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Research ArticleOriginal Research

A Practical Approach to Establishing a Practice-Based Research Network Stakeholder Engagement Infrastructure

Anne H. Gaglioti, Denita Walston, Cirila Estela Vasquez Guzman, Nikita Toppin Dera, Clarissa Ortiz, LaShun C. Wright, Tisa Roberts, Sharon Parker and Vicki Young
The Journal of the American Board of Family Medicine September 2019, 32 (5) 695-704; DOI: https://doi.org/10.3122/jabfm.2019.05.190046
Anne H. Gaglioti
From the National Center for Primary Care, Morehouse School of Medicine, Atlanta, GA (AHG, DW, NTD); Department of Family Medicine, Morehouse School of Medicine, Atlanta, GA (AHG); Department of Sociology, University of New Mexico, Albuquerque, NM (CEVG); Florida Association of Community Health Centers, Talahassee, FL (CO); Georgia Primary Care Association, Decatur, GA (LCW); Opportunities Industrialization Center, Rocky Mount, NC (TR); Alabama Primary Health Care Association, Montgomery, AL (SP); South Carolina Primary Health Care Association, Columbia, SC (VY).
MD, MS, FAAFP
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Denita Walston
From the National Center for Primary Care, Morehouse School of Medicine, Atlanta, GA (AHG, DW, NTD); Department of Family Medicine, Morehouse School of Medicine, Atlanta, GA (AHG); Department of Sociology, University of New Mexico, Albuquerque, NM (CEVG); Florida Association of Community Health Centers, Talahassee, FL (CO); Georgia Primary Care Association, Decatur, GA (LCW); Opportunities Industrialization Center, Rocky Mount, NC (TR); Alabama Primary Health Care Association, Montgomery, AL (SP); South Carolina Primary Health Care Association, Columbia, SC (VY).
MS
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Cirila Estela Vasquez Guzman
From the National Center for Primary Care, Morehouse School of Medicine, Atlanta, GA (AHG, DW, NTD); Department of Family Medicine, Morehouse School of Medicine, Atlanta, GA (AHG); Department of Sociology, University of New Mexico, Albuquerque, NM (CEVG); Florida Association of Community Health Centers, Talahassee, FL (CO); Georgia Primary Care Association, Decatur, GA (LCW); Opportunities Industrialization Center, Rocky Mount, NC (TR); Alabama Primary Health Care Association, Montgomery, AL (SP); South Carolina Primary Health Care Association, Columbia, SC (VY).
PhD
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Nikita Toppin Dera
From the National Center for Primary Care, Morehouse School of Medicine, Atlanta, GA (AHG, DW, NTD); Department of Family Medicine, Morehouse School of Medicine, Atlanta, GA (AHG); Department of Sociology, University of New Mexico, Albuquerque, NM (CEVG); Florida Association of Community Health Centers, Talahassee, FL (CO); Georgia Primary Care Association, Decatur, GA (LCW); Opportunities Industrialization Center, Rocky Mount, NC (TR); Alabama Primary Health Care Association, Montgomery, AL (SP); South Carolina Primary Health Care Association, Columbia, SC (VY).
MPH
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Clarissa Ortiz
From the National Center for Primary Care, Morehouse School of Medicine, Atlanta, GA (AHG, DW, NTD); Department of Family Medicine, Morehouse School of Medicine, Atlanta, GA (AHG); Department of Sociology, University of New Mexico, Albuquerque, NM (CEVG); Florida Association of Community Health Centers, Talahassee, FL (CO); Georgia Primary Care Association, Decatur, GA (LCW); Opportunities Industrialization Center, Rocky Mount, NC (TR); Alabama Primary Health Care Association, Montgomery, AL (SP); South Carolina Primary Health Care Association, Columbia, SC (VY).
MS
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LaShun C. Wright
From the National Center for Primary Care, Morehouse School of Medicine, Atlanta, GA (AHG, DW, NTD); Department of Family Medicine, Morehouse School of Medicine, Atlanta, GA (AHG); Department of Sociology, University of New Mexico, Albuquerque, NM (CEVG); Florida Association of Community Health Centers, Talahassee, FL (CO); Georgia Primary Care Association, Decatur, GA (LCW); Opportunities Industrialization Center, Rocky Mount, NC (TR); Alabama Primary Health Care Association, Montgomery, AL (SP); South Carolina Primary Health Care Association, Columbia, SC (VY).
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Tisa Roberts
From the National Center for Primary Care, Morehouse School of Medicine, Atlanta, GA (AHG, DW, NTD); Department of Family Medicine, Morehouse School of Medicine, Atlanta, GA (AHG); Department of Sociology, University of New Mexico, Albuquerque, NM (CEVG); Florida Association of Community Health Centers, Talahassee, FL (CO); Georgia Primary Care Association, Decatur, GA (LCW); Opportunities Industrialization Center, Rocky Mount, NC (TR); Alabama Primary Health Care Association, Montgomery, AL (SP); South Carolina Primary Health Care Association, Columbia, SC (VY).
MD
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Sharon Parker
From the National Center for Primary Care, Morehouse School of Medicine, Atlanta, GA (AHG, DW, NTD); Department of Family Medicine, Morehouse School of Medicine, Atlanta, GA (AHG); Department of Sociology, University of New Mexico, Albuquerque, NM (CEVG); Florida Association of Community Health Centers, Talahassee, FL (CO); Georgia Primary Care Association, Decatur, GA (LCW); Opportunities Industrialization Center, Rocky Mount, NC (TR); Alabama Primary Health Care Association, Montgomery, AL (SP); South Carolina Primary Health Care Association, Columbia, SC (VY).
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Vicki Young
From the National Center for Primary Care, Morehouse School of Medicine, Atlanta, GA (AHG, DW, NTD); Department of Family Medicine, Morehouse School of Medicine, Atlanta, GA (AHG); Department of Sociology, University of New Mexico, Albuquerque, NM (CEVG); Florida Association of Community Health Centers, Talahassee, FL (CO); Georgia Primary Care Association, Decatur, GA (LCW); Opportunities Industrialization Center, Rocky Mount, NC (TR); Alabama Primary Health Care Association, Montgomery, AL (SP); South Carolina Primary Health Care Association, Columbia, SC (VY).
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    Figure 1.

    Overview of SERCN PBRN engagement infrastructure building project timeline, activities, and products SERCN, southeast regional clinicians network; PBRN, practice-based research networks.

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    Table 1.

    Stakeholder Listening Session Discussion Guide

    Part 1: Quality Improvement and Research Assessment
    1. What are the most important health and health care delivery issues that face providers, health systems, community members, and local organizations in your service area
    2. What efforts/projects are underway currently to work on improving outcomes in these areas?
    3. What types of projects or efforts do you wish were underway in your community? What types of projects are priorities for the future for your primary care association or center?
    4. How might SERCN best help with the implementation, dissemination, or funding of projects underway in your state?
    5. How are patient values and community values currently incorporated in to designing ways to look at and solve issues around health and health care delivery in your community/practice site/organization?
    6. Are there important stakeholders in your service areas who do not currently have a voice in efforts to improve health or health care delivery? How could this be different or more inclusive?
    7. What is the biggest barrier you face to participating in quality improvement or patient centered research? What might be done to break down these barriers?
    Part 2: Educational and Reciprocal Needs
    1. What are some key educational and continuing education needs of your organization or members that SERCN might meet?
    2. What would be the best venue to meet those needs?
    3. What other services could SERCN offer that would help build a reciprocal relationship between our organizations? (inclusion on projects, continuing education, conferences, technical support) What would that look like?
    • SERCN, southeast regional clinicians network.

    • View popup
    Table 2.

    SERCN Stakeholder-Defined Research Agenda: Key Priority Areas and Populations

    1. Support health center infrastructure, sustainability, and mission to improve health outcomes.Staff wellbeing and retention
    Workforce development
    Strive for unified standard of care
    2. Measure the FQHC impact on broad economic, health, and utilization outcomes.Test meaningful outcome measures
    Whole person outcomes
    Leverage socioeconomic strengths of FQHCs
    Explore return on investment of FQHCs
    3. Prioritize work that is meaningful to patients and communities.Focus on system navigation and care transitions
    Link with community organizations
    Prioritize projects that address care of the whole person
    4. Support streamlining data infrastructure in FQHCs.Align research with existing quality measures
    Support autonomy of FQHCs to drive unified quality measures across payors
    SERCN should be aware of current quality and data priorities in the network
    5. Mental and behavioral health integration in the primary care safety net setting.Specific focus on substance use disorder treatment and prevention
    6. Study and test care delivery models for medically and socially complex populations.Chronic disease management
    Self-management and adherence
    Standardized care to promote equity
    Translate lessons from practice to support evidence
    • FQHC, federally qualified health center; SERCN, southeast regional clinicians network.

    • View popup
    Table 3.

    SERCN Stakeholder-Defined Research Agenda: Research Processes and Collaborative Principles

    SERCN Guiding Principles for Research Processes
    Project identificationVet ideas with stakeholders
    Encourage ideas from all levels of the network
    Project design and implementationFocus on streamlining processes instead of adding to workflow
    Prioritize sustainability
    RecruitmentPractice facilitation is needed to help with recruitment
    Data collectionMinimize data collection burden for the health center
    Data should be meaningful across stakeholders
    Results reportingShould be transparent and inclusive
    Prioritize dissemination to participants
    Package results to be interpretable to broad audiences
    Results interpretationInterpret in the spirit of transparency and inclusiveness
    Goal to send for review to a broad group of stakeholders
    DisseminationPotential outlets include regional meetings, local journals, webinars for clinicians, primary care association newsletters
    Dissemination should be shared and claimed by as broad a group of stakeholders as possible
    Leverage work as a tool to recruit broader participation in the network
    SERCN Collaborative Principles for Working Together
    Learn from each other and magnify successes across the region
    Credit and recognize people for the work they do
    Be mutually committed to collaboration
    Create an environment of trust and transparency
    Build a clearinghouse of best practices and scalable models
    Have regular communication including a yearly in person meeting and quarterly conference call
    Be informed and mindful of each other's time constraints and competing priorities
    Employ a clover leaf style of communication. SERCN will trust primary care associations to select priorities and we will value bidirectional communication where the hub is not the most important or the originator of ideas.
    • FQHC, federally qualified health center; SERCN, southeast regional clinicians network.

    • View popup
    Table 4.

    Multilevel Facilitators and Barriers to Implementing the SERCN Research Agenda

    Organizational LevelBarriersFacilitators
    Research networkLack of data uniformityRobust knowledge base
    Competing priorities and timeTrack record of successful collaboration
    Need for effective communication platformGood leadership
    Challenges for IRB processesCredibility and resources
    PCACan only serve as a connector between network and FQHCsDedicated staff with experience and commitment to the network
    If projects are not sustainable, then difficult to recruit FQHCsStrong history of collaboration regionally
    Strong relationships with FQHCs
    Successful at engaging consumers
    Effective communication strategies
    Strong policy and advocacy platform
    FQHCLimited staffing to support researchStrong public health infrastructure
    Data infrastructure is limitedCommunity based organizations
    Competing prioritiesStrong ties to community
    High turnover and burnout rate of staff/providersPopulation diversity
    ProviderChange fatigue
    Provider retention and turnover
    Provider burnout
    Providers are under resourced
    FQHC's leadership in the arena of quality of care measurement, pay for performance
    Data-rich environment
    Electronic health record systems and population management tools
    Platform for direct patient engagement
    FQHCs are advocates in the community
    Existing integrated care models
    Patient and community levelMistrust/fear of researchDiversity of services
    Transportation needsCultural diversity
    Need adequate compensation
    Lack of time and resources to participate
    Medical knowledge and front-line experience can inform research questions and interpretation
    • FQHC, federally qualified health center; IRB, institutional review board; PCA, primary care association; SERCN, southeast regional clinicians network.

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The Journal of the American Board of Family     Medicine: 32 (5)
The Journal of the American Board of Family Medicine
Vol. 32, Issue 5
September-October 2019
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A Practical Approach to Establishing a Practice-Based Research Network Stakeholder Engagement Infrastructure
Anne H. Gaglioti, Denita Walston, Cirila Estela Vasquez Guzman, Nikita Toppin Dera, Clarissa Ortiz, LaShun C. Wright, Tisa Roberts, Sharon Parker, Vicki Young
The Journal of the American Board of Family Medicine Sep 2019, 32 (5) 695-704; DOI: 10.3122/jabfm.2019.05.190046

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A Practical Approach to Establishing a Practice-Based Research Network Stakeholder Engagement Infrastructure
Anne H. Gaglioti, Denita Walston, Cirila Estela Vasquez Guzman, Nikita Toppin Dera, Clarissa Ortiz, LaShun C. Wright, Tisa Roberts, Sharon Parker, Vicki Young
The Journal of the American Board of Family Medicine Sep 2019, 32 (5) 695-704; DOI: 10.3122/jabfm.2019.05.190046
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  • Article
    • Abstract
    • One Network Example: The Southeast Regional Clinicians Network
    • Identifying and Engaging Stakeholders Around Research and Training Priorities
    • Leveraging Engagement Infrastructure to Establish a Stakeholder-Defined Research Agenda
    • Discussion and Potential Applications of this Approach
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