaging communities in education and research: PBRNs, AHEC, and CTSA. Clin Transl Sci 2012;5:250–8.

   OpenUrlPubMed
8. 8.↵
   1. Hickner J,
   2. Green LA

   . Practice-based research networks (PBRNs) in the United States: growing and still going after all these years. J Am Board Fam Med 2015;28:541–5.

   OpenUrlFREE Full Text
9. 9.↵
   1. Nease DE. Jr.

   . Evidence, engagement, and technology: themes of and the state of primary care practice-based network research. J Am Board Fam Med 2016;29:521–4.

   OpenUrlAbstract/FREE Full Text
10. 10.↵
    Agency for Healthcare Research and Quality. AHRQ PBRN registry. Available from: https://pbrn.ahrq.gov/pbrn-registry. Accessed October 1, 2019.
11. 11.↵
    1. Binienda J,
    2. Neale AV,
    3. Wallace LS

    . Future directions for practice-based research networks (PBRNs): a CERA survey. J Am Board Fam Med 2018;31:917–23.

    OpenUrlAbstract/FREE Full Text
12. 12.↵
    1. Spears W,
    2. Tsoh JY,
    3. Potter MB,
    4. et al

    . Use of community engagement strategies to increase research participation in practice-based research networks (PBRNs). J Am Board Fam Med 2014;27:763–71.

    OpenUrlAbstract/FREE Full Text
13. 13.↵
    1. Fisher M,
    2. Brewer SE,
    3. Westfall JM,
    4. et al

    . Strategies for developing and sustaining patient and community advisory groups: lessons from the State Networks of Colorado Ambulatory Practices and Partners (SNOCAP) consortium of practice-based research networks. J Am Board Fam Med 2019;32:663–73.

    OpenUrlAbstract/FREE Full Text
14. 14.↵
    1. Fiks AG,
    2. Cutler M,
    3. Massey J,
    4. Bell LM

    . Partnering with parents to create a research advisory board in a pediatric research network. Pediatrics 2018;142:e20180822.

    OpenUrlFREE Full Text
15. 15.↵
    1. Harrison D,
    2. Elia S,
    3. Royle J,
    4. Manias E

    . Pain management strategies used during early childhood immunisation in Victoria. J Paediatr Child Health 2013;49:313–8.

    OpenUrlCrossRefPubMed
16. 16.↵
    1. Taddio A,
    2. Manley J,
    3. Potash L,
    4. Ipp M,
    5. Sgro M,
    6. Shah V

    . Routine immunization practices: use of topical anesthetics and oral analgesics. Pediatrics 2007;120:e637–e643.

    OpenUrlAbstract/FREE Full Text
17. 17.↵
    United States Census. QuickFacts. Available from: https://www.census.gov/quickfacts/pittsburghcitypennsylvania. Accessed June 7, 2020.
18. 18.↵
    1. Doshi K,
    2. Kazak AE,
    3. Hocking MC,
    4. et al

    . Why mothers accompany adolescent and young adult childhood cancer survivors to follow-up clinic visits. J Pediatr Oncol Nurs 2014;31:51–7.

    OpenUrlCrossRefPubMed
19. 19.↵
    1. Urkin J,
    2. Bilenko N,
    3. Bar-David Y,
    4. Gazala E,
    5. Barak N,
    6. Merrick J

    . Who accompanies a child to the office of the physician? Int J Adolesc Med Health 2008;20:513–8.

    OpenUrlPubMed
20. 20.↵
    1. Virdee PK,
    2. Rodd HD

    . Who accompanies children to a dental hospital appointment? Eur Arch Paediatr Dent 2007;8:96–8.

    OpenUrl
21. 21.↵
    1. Engster SA,
    2. Fascetti C,
    3. Daw K,
    4. Cohen Reis E

    . Parent perceptions of and preferences for participation in child health research: results from a pediatric practice-based research network. J Am Board Fam Med 2019;32:685–94.

    OpenUrlAbstract/FREE Full Text