Article Figures & Data
Tables
Characteristic Family Reporting PCP Involvement in Decision Making Family Reporting no PCP Involvement in Decision Making P n 54 209 Mean age (SD) (years) 59.7 (17.2) 63.5 (17.2) .16 No. of females [n, (%)] 27 (50.0) 105 (50.2) .98 Race/ethnicity [n, (%)] .16 Caucasian 39 (72.2) 177 (84.7) Latino 7 (13.0) 17 (8.1) African American 7 (13.0) 12 (5.7) Asian 0 (0.0) 2 (1.0) Other 1 (1.8) 1 (0.5) Mean length of stay [days, (SD)] 9.8 (8.5) 9.8 (8.7) .99 Diagnosis [n, (%)] .1 Subarachnoid hemorrhage 8 (14.8) 55 (26.3) Stroke 10 (18.5) 35 (16.7) Seizure 4 (7.4) 15 (7.2) Intraparenchymal hemorrhage 10 (18.5) 47 (22.5) Subdural/epidural hemorrhage 7 (13.0) 11 (5.3) Brain tumor 7 (13.0) 19 (9.1) Other 8 (14.8) 27 (12.9) Mean Apache II Score [n, (%)] 14.2 (4.9) 15.5 (6.0) .29 Made comfort measures only [n, (%)] 10 (18.5) 34 (16.3) .69 PCP, primary care physician; SD, standard deviation.
Characteristic Family Reporting PCP Involvement in Decision Making Family Reporting no PCP Involvement in Decision Making P n 54 209 Mean age (SD) (years) 54.8 (15.9) 52.4 (13.9) .31 Number of females [n, (%)] 31 (57.4) 138 (66.0) .24 Race [n, (%)] .24 Caucasian 40 (78.4) 175 (87.1) African American 6 (11.8) 10 (5.0) Asian 0 (0.0) 2 (1.0) Ethnicity [n, (%)] .95 Non-Hispanic 44 (86.3) 162 (86.6) Hispanic 7 (13.7) 25 (13.4) Healthcare proxy [n, (%)] 36 (69.2) 144 (70.6) .85 Relationship to patient [n, (%)] .37 Child 13 (23.6) 72 (34.6) Spouse 23 (41.8) 84 (40.4) Parent 11 (20.0) 31 (14.9) Sibling 3 (5.5) 9 (4.3) Partner 0 (0.0) 7 (3.4) English as first language [n, (%)] 48 (88.9) 188 (90.8) .67 Highest level of education attained [n, (%)] .72 High school 15 (28.3) 50 (24.3) College 18 (34.0) 88 (42.7) Graduate degree 17 (32.1) 57 (27.7) Home location [n, (%)] .07 In town 11 (20.4) 23 (11.0) Out of town 43 (79.6) 186 (89.0) Prior ICU experience [n, (%)] 31 (58.5) 118 (56.7) .82 Living with patient prior to admission [n, (%)] 33 (62.3) 113 (54.1) .28 Frequency of seeing patient prior to admission [n, (%)] .13 More than weekly 17 (73.9) 51 (48.6) Weekly 2 (8.7) 31 (29.5) Monthly 3 (13.1) 18 (17.1) Yearly 1 (4.3) 5 (4.8) Number of regular visitors to patient [n, (%)] .21 1 5 (9.3) 10 (4.8) 2 to 3 12 (22.2) 72 (34.8) 4 to 6 22 (40.7) 82 (39.6) Greater than 6 15 (27.8) 43 (20.8) Hours spent by respondent per visit [n, (%)] .16 <1 0 (0.0) 0 (0.0) 1 3 (5.7) 3 (1.5) 2 3 (5.7) 12 (5.9) 3 2 (3.7) 21 (10.2) >3 45 (84.9) 169 (82.4) Number of formal family meetings [n, (%)] .97 0 12 (22.6) 46 (22.8) 1 6 (11.3) 28 (13.9) 2 7 (13.2) 26 (12.8) 3 9 (17.0) 28 (13.9) >3 19 (35.9) 74 (36.6) Responses of “Other” and blank responses are not shown in this table.
ICU, intensive care unit; PCP, primary care physician; SD, standard deviation.
Families Reporting PCP Involvement in Decision Making Families Reporting no PCP Involvement in Decision Making P Mean SD Median IQR Mean SD Median IQR Decision making 81.06 15.1 87.5 17.5 80.07 12.76 83.33 17.5 .16 subsection score General ICU care 90.22 12.68 94.64 11.81 88.38 14.15 92.86 14.29 .28 subsection score Global score 86.4 11.76 91.49 12.77 84.91 12.17 88.1 12.75 .16 The FS-ICU 24 has two sections, one regarding satisfaction with decision making, and the other regarding satisfaction with general ICU care.
Both subsections produce a composite subsection score graded from zero to 100, with the complete survey also producing a composite global score representing overall satisfaction. The P-values compare the mean scores for each subsection, as well as the composite score.
FS-ICU 24, Family Satisfaction in the ICU 24-item survey; ICU, intensive care unit; IQR, interquartile range; PCP, primary care physician; SD, standard deviation.
CMO Families Reporting PCP Involvement in Decision Making CMO Families Reporting no PCP Involvement in Decision Making P Non-CMO Families Reporting PCP Involvement in Decision Making Non-CMO Families Reporting no PCP Involvement in Decision Making P Mean SD Median IQR Mean SD Median IQR Mean SD Median IQR Mean SD Median IQR Decision making 84.19 7.24 84.17 8.75 77.26 16.77 82.5 18.13 .22 86.81 15.7 87.5 17.5 80.71 11.84 83.33 15 .33 subsection score General ICU care 91.68 8.2 93.75 13.15 86.38 16.34 91.37 16.16 .27 94.52 13.15 95.4 10.95 89.02 13.23 93.3 14.22 .36 subsection score Global score 88.57 7.35 90.96 8.14 82.54 15.91 87.8 14.09 .22 91.26 12.16 91.67 11.9 85.55 11 88.54 12.01 .23 The FS-ICU 24 has two sections, one regarding satisfaction with decision making and the other regarding satisfaction with general ICU care.
Both subsections produce a composite subsection score graded from zero to 100, with the complete survey also producing a composite global score representing overall satisfaction. The P-values compare the mean scores for each subsection, as well as the composite score.
CMO, comfort measures only; FS-ICU 24, Family Satisfaction in the ICU 24-item survey; IQR, interquartile range; PCP, primary care physician; SD, standard deviation.
- Table 5.
Responses to Individual FS-ICU 24 Survey Items Regarding Aspects of Decision Making
Survey item Number of Responses (n) Proportion Reporting Complete Satisfaction (%) P PCP Involvement No PCP Involvement PCP Involvement No PCP Involvement Frequency of communication by doctors 54 198 58.5 52.0 .44 Ease of getting information 54 205 74.1 75.1 .86 Understanding of information 54 193 74.1 76.2 .72 Honesty of information 54 198 66.7 71.2 .51 Completeness of information 53 206 79.2 70.4 .23 Consistency of information 54 203 64.8 63.5 1.00 Inclusion in decision making 54 207 75.9 61.4 .06 Support during decision making 54 207 50.0 50.7 1.00 Control over care 53 207 73.6 55.6 .02 Time to address questions and concerns 51 202 92.2 93.6 .76 The FS-ICU 24 has two sections, one regarding satisfaction with decision making and the other regarding satisfaction with general ICU care. The table shows the breakdown in responses for each question in the decision making subsection.
ICU, intensive care unit; FS-ICU 24, Family Satisfaction in the ICU 24-item survey; PCP, primary care physician.
Scores Pre-Intervention Post-Intervention Families Reporting PCP Involvement in Decision Making Families Reporting no PCP Involvement in Decision Making P Families Reporting PCP Involvement in Decision Making Families Reporting no PCP Involvement in Decision Making P Mean SD Median IQR Mean SD Median IQR Mean SD Median IQR Mean SD Median IQR Decision making subsection score 81.91 15.47 87.5 11.04 81.4 10.82 83.33 12.5 0.27 80.27 14.7 87.5 20.63 78.63 14.44 82.5 20 .34 General ICU care subsection score 91.85 10.8 96.43 12.56 89.61 13.25 94.23 13.6 0.38 88.71 14.04 94.64 12.33 87.04 14.96 92.86 19.37 .49 Global score 87.75 9.46 91.49 11.1 86.17 10.19 88.54 11.34 0.32 85.15 13.43 90.63 16.15 83.54 13.88 86.46 14.38 .28 FS-ICU 24 = Family Satisfaction in the ICU 24-item survey; p-values compare mean FS-ICU 24 scores.
The FS-ICU 24 has two sections, one regarding satisfaction with decision making and the other regarding satisfaction with general ICU care. Both subsections produce a composite subsection score graded from zero to 100, with the complete survey also producinig a composite global score representing overall satisfaction. The p-values compare the mean scores for each subsection, as well as the composite score.
“Intervention” refers to a new practice protocol instituted halfway through the data collection period whereby the attending intensivist on service and the NICU nurse manager visited all families of patients at the bedside each Tuesday and Thursday afternoon, at a specific time that was advertised to families in advance, as an opportunity to discuss with the NICU leadership their impressions with clinical care.
ICU, intensive care unit; IQR, interquartile range; PCP, patient's primary care physician; SD, standard deviation.
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