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Research ArticleOriginal Research

Practice Patterns, Beliefs, and Perceived Barriers to Care Regarding Dementia: A Report from the American Academy of Family Physicians (AAFP) National Research Network

Thomas V. Stewart, Natalia Loskutova, James M. Galliher, Gregg A. Warshaw, Letoynia J. Coombs, Elizabeth W. Staton, Jessica M. Huff and Wilson D. Pace
The Journal of the American Board of Family Medicine March 2014, 27 (2) 275-283; DOI: https://doi.org/10.3122/jabfm.2014.02.120284
Thomas V. Stewart
From the AAFP National Research Network, Leawood, KS (TVA, NL, JMG, EWS, WDP); the Department of Sociology, University of Missouri, Kansas City (JMG); the Department of Family and Community Medicine, University of Cincinnati, Cincinnati, OH (GAW); the Department of Family Medicine, University of Colorado Denver, Aurora (LJC, EWS, WDP); and the Department of Medical Education and Research, Danbury Hospital, Danbury, CT (JMH).
MA
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Natalia Loskutova
From the AAFP National Research Network, Leawood, KS (TVA, NL, JMG, EWS, WDP); the Department of Sociology, University of Missouri, Kansas City (JMG); the Department of Family and Community Medicine, University of Cincinnati, Cincinnati, OH (GAW); the Department of Family Medicine, University of Colorado Denver, Aurora (LJC, EWS, WDP); and the Department of Medical Education and Research, Danbury Hospital, Danbury, CT (JMH).
MD, PhD
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James M. Galliher
From the AAFP National Research Network, Leawood, KS (TVA, NL, JMG, EWS, WDP); the Department of Sociology, University of Missouri, Kansas City (JMG); the Department of Family and Community Medicine, University of Cincinnati, Cincinnati, OH (GAW); the Department of Family Medicine, University of Colorado Denver, Aurora (LJC, EWS, WDP); and the Department of Medical Education and Research, Danbury Hospital, Danbury, CT (JMH).
PhD
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Gregg A. Warshaw
From the AAFP National Research Network, Leawood, KS (TVA, NL, JMG, EWS, WDP); the Department of Sociology, University of Missouri, Kansas City (JMG); the Department of Family and Community Medicine, University of Cincinnati, Cincinnati, OH (GAW); the Department of Family Medicine, University of Colorado Denver, Aurora (LJC, EWS, WDP); and the Department of Medical Education and Research, Danbury Hospital, Danbury, CT (JMH).
MD
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Letoynia J. Coombs
From the AAFP National Research Network, Leawood, KS (TVA, NL, JMG, EWS, WDP); the Department of Sociology, University of Missouri, Kansas City (JMG); the Department of Family and Community Medicine, University of Cincinnati, Cincinnati, OH (GAW); the Department of Family Medicine, University of Colorado Denver, Aurora (LJC, EWS, WDP); and the Department of Medical Education and Research, Danbury Hospital, Danbury, CT (JMH).
EdD
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Elizabeth W. Staton
From the AAFP National Research Network, Leawood, KS (TVA, NL, JMG, EWS, WDP); the Department of Sociology, University of Missouri, Kansas City (JMG); the Department of Family and Community Medicine, University of Cincinnati, Cincinnati, OH (GAW); the Department of Family Medicine, University of Colorado Denver, Aurora (LJC, EWS, WDP); and the Department of Medical Education and Research, Danbury Hospital, Danbury, CT (JMH).
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Jessica M. Huff
From the AAFP National Research Network, Leawood, KS (TVA, NL, JMG, EWS, WDP); the Department of Sociology, University of Missouri, Kansas City (JMG); the Department of Family and Community Medicine, University of Cincinnati, Cincinnati, OH (GAW); the Department of Family Medicine, University of Colorado Denver, Aurora (LJC, EWS, WDP); and the Department of Medical Education and Research, Danbury Hospital, Danbury, CT (JMH).
MS, MPH
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Wilson D. Pace
From the AAFP National Research Network, Leawood, KS (TVA, NL, JMG, EWS, WDP); the Department of Sociology, University of Missouri, Kansas City (JMG); the Department of Family and Community Medicine, University of Cincinnati, Cincinnati, OH (GAW); the Department of Family Medicine, University of Colorado Denver, Aurora (LJC, EWS, WDP); and the Department of Medical Education and Research, Danbury Hospital, Danbury, CT (JMH).
MD
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Article Figures & Data

Tables

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    Table 1. Selected Sociodemographic Characteristics of Survey Respondents Compared to American Academy of Family Physicians (AAFP) Population (Overall Sample)
    Sampled Respondent CharacteristicsRespondents (n)Respondents Compared to Overall SampleTest Results
    χ2dfP
    Clinician age (years) (n = 848 respondents)3.123.37
        <4011914% vs. 15%
        40–4927132% vs. 35%
        50–5933139% vs. 37%
        ≥6012715% vs. 13%
    Sex (n = 851 respondents)0.231
        Female25530% vs. 31%
        Male59670% vs. 69%
    Time since medical school graduation (years) (n = 851 respondents)6.693.08
        0–10688% vs. 9%
        11–2028934% vs. 40%
        21–3031537% vs. 34%
        ≥3117921% vs. 18%
    Practice location (by Census region) (n = 843 respondents)0.312.86
        Northeast12815% vs. 15%
        Midwest23828% vs. 28%
        South27833% vs. 34%
        West19623% vs. 22%
    Practice location (n = 843 respondents)0.312.86
        Urban16920% vs. 21%
        Suburban37945% vs. 44%
        Rural29535% vs. 36%
    Percentage of time spent in direct patient care85190% vs. 89%Z = 2.43.02
    • View popup
    Table 2. Physician Responses to Survey Items Related to Screening and Diagnostic Evaluation for Dementia
    Screening/Diagnostic Evaluation Item“Yes” Responses, n (%)
    “Do you ever screen for dementia in asymptomatic adults?” (n = 851 were asked)476 (56)
    Criteria used as decision rules for screening (n = 476 responded)
        Age363 (76)
        Family history344 (72)
        Other cerebrovascular risk factors341 (72)
        Sex56 (12)
        Use specific tools to screen (n = 476)379 (80)
            Mini-mental status exam (379)359 (95)
            Clock drawing test (379)216 (57)
            Short portable mental status exam (379)26 (7)
    “Do you conduct diagnostic evaluations based on early signs or symptoms, patient concerns, or caregiver concerns?” (n = 851 were asked)762 (90)
    Screening and diagnostic evaluation status (n = 851 responded)
        Doctor does both444 (52)
        Doctor conducts diagnostic evaluations only318 (37)
        Doctor screens only32 (4)
        Doctor does neither57 (7)
    “If you obtain a positive screen or suspect dementia in a patient, do you follow-up with a more sensitive test in your office for presence of dementia?” (n = 794 were asked)579 (73)
    “Do you routinely collect patient history as part of the diagnostic process?” (n = 794 were asked)758 (95)
    “When you assess patient, do you routinely order lab work?” (n = 794 were asked)739 (93)
    “When you diagnose a patient, do you routinely order brain imaging?” (n = 794 were asked)527 (66)
    • View popup
    Table 3. Physician Responses to Survey Items Related to Care of Patients with Dementia and Perceived Hard to Manage Phenomena
    Treatment and Care Item“Yes” Responses, n (%)
    “Do you provide routine ongoing primary care for patients with dementia?” (n = 851were asked)771 (91%)
    Hard to manage dementia-related behaviors and complications (n = 771 responses)*
        1. Aggressiveness579 (75)
        2. Restlessness/agitation493 (64)
        3. Paranoia452 (59)
        4. Wandering436 (57)
        5. Sun-downing329 (43)
        6. Insomnia229 (30)
        7. Depression185 (24)
    Comorbidities associated with dementia that are hard to manage(n = 771)†
        1. Falls515 (67)
        2. Delirium423 (55)
        3. Adverse reactions to medications346 (45)
        4. Urinary incontinence321 (42)
        5. Poor appetite304 (39)
        6. Weight loss289 (37)
    Family/caregiver problems associated with dementia (n = 771)
        1. Fatigue/exhaustion554 (72)
        2. Planning for institutional placement519 (67)
        3. Anger346 (45)
        4. Isolation296 (38)
        5. Depression218 (28)
        6. Need for information175 (23)
    • ↵* Number of above behaviors & complications difficult to manage: mean, 3.51; standard deviation (SD), 1.93.

    • ↵† Number of above comorbidities difficult to manage: mean, 3.33; SD, 1.61. Mean (SD) adjusted for all items in a subgroup, 3.19 (2.00).

    • View popup
    Table 4. Results from Logistic Regression Analyses
    Outcomes and Predictor Variables*Adjusted Odds RatioWald χ2P (χ2 test)
    A. Order brain image as part screening or diagnostic evaluation for dementia (yes/no)
        Family/caregiver problems (n = 0–7) regarding dementia endorsed by respondent1.092.47.12
        Professional time spent in direct patient care1.013.06.08
        Time since medical school graduation (years)1.011.08.30
    B. Assess positively screened patients ≥65 years old with more sensitive tests (yes vs. no)
        <5% vs. >40%0.601.62.20
        5–20% vs. >40%0.477.33.007
        21–40% vs. >40%0.554.60.03
        Comorbidities (n = 0–6) associated with dementia endorsed by respondent0.941.09.30
        Tools (n = 0–6) needed to diagnose/treat dementia endorsed by respondent0.921.58.21
    C. Refer patients ≥65 years old with suspected dementia to other clinicians (yes vs. no)
        <5% vs. >40%4.1916.89<.001
        5–20% vs. >40%2.9419.05<.001
        21–40% vs. >40%1.573.29.07
        Rural geographic location (vs. urban)0.566.77.009
        Suburban geographic location (vs. urban)0.840.72.40
        Female sex (vs. male)1.312.56.11
        Dementia behaviors/complications (n = 0–7) endorsed by respondent0.100.002.10
        Comorbidities (n = 0–6) associated with dementia endorsed by respondent1.113.19.07
        Tools (n = 0–5) needed to diagnose/treat dementia endorsed by respondent1.134.15.04
    • ↵* Independent variables included within each model above are those found to be statistically significant (P ≤ .20) at the bivariate level with the given outcome. There were 11 independent variables for each outcome at the bivariate level.

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The Journal of the American Board of Family     Medicine: 27 (2)
The Journal of the American Board of Family Medicine
Vol. 27, Issue 2
March-April 2014
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Practice Patterns, Beliefs, and Perceived Barriers to Care Regarding Dementia: A Report from the American Academy of Family Physicians (AAFP) National Research Network
Thomas V. Stewart, Natalia Loskutova, James M. Galliher, Gregg A. Warshaw, Letoynia J. Coombs, Elizabeth W. Staton, Jessica M. Huff, Wilson D. Pace
The Journal of the American Board of Family Medicine Mar 2014, 27 (2) 275-283; DOI: 10.3122/jabfm.2014.02.120284

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Practice Patterns, Beliefs, and Perceived Barriers to Care Regarding Dementia: A Report from the American Academy of Family Physicians (AAFP) National Research Network
Thomas V. Stewart, Natalia Loskutova, James M. Galliher, Gregg A. Warshaw, Letoynia J. Coombs, Elizabeth W. Staton, Jessica M. Huff, Wilson D. Pace
The Journal of the American Board of Family Medicine Mar 2014, 27 (2) 275-283; DOI: 10.3122/jabfm.2014.02.120284
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