Lessons Learned from Developing a Patient Engagement Panel: An OCHIN Report

References

1. 1.↵
   1. Wright B

   . Do patients have a voice? The social stratification of health center governing boards. Health Expect 2013;18:430–7.

   OpenUrlPubMed
2. 2.↵
   1. Boote J,
   2. Baird W,
   3. Beecroft C

   . Public involvement at the design stage of primary health research: a narrative review of case examples. Health Policy 2010;95:10–23.

   OpenUrlCrossRefPubMedWeb of Science
3. 3.↵
   PCORnet. Patient-powered research networks. Available from: http://www.pcornet.org/patient-powered-research-networks/. Accessed July 21, 2015.
4. 4.↵
   1. Wright D,
   2. Corner J,
   3. Hopkinson J,
   4. Foster C

   . Listening to the views of people affected by cancer about cancer research: an example of participatory research in setting the cancer research agenda. Health Expect 2006;9:3–12.

   OpenUrlCrossRefPubMedWeb of Science
5. 5.↵
   1. Wells K,
   2. Jones L

   . Strategies for academic and clinician engagement in community-participatory partnered research. JAMA 2007;297:407–10.

   OpenUrlCrossRefPubMedWeb of Science
6. 6.↵
   1. Westfall JM,
   2. Fagnan LJ,
   3. Handley M,
   4. et al

   . Practice-based research is community engagement. J Am Board Fam Med 2009;22:423–7.

   OpenUrlFREE Full Text
7. 7.↵
   1. Ahmed SM,
   2. Palmero A-GS

   . Community engagement in research: frameworks for education and peer review. Am J Public Health 2010;100:1380–7.

   OpenUrlCrossRefPubMedWeb of Science
8. 8.↵
   1. Wallerstein N,
   2. Duran B

   . Community-based participatory research contributions to intervention research: the intersection of science and practice to improve health equity. Am J Public Health 2010;100(Suppl 1):S40–6.

   OpenUrlCrossRefPubMedWeb of Science
9. 9.↵
   1. Westfall JM,
   2. VanVorst RF,
   3. Main DS,
   4. Herbert C

   . Community-based participatory research in practice-based research networks. Ann Fam Med 2006;4(1):8–14.

   OpenUrlAbstract/FREE Full Text
10. 10.↵
    1. Tapp H,
    2. Dulin M

    . The science of primary health-care improvement: potential and use of community-based participatory research by practice-based research networks for translation of research into practice. Exp Biol Med (Maywood) 2010;235:290–9.

    OpenUrlAbstract/FREE Full Text
11. 11.↵
    1. Pace WD,
    2. Fagnan LJ,
    3. West DR

    . The Agency for Healthcare Research and Quality (AHRQ) Practice-based Research Network (PBRN) relationship: delivering on an opportunity, challenges, and future directions. J Am Board Fam Med 2011;24:489–92.

    OpenUrlAbstract/FREE Full Text
12. 12.↵
    1. Mold JW,
    2. Peterson KA

    . Primary care practice-based research networks: working at the interface between research and quality improvement. Ann Fam Med 2005;3(Suppl 1):S12–20.

    OpenUrlAbstract/FREE Full Text
13. 13.↵
    1. Boote JD,
    2. Twiddy M,
    3. Baird W,
    4. Birks Y,
    5. Clarke C,
    6. Beever D

    . Supporting public involvement in research design and grant development: a case study of a public involvement award scheme managed by a National Institute for Health Research (NIHR) Research Design Service (RDS). Health Expect 2013 Oct 1 [Epub ahead of print].
14. 14.↵
    1. Williams R,
    2. Shelley B,
    3. Sussman A

    . The marriage of community-based participatory research and practice-based research networks: Can it work? - A Research Involving Outpatient Settings Network (RIOS Net) study. J Am Board Fam Med 2009;22:428–35.

    OpenUrlAbstract/FREE Full Text
15. 15.↵
    1. Domecq JP,
    2. Prutsky G,
    3. Elraiyah T,
    4. et al

    . Patient engagement in research: a systematic review. BMC Health Serv Res 2014;14:89.

    OpenUrlCrossRefPubMed
16. 16.↵
    1. Deverka PA,
    2. Lavallee DC,
    3. Desai PJ,
    4. al E

    . Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement. J Comp Eff Res 2012;1:181–94.

    OpenUrlCrossRefPubMed
17. 17.↵
    1. Lavallee DC,
    2. Williams CJ,
    3. Tambor ES,
    4. Deverka PA

    . Stakeholder engagement in comparative effectiveness research: how will we measure success? J Comp Eff Res 2012;1:397–407.

    OpenUrlPubMed
18. 18.↵
    1. Concannon TW,
    2. Meissner P,
    3. Grunbaum JA

    . A new taxonomy for stakeholder engagement in patient-centered outcomes research. J Gen Intern Med 2012:27:985–91.

    OpenUrlPubMed
19. 19.↵
    1. Frank L,
    2. Basch E,
    3. Selby JV

    . The PCORI perspective on patient-centered outcomes research. JAMA 2014;312:1513–4.

    OpenUrlCrossRefPubMedWeb of Science
20. 20.↵
    1. Devoe JE,
    2. Sears A

    . The OCHIN community information network: bringing together community health centers, information technology, and data to support a patient-centered medical village. J Am Board Fam Med 2013;26:271–8.

    OpenUrlAbstract/FREE Full Text
21. 21.↵
    1. Devoe JE,
    2. Gold R,
    3. Spofford M,
    4. et al

    . Developing a network of community health centers with a common electronic health record: description of the Safety Net West Practice-based Research Network (SNW-PBRN). J Am Board Fam Med 2011;24:597–604.

    OpenUrlAbstract/FREE Full Text
22. 22.↵
    1. DeVoe JE,
    2. Likumahuwa S,
    3. Eiff MP,
    4. et al

    . Lessons learned and challenges ahead: report from the OCHIN Safety Net West practice-based research network (PBRN). J Am Board Fam Med 2012;25:560–4.

    OpenUrlAbstract/FREE Full Text
23. 23.↵
    1. Wright B,
    2. Martin GP

    . Mission, margin, and the role of consumer governance in decision-making at community health centers. J Health Care Poor Underserved 2014;25:930–47.

    OpenUrlPubMed
24. 24.↵
    1. Angier H,
    2. Wiggins N,
    3. Gregg J,
    4. DeVoe J

    . Increasing the relevance of research to underserved communities: lessons learned from a retreat to engage community health workers with researchers. J Health Care Poor Underserved 2013;24:840–9.

    OpenUrlCrossRefPubMedWeb of Science
25. 25.↵
    1. Thomson R,
    2. Murtagh M,
    3. Khaw FM

    . Tensions in public health policy: patient engagement, evidence-based public health and health inequalities. Qual Saf Health Care 2005;14:398–400.

    OpenUrlAbstract/FREE Full Text
26. 26.↵
    1. DeVoe JE,
    2. Gold R,
    3. Cottrell E,
    4. et al

    . The ADVANCE network: accelerating data value across a national community health center network. J Am Med Inform Assoc 2014;21:591–5.

    OpenUrlAbstract/FREE Full Text
27. 27.↵
    1. DeVoe J,
    2. Angier H,
    3. Likumahuwa S,
    4. et al

    . Use of qualitative methods and user-centered design to develop customized health information technology tools within federally qualified health centers to keep children insured. J Ambul Care Manage 2014;37:148–54.

    OpenUrlCrossRefPubMed