Article Figures & Data
Tables
Ferritin level Complaints of fatigue Yes 3.00 (1.77–5.08) No 1.00 (—) Complaints of painful joints Yes 2.20 (1.30–3.73) No 1.00 (—) Transferrin saturation Complaints of fatigue Yes 1.44 (1.10–1.89) No 1.00 (—) Complaints of painful joints Yes 1.46 (1.12–1.92) No 1.00 (—) Liver biopsy Complaints of fatigue Yes 1.20 (0.89–1.60) No 1.00 (—) Complaints of painful joints Yes 1.44 (1.08–1.92) No 1.00 (—) Genetic testing Complaints of fatigue Yes 1.26 (0.89–1.79) No 1.00 (—) Complaints of painful joints Yes 1.30 (0.92–1.84) No 1.00 (—) All values provided as odds ratio (95% confidence interval).
↵* Adjusted for age, sex, and race/ethnicity.
Extremely Useful Very Useful Somewhat Useful Not Useful Never Used Them Resources Health care providers 21.0 31.9 39.7 6.6 0.8 Community-based groups 25.0 24.5 13.7 2.0 34.8 Internet 28.3 32.2 25.9 1.3 12.4 University/ academic medical centers 6.0 8.3 9.4 2.6 73.7 Information sources Print 18.6 34.0 31.4 1.6 14.4 Video 2.1 4.4 7.2 2.0 84.3 Patient support groups 3.7 5.2 4.2 2.3 84.6 Live patient education seminars 3.2 3.7 2.1 1.3 89.7 All values provided as %.
Extremely Interested Very Interested Somewhat Interested Not Interested Signs and symptoms 38.3 27.7 23.6 10.4 Cause and risk factors 43.4 30.4 18.3 7.9 Information for family members 40.7 27.4 19.7 12.2 Diagnosis 36.3 28.0 21.9 13.8 Treatment 48.5 28.5 15.3 7.7 Self-care tips 55.7 29.0 10.1 5.2 Diet 54.2 26.7 13.8 5.4 Preventing complications 63.0 25.2 8.2 3.6 Genetics 45.4 26.8 20.1 7.7 All values provided as %.