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Research ArticleOriginal Research

Patient Preferences for Receiving Reports of Test Results

Jeannine R. LaRocque, Christina L. Davis, Tina P. Tan, Frank J. D'Amico and Daniel J. Merenstein
The Journal of the American Board of Family Medicine November 2015, 28 (6) 759-766; DOI: https://doi.org/10.3122/jabfm.2015.06.150030
Jeannine R. LaRocque
From the Department of Human Science, Georgetown University Medical Center, Washington, DC (JRL, CLD, DJM); the Department of Family Medicine, Georgetown University Medical Center, Washington, DC (TPT, DJM); the Department of Mathematics and Computer Science, Duquesne University, Pittsburgh, PA (FJD); and the St. Margaret Family Medicine Residency Program, University of Pittsburgh Medical Center, Pittsburgh, PA (FJD).
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Christina L. Davis
From the Department of Human Science, Georgetown University Medical Center, Washington, DC (JRL, CLD, DJM); the Department of Family Medicine, Georgetown University Medical Center, Washington, DC (TPT, DJM); the Department of Mathematics and Computer Science, Duquesne University, Pittsburgh, PA (FJD); and the St. Margaret Family Medicine Residency Program, University of Pittsburgh Medical Center, Pittsburgh, PA (FJD).
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Tina P. Tan
From the Department of Human Science, Georgetown University Medical Center, Washington, DC (JRL, CLD, DJM); the Department of Family Medicine, Georgetown University Medical Center, Washington, DC (TPT, DJM); the Department of Mathematics and Computer Science, Duquesne University, Pittsburgh, PA (FJD); and the St. Margaret Family Medicine Residency Program, University of Pittsburgh Medical Center, Pittsburgh, PA (FJD).
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Frank J. D'Amico
From the Department of Human Science, Georgetown University Medical Center, Washington, DC (JRL, CLD, DJM); the Department of Family Medicine, Georgetown University Medical Center, Washington, DC (TPT, DJM); the Department of Mathematics and Computer Science, Duquesne University, Pittsburgh, PA (FJD); and the St. Margaret Family Medicine Residency Program, University of Pittsburgh Medical Center, Pittsburgh, PA (FJD).
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Daniel J. Merenstein
From the Department of Human Science, Georgetown University Medical Center, Washington, DC (JRL, CLD, DJM); the Department of Family Medicine, Georgetown University Medical Center, Washington, DC (TPT, DJM); the Department of Mathematics and Computer Science, Duquesne University, Pittsburgh, PA (FJD); and the St. Margaret Family Medicine Residency Program, University of Pittsburgh Medical Center, Pittsburgh, PA (FJD).
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    Figure 1.

    Comfort with receiving test results by method of communication. Each method of test result delivery (7 total) and type of test (3 total) is given. Participants' comfort level with various tests and methods are presented. Those scoring 8 to 10 on the Likert scale were grouped as “comfortable.” Those scoring 4 to 7 on the Likert scale were grouped as “ambivalent.” Those scoring 1 to 3 on Likert scale were grouped as “not comfortable.” For each type of test, the blood cholesterol and colonoscopy tests were grouped as “common tests” and the 3 genetics tests were grouped as “genetics” (see Methods for details). HIV, human immunodeficiency virus; STI, sexually transmitted infection.

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    Table 1. Demographic Characteristics of Survey Respondents
    Respondents (*)
    Sex (n = 407)
        Female255 (62.7)
        Male152 (37.3)
    Age, years (n = 406)
        Mean (SD)37.4 (16.7)
        18–24133 (32.8)
        25–3494 (23.2)
        35–5494 (23.2)
        ≥5585 (20.9)
    Race (n = 409)
        White362 (88.5)
        Asian17 (4.2)
        African American14 (3.4)
        Pacific Islander3 (0.7)
        American Indian1 (0.2)
        Other12 (2.9)
    Highest level of education (n = 406)
        Did not complete high school2 (0.5)
        High school diploma77 (19.0)
        Bachelor's degree157 (38.7)
        Master's degree82 (20.0)
        Doctorate77 (19.0)
        Other11 (2.7)
    Do you have a usual source of care (a doctor's office, clinic, health center, or other place you go if you are sick or need advice about personal health matters)? (n = 406)
        Yes375 (92.4)
        No31 (7.6)
        Have you or a family member been diagnosed with an inherited disease with a known genetic cause (for example, Down syndrome, cystic fibrosis, sickle cell anemia)? (n = 405)
        No.335 (82.7)
        Yes, I have.14 (3.5)
        Yes, a family member.48 (11.9)
        Yes, both myself and a family member.8 (2.0)
    On a scale of 1 to 10,† how familiar are you with blood tests for cholesterol levels? (n = 405), mean (SD)6.5 (3.3)
    On a scale of 1 to 10,† how familiar are you about genetic testing? (n = 404), mean (SD)5.3 (3.1)
    • Data are n (%) unless otherwise indicated.

    • ↵* Missing values were not included.

    • ↵† On a scale of 1 to 10 (1 = not familiar at all; 10 = very familiar). SD, standard deviation.

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    Table 2. Responses* from Questionnaire Items on How Comfortable Respondents Were With Receiving Specific Tests Results via the Listed Methods of Communication from a Health Care Provider
    Method of CommunicationType of TestP Value††
    Common Tests (Group 1)STI (Group 2)Genetic Test (Group 3)
    Cholesterol†Colonoscopy‡Non-HIV STI§Predisposed‖Inherited¶Carrier**
    Fax3.52.61.92.22.02.1All
    Personal voicemail7.86.96.26.55.86.01 vs 3; 1 vs 2
    Home voicemail5.84.73.24.23.63.8All
    Personal E-mail8.07.25.76.25.55.81 vs 3; 1 vs 2
    Letter7.26.45.56.15.65.8All
    Mobile phone text message5.24.13.23.63.33.31 vs 3; 1 vs 2
    Password-protected website7.56.96.66.66.16.51 vs 3; 1 vs 2
    • Data are shown as the mean values.

    • ↵* The response scale was based on 1 (not comfortable at all) to 10 (very comfortable). Response numbers are approximately 409 within each cell; standard deviations ranged between 2.2 and 3.7.

    • ↵† You received a test to check the level of cholesterol in your blood.

    • ↵‡ You received a colonoscopy to check for the potential development of colon cancer.

    • ↵§ You received a test to determine whether you have contracted a non-HIV sexually transmitted infection (STI; for example, herpes).

    • ↵‖ You received a test to determine whether you are genetically predisposed to a certain disease (you could potentially develop the disease, but it is not guaranteed).

    • ↵¶ You received a test to determine whether you have inherited a genetic disease that is currently untreatable.

    • ↵** You received a test to determine whether you are a carrier for a mutation that causes a genetic disease that could be passed on to your children.

    • ↵†† P value for testing the means of the individual tests within each type (common tests, 1; STI, 2; and genetic, 3). “All” implies groups 1 vs 2, 1 vs 3, and 2 vs 3 are significantly different. The P values were adjusted for multiple comparisons (P < .05).

    • HIV, human immunodeficiency virus.

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The Journal of the American Board of Family     Medicine: 28 (6)
The Journal of the American Board of Family Medicine
Vol. 28, Issue 6
November-December 2015
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Patient Preferences for Receiving Reports of Test Results
Jeannine R. LaRocque, Christina L. Davis, Tina P. Tan, Frank J. D'Amico, Daniel J. Merenstein
The Journal of the American Board of Family Medicine Nov 2015, 28 (6) 759-766; DOI: 10.3122/jabfm.2015.06.150030

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Patient Preferences for Receiving Reports of Test Results
Jeannine R. LaRocque, Christina L. Davis, Tina P. Tan, Frank J. D'Amico, Daniel J. Merenstein
The Journal of the American Board of Family Medicine Nov 2015, 28 (6) 759-766; DOI: 10.3122/jabfm.2015.06.150030
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Keywords

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