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Research ArticleOriginal Research

What Patients with Mild-to-Moderate Kidney Disease Know, Think, and Feel about Their Disease: An In-Depth Interview Study

Carola van Dipten, Wim J.C. de Grauw, Jack F.M. Wetzels, Willem J.J. Assendelft, Nynke D. Scherpbier-de Haan and Marianne K. Dees
The Journal of the American Board of Family Medicine July 2018, 31 (4) 570-577; DOI: https://doi.org/10.3122/jabfm.2018.04.170459
Carola van Dipten
From Radboud Institute for Health Sciences, Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, the Netherlands (CvD, WdG, WA, NS, MD); Radboud Institute for Health Sciences, Department of Nephrology, Radboud University Medical Center, Nijmegen, the Netherlands (JW).
MD
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Wim J.C. de Grauw
From Radboud Institute for Health Sciences, Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, the Netherlands (CvD, WdG, WA, NS, MD); Radboud Institute for Health Sciences, Department of Nephrology, Radboud University Medical Center, Nijmegen, the Netherlands (JW).
MD, PhD
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Jack F.M. Wetzels
From Radboud Institute for Health Sciences, Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, the Netherlands (CvD, WdG, WA, NS, MD); Radboud Institute for Health Sciences, Department of Nephrology, Radboud University Medical Center, Nijmegen, the Netherlands (JW).
MD, PhD
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Willem J.J. Assendelft
From Radboud Institute for Health Sciences, Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, the Netherlands (CvD, WdG, WA, NS, MD); Radboud Institute for Health Sciences, Department of Nephrology, Radboud University Medical Center, Nijmegen, the Netherlands (JW).
MD, PhD
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Nynke D. Scherpbier-de Haan
From Radboud Institute for Health Sciences, Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, the Netherlands (CvD, WdG, WA, NS, MD); Radboud Institute for Health Sciences, Department of Nephrology, Radboud University Medical Center, Nijmegen, the Netherlands (JW).
MD, PhD
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Marianne K. Dees
From Radboud Institute for Health Sciences, Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, the Netherlands (CvD, WdG, WA, NS, MD); Radboud Institute for Health Sciences, Department of Nephrology, Radboud University Medical Center, Nijmegen, the Netherlands (JW).
MD, PhD
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  • Article
  • Figures & Data
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References

  1. 1.↵
    Kidney Disease: Improving Global Outcomes (KDIGO) CKD work group. KDIGO 2012 clinical practice guideline for the evaluation and management of chronic kidney disease. Kidney Int Suppl 2013;3:1–150.
    OpenUrlCrossRef
  2. 2.↵
    1. Coresh J,
    2. Selvin E,
    3. Stevens LA,
    4. et al
    . Prevalence of chronic kidney disease in the United States. JAMA 2007;298:2038–47.
    OpenUrlCrossRefPubMedWeb of Science
  3. 3.↵
    1. Hibbard JH,
    2. Stockard J,
    3. Mahoney ER,
    4. Tusler M
    . Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res 2004;39:1005–26.
    OpenUrlCrossRefPubMedWeb of Science
  4. 4.↵
    1. Greer RC,
    2. Crews DC,
    3. Boulware LE
    . Challenges perceived by primary care providers to educating patients about chronic kidney disease. J Ren Care 2012;38:174–81.
    OpenUrlCrossRefPubMed
  5. 5.↵
    1. McIntyre NJ,
    2. Fluck R,
    3. McIntyre C,
    4. Taal M
    . Treatment needs and diagnosis awareness in primary care patients with chronic kidney disease. Br J Gen Pract 2012;62:e227–32.
    OpenUrlAbstract/FREE Full Text
  6. 6.↵
    1. Plantinga LC,
    2. Boulware LE,
    3. Coresh J,
    4. Stevens LA,
    5. Miller ER 3rd.,
    6. Saran R,
    7. et al
    . Patient awareness of chronic kidney disease: trends and predictors. Arch Intern Med 2008;168:2268–75.
    OpenUrlCrossRefPubMedWeb of Science
  7. 7.↵
    1. Chow WL,
    2. Joshi VD,
    3. Tin AS,
    4. et al
    . Limited knowledge of chronic kidney disease among primary care patients–a cross-sectional survey. BMC Nephrol 2012;13:54.
    OpenUrlPubMed
  8. 8.↵
    1. Wright Nunes JA,
    2. Wallston KA,
    3. Eden SK,
    4. Shintani AK,
    5. Ikizler TA,
    6. Cavanaugh KL
    . Associations among perceived and objective disease knowledge and satisfaction with physician communication in patients with chronic kidney disease. Kidney Int 2011;80:1344–51.
    OpenUrlCrossRefPubMed
  9. 9.↵
    1. Schell JO,
    2. Patel UD,
    3. Steinhauser KE,
    4. Ammarell N,
    5. Tulsky JA
    . Discussions of the kidney disease trajectory by elderly patients and nephrologists: a qualitative study. Am J Kidney Dis 2012;59:495–503.
    OpenUrlCrossRefPubMedWeb of Science
  10. 10.↵
    1. Tong A,
    2. Sainsbury P,
    3. Chadban S,
    4. et al
    . Patients' experiences and perspectives of living with CKD. Am J Kidney Dis 2009;53:689–700.
    OpenUrlCrossRefPubMedWeb of Science
  11. 11.↵
    1. Tong A,
    2. Sainsbury P,
    3. Craig J
    . Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care 2007;19:349–57.
    OpenUrlCrossRefPubMedWeb of Science
  12. 12.↵
    1. Van Weel C
    . Validating long term morbidity recording. J Epidemiol Community Health 1995;49:29–32.
    OpenUrlAbstract/FREE Full Text
  13. 13.↵
    1. van Weel C
    . Longitudinal research and data collection in primary care. Ann Fam Med 2005;3:S46–51.
    OpenUrlAbstract/FREE Full Text
  14. 14.↵
    1. Walker D,
    2. Myrick F
    . Grounded theory: an exploration of process and procedure. Qual Health Res 2006;16:547–59.
    OpenUrlCrossRefPubMedWeb of Science
  15. 15.↵
    1. Marshall MN
    . Sampling for qualitative research. Fam Pract 1996;13:522–5.
    OpenUrlCrossRefPubMedWeb of Science
  16. 16.↵
    1. Abdel-Kader K,
    2. Greer RC,
    3. Boulware LE,
    4. Unruh ML
    . Primary care physicians' familiarity, beliefs, and perceived barriers to practice guidelines in non-diabetic CKD: a survey study. BMC Nephrol 2014;15:64.
    OpenUrlCrossRefPubMed
  17. 17.↵
    1. Greer RC,
    2. Ameling JM,
    3. Cavanaugh KL,
    4. et al
    . Specialist and primary care physicians' views on barriers to adequate preparation of patients for renal replacement therapy: a qualitative study. BMC Nephrol 2015;16:37.
    OpenUrlCrossRefPubMed
  18. 18.↵
    1. van Dipten C,
    2. van Berkel S,
    3. de Grauw WJ,
    4. et al
    . General practitioners' perspectives on management of early-stage chronic kidney disease: a focus group study Submitted. Accepted for publication, BMC Fam Pract, 17 April 2018.
  19. 19.↵
    1. Fraser SD,
    2. Roderick PJ,
    3. Casey M,
    4. Taal MW,
    5. Yuen HM,
    6. Nutbeam D
    . Prevalence and associations of limited health literacy in chronic kidney disease: a systematic review. Nephrol Dial Transplant 2013;28:129–37.
    OpenUrlCrossRefPubMedWeb of Science
  20. 20.↵
    1. Tuot DS,
    2. Davis E,
    3. Velasquez A,
    4. Banerjee T,
    5. Powe NR
    . Assessment of printed patient-educational materials for chronic kidney disease. Am J Nephrol 2013;38:184–94.
    OpenUrlCrossRefPubMed
  21. 21.↵
    1. Kessels RP
    . Patients' memory for medical information. J R Soc Med 2003;96:219–22.
    OpenUrlCrossRefPubMedWeb of Science
  22. 22.↵
    1. Boulware LE,
    2. Hill-Briggs F,
    3. Kraus ES,
    4. et al
    . Identifying and addressing barriers to African American and non-African American families' discussions about preemptive living related kidney transplantation. Prog Transplant 2011;21:97–104.
    OpenUrlCrossRefPubMed
  23. 23.↵
    1. Havas K,
    2. Bonner A,
    3. Douglas C
    . Self-management support for people with chronic kidney disease: patient perspectives. J Ren Care 2016;42:7–14.
    OpenUrl
  24. 24.↵
    1. Costantini L,
    2. Beanlands H,
    3. McCay E,
    4. Cattran D,
    5. Hladunewich M,
    6. Francis D
    . The self-management experience of people with mild to moderate chronic kidney disease. Nephrol Nurs J 2008;35:147–55.
    OpenUrlPubMed
  25. 25.↵
    1. Scherpbier-de Haan ND,
    2. Vervoort GM,
    3. van Weel C,
    4. et al
    . Effect of shared care on blood pressure in patients with chronic kidney disease: a cluster randomised controlled trial. Br J Gen Pract 2013;63:e798–806.
    OpenUrlAbstract/FREE Full Text
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The Journal of the American Board of Family     Medicine: 31 (4)
The Journal of the American Board of Family Medicine
Vol. 31, Issue 4
July-August 2018
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What Patients with Mild-to-Moderate Kidney Disease Know, Think, and Feel about Their Disease: An In-Depth Interview Study
Carola van Dipten, Wim J.C. de Grauw, Jack F.M. Wetzels, Willem J.J. Assendelft, Nynke D. Scherpbier-de Haan, Marianne K. Dees
The Journal of the American Board of Family Medicine Jul 2018, 31 (4) 570-577; DOI: 10.3122/jabfm.2018.04.170459

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What Patients with Mild-to-Moderate Kidney Disease Know, Think, and Feel about Their Disease: An In-Depth Interview Study
Carola van Dipten, Wim J.C. de Grauw, Jack F.M. Wetzels, Willem J.J. Assendelft, Nynke D. Scherpbier-de Haan, Marianne K. Dees
The Journal of the American Board of Family Medicine Jul 2018, 31 (4) 570-577; DOI: 10.3122/jabfm.2018.04.170459
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Keywords

  • Chronic Kidney Diseases
  • Family Physicians
  • Life Style
  • Primary Health Care
  • Qualitative Research
  • Self-Management

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