Article Figures & Data
Figures
- Figure 1.
Overview of study design and prioritization process.
Tables
- Table 1.
Demographic Characteristics of Stakeholders Interviewed about Pediatric Health Research Priorities in the COCONet, 2015 to 2016 (N = 61)
Total Sample, % (n) Stakeholders, % (n) Parents, % (n) Teens, % (n) Stakeholder group, n only* Primary group 12 37 12 Secondary group 4 9 0 Special considerations Healthy 54 (33) 33 (4) 51 (19) 83 (10) Special health needs 28 (17) 17 (2) 41 (15) 0 (0) Spanish speaking 25 (15) 0 (0) 41 (15) 0 (0) Low literacy 5 (3) 0 (0) 3 (1) 17 (2) Professional type† Policymaker 8 (5) 42 (5) 0 (0) 0 (0) Advocate 13 (8) 33 (4) 11 (4) 0 (0) Payer 2 (1) 8 (1) 0 (0) 0 (0) Physician 13 (8) 58 (7) 3 (1) 0 (0) Region Denver Metro 54 (33) 100 (12) 49 (18) 24 (3) Other Front Range 15 (9) 0 (0) 19 (7) 17 (2) Western Slope 8 (5) 0 (0) 14 (5) 0 (0) Eastern Plains 3 (2) 0 (0) 5 (2) 0 (0) Central Mountains 2 (1) 0 (0) 3 (1) 0 (0) San Luis Valley and Southwest 2 (1) 0 (0) 3 (1) 0 (0) Race/ethnicity White, non-Hispanic 51 (31) 75 (9) 49 (18) 33 (4) Hispanic 34 (21) 8 (1) 49 (18) 17 (2) Black 13 (8) 8 (1) 3 (1) 50 (6) Other 2 (1) 0 (0) 0 (0) 8 (1) Gender Male 13 (8) 17 (2) 3 (1) 42 (5) Female 87 (53) 83 (10) 97 (36) 58 (7) Agreed to survey followup 69 (42) 100 (12) 51 (19) 92 (11) ↵* Stakeholder group refers to the roles in which the interviewee was recruited to the project and participated in the study. Primary are the roles for which they were initially interviewed. Secondary roles are those revealed later in the process (for example a policymaker who revealed their parenting status during an interview) and potentially relevant to the research. Subsequent rows are calculated on the primary stakeholder group.
↵† Professional type was an “initial categorization” of non-parent professionals that was later documented for parents in relevant professional roles.
- Table 2.
Illustrative Quotes from COCONet Stakeholder Interviews on Priority Issues in Pediatric Health
Topic Area Subtopic Quote Pediatric health issues Immunization refusals “Your decision about immunization has ripple impacts on other children.” –Parent Mental health “There is a gigantic void and I think we don't address mental health.”–Parent “Like I said earlier, I have a friend with really bad social anxiety and it's bad enough to the point where if they're around more than three or four people that they know, they disappear to themselves. They don't speak. I just feel like other health topics than ADD or depression should be touched on in schools.” - Adolescent Obesity, food, and nutrition “How can we get kids involved, get them healthy, before obesity becomes an issue?” - Parent Sexual health “…getting [data] into the hands of parents to ensure age appropriate sexual health education is going on.”–Provider “… there should be more education for everyone about birth control 'cause I don't know a lot of guys that know things about birth control.”–Adolescent Drug and substance use/abuse “… since the legalization of marijuana anecdotally it seems like there is easier access to pot by kids”–Provider “You always hear, “Don't do drugs. Don't do it.” But you never hear, “This is why you don't want to do it.” […] they should explain to you why.”–Adolescent Health care system Care coordination “I think it's always a struggle in a complex system like we've built.”–Child Health Advocate Patient-provider relationships “It's just really important to us to have communication going between parents and the doctor.”–Parent “every time I went to the doctor, it was a different doctor, so I never really was able to get a connection with my doctor,”–Adolescent Provider-to-provider communication “There needs to be more collaboration.”–Provider Access/availability of care “There's not a pediatric provider within the county.”–Parent “[There should be] health care and all those kinds of things accessible to kids who don't have the kind of parents who can afford it, free or at school or something or based on donations.”–Adolescent Early childhood education “It goes back to parent education about developmental milestones.”–Provider Parent education on child health “Parenting doesn't come with a guidebook,' but maybe it could, a little bit more.”–Parent Emerging research questions How can parents be better advocates for their child's health in the health care setting? (Or teens for their own health?) “How are they [parents] supposed to be effective advocates for their kid?”–Parent How can we improve the doctor-patient relationship in pediatric settings? Does this improve health outcomes? Data source: Interview transcripts from COCONet stakeholder interviews collected from 2015 to 2016. ADD, attention deficit/hyperactivity disorder.
1. Access to and availability of care including mental health 2. Coordination of care with and among specialists and primary care providers 3. Immunization refusal and Colorado's low rates 4. Pediatric Mental Health—Coordination, communication and/or integration with primary care providers 5. Models for improving the doctor-patient relationship 6. Training parents (or teens) as advocates for care with goal of improved health outcomes Rating of Overall Importance in Colorado (10-Point Scale) Rating of Research Importance in Colorado (10-Point Scale) No. of Respondents Interested in Working Group Mean Min Max Mean Min Max Access to and availability of care including mental health 8.51 1.90 10 7.46 0.60 10 20 Coordination of care with and among specialists and primary care providers 8.04 4.00 10 7.35 0.40 10 17 Immunization refusal and Colorado's low rates 8.40 1.40 10 7.27 0.20 10 17 Pediatric Mental Health—Coordination, communication and/or integration with primary care providers 9.24 6.00 10 8.59 0.0.10 10 34 Models for improving the doctor-patient relationship 7.58 1.80 10 6.50 0.20 10 14 Training parents (or teens) as advocates for care with goal of improved health outcomes 7.93 2.80 10 7.26 0.20 10 24
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