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Research ArticleOriginal Research

Patient Research Interest Differences by Gender and Race/Ethnicity: A North Texas Primary Care Practice-Based Research Network (NorTex) Study

Tanjina Shabu, Anna M. Espinoza, Sydney Manning, Roberto Cardarelli and Kimberly G. Fulda
The Journal of the American Board of Family Medicine March 2022, 35 (2) 225-234; DOI: https://doi.org/10.3122/jabfm.2022.02.210340
Tanjina Shabu
Health Services Advisory Group, Phoenix, AZ (TS); North Texas Primary Care Practice-Based Research Network (NorTex), Department of Family Medicine and Osteopathic Manipulative Medicine, Texas College of Osteopathic Medicine, University of North Texas Health Science Center, Fort Worth, TX (AE, KGF); Department of Pharmacotherapy, System College of Pharmacy, University of North Texas Health Science Center, Fort Worth, TX (SM); and Department of Family and Community Medicine, University of Kentucky College of Medicine, Lexington, KY (RC).
MPH
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Anna M. Espinoza
Health Services Advisory Group, Phoenix, AZ (TS); North Texas Primary Care Practice-Based Research Network (NorTex), Department of Family Medicine and Osteopathic Manipulative Medicine, Texas College of Osteopathic Medicine, University of North Texas Health Science Center, Fort Worth, TX (AE, KGF); Department of Pharmacotherapy, System College of Pharmacy, University of North Texas Health Science Center, Fort Worth, TX (SM); and Department of Family and Community Medicine, University of Kentucky College of Medicine, Lexington, KY (RC).
MD
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Sydney Manning
Health Services Advisory Group, Phoenix, AZ (TS); North Texas Primary Care Practice-Based Research Network (NorTex), Department of Family Medicine and Osteopathic Manipulative Medicine, Texas College of Osteopathic Medicine, University of North Texas Health Science Center, Fort Worth, TX (AE, KGF); Department of Pharmacotherapy, System College of Pharmacy, University of North Texas Health Science Center, Fort Worth, TX (SM); and Department of Family and Community Medicine, University of Kentucky College of Medicine, Lexington, KY (RC).
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Roberto Cardarelli
Health Services Advisory Group, Phoenix, AZ (TS); North Texas Primary Care Practice-Based Research Network (NorTex), Department of Family Medicine and Osteopathic Manipulative Medicine, Texas College of Osteopathic Medicine, University of North Texas Health Science Center, Fort Worth, TX (AE, KGF); Department of Pharmacotherapy, System College of Pharmacy, University of North Texas Health Science Center, Fort Worth, TX (SM); and Department of Family and Community Medicine, University of Kentucky College of Medicine, Lexington, KY (RC).
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Kimberly G. Fulda
Health Services Advisory Group, Phoenix, AZ (TS); North Texas Primary Care Practice-Based Research Network (NorTex), Department of Family Medicine and Osteopathic Manipulative Medicine, Texas College of Osteopathic Medicine, University of North Texas Health Science Center, Fort Worth, TX (AE, KGF); Department of Pharmacotherapy, System College of Pharmacy, University of North Texas Health Science Center, Fort Worth, TX (SM); and Department of Family and Community Medicine, University of Kentucky College of Medicine, Lexington, KY (RC).
DrPH
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References

  1. 1.↵
    1. Pardasani M,
    2. Bandyopadhyay S
    . Ethnicity matters: the experiences of minority groups in public health programs. J Cult Divers 2014;21:90–8. PubMed PMID: 25306839.
    OpenUrl
  2. 2.↵
    1. George S,
    2. Duran N,
    3. Norris K
    . A systematic review of barriers and facilitators to minority research participation among frican Americans, Latinos, Asian Americans, and Pacific Islanders. Am J Public Health 2014;104:e16–e3.
    OpenUrlCrossRefPubMed
  3. 3.↵
    NIH policy and guidelines on the inclusion of women and minorities as subjects in clinical research [Internet]. National Institute of Health; 2017 [cited 2021 May 20]. Available at: https://grants.nih.gov/policy/inclusion/women-and-minorities/guidelines.htm.
  4. 4.↵
    1. Brown M,
    2. Moyer A
    . Predictors of awareness of clinical trials and feelings about the use of medical information for research in a nationally representative US sample. Ethn Health 2010;15:223–36.
    OpenUrlCrossRefPubMedWeb of Science
  5. 5.↵
    1. Erves JC,
    2. Mayo-Gamble TL,
    3. Malin-Fair A,
    4. et al
    . Needs, priorities, and recommendations for engaging underrepresented populations in clinical research: a community perspective. J Community Health 2017;42:472–80.
    OpenUrlCrossRefPubMed
  6. 6.↵
    1. Hurtado-de-Mendoza A,
    2. Serrano A,
    3. Zhu Q,
    4. et al
    . Engaging Latina breast cancer survivors in research: building a social network research registry. Transl Behav Med 2018;8:565–74.
    OpenUrl
  7. 7.↵
    1. Green MA,
    2. Kim MM,
    3. Barber S,
    4. et al
    . Connecting communities to health research: development of the Project CONNECT minority research registry. Contemp Clin Trials 2013;35:1–7.
    OpenUrl
  8. 8.↵
    1. Strutz KL,
    2. Herring AH,
    3. Halpern CT
    . Health disparities among young adult sexual minorities in the U.S. Am J Prev Med 2015;48:76–88.
    OpenUrl
  9. 9.↵
    1. Feldman S,
    2. Ammar W,
    3. Lo K,
    4. Trepman E,
    5. van Zuylen M,
    6. Etzioni O
    . Quantifying sex bias in clinical studies at scale with automated data extraction. JAMA Netw Open 2019;2:e196700.
    OpenUrl
  10. 10.↵
    1. Liu KA,
    2. Mager NA
    . Women's involvement in clinical trials: historical perspective and future implications. Pharm Pract (Granada) 2016;14:708.
    OpenUrl
  11. 11.↵
    1. Curno MJ,
    2. Rossi S,
    3. Hodges-Mameletzis I,
    4. Johnston R,
    5. Price MA,
    6. Heidari S
    . A systematic review of the inclusion (or exclusion) of women in HIV research: from clinical studies of antiretrovirals and vaccines to cure strategies. J Acquir Immune Defic Syndr 2016;71:181–8.
    OpenUrlPubMed
  12. 12.↵
    1. Hearld KR,
    2. Hearld LR,
    3. Hall AG
    . Engaging patients as partners in research: Factors associated with awareness, interest, and engagement as research partners. SAGE Open Med 2017;5:2050312116686709.
    OpenUrl
  13. 13.↵
    1. Scharff DP,
    2. Mathews KJ,
    3. Jackson P,
    4. Hoffsuemmer J,
    5. Martin E,
    6. Edwards D
    . More than Tuskegee: understanding mistrust about research participation. J Health Care Poor Underserved 2010;21:879–97.
    OpenUrlPubMed
  14. 14.↵
    1. Svensson K,
    2. Ramírez OF,
    3. Peres F,
    4. Barnett M,
    5. Claudio L
    . Socioeconomic determinants associated with willingness to participate in medical research among a diverse population. Contemp Clin Trials 2012;33:1197–205.
    OpenUrlPubMed
  15. 15.↵
    1. Webb FJ,
    2. Khubchandani J,
    3. Striley CW,
    4. Cottler LB
    . Black–White differences in willingness to participate and perceptions about health research: Results from the population-based HealthStreet Study. J Immigr Minor Health 2019;21:299–305.
    OpenUrl
  16. 16.
    1. Mays VM,
    2. Coles CN,
    3. Cochran SD
    . Is there a legacy of the U.S. Public Health Syphilis Study at Tuskegee in HIV/AIDS-related beliefs among heterosexual African-Americans and Latinos? Ethics Behav 2012;22:461–71.
    OpenUrl
  17. 17.↵
    1. Davis JL,
    2. Green LB,
    3. Katz RP
    . Influence of scary beliefs about the Tuskegee Syphilis Study on willingness to participate in research. ABNF J 2012;23:59–62.
    OpenUrlPubMed
  18. 18.↵
    1. Pariera K,
    2. Murphy S,
    3. Meng J,
    4. et al
    . Exploring willingness to participate in clinical trials by ethnicity. J Racial Ethn Health Disparities 2017;4:763–9.
    OpenUrl
  19. 19.↵
    1. McElfish PA,
    2. Long CR,
    3. Selig JP,
    4. et al
    . Health research participation, opportunity, and willingness among minority and rural communities of Arkansas. Clin Transl Sci 2018;11:487–97.
    OpenUrl
  20. 20.↵
    1. Rooney LK,
    2. Bhopal R,
    3. Halani L,
    4. et al
    . Promoting recruitment of minority ethnic groups into research: qualitative study exploring the views of South Asian people with asthma. J Public Health (Oxf) 2011;33:604–15.
    OpenUrlCrossRefPubMedWeb of Science
  21. 21.↵
    1. Westfall JM,
    2. Mold J,
    3. Fagnan L
    . Practice-based research—“blue highways” on the NIH roadmap. JAMA 2007;297:403–6.
    OpenUrlCrossRefPubMedWeb of Science
  22. 22.↵
    1. Tapp H,
    2. Dulin M
    . The science of primary health-care improvement: potential and use of community-based participatory research by practice-based research networks for translation of research into practice. Exp Biol Med (Maywood) 2010;235:290–9.
    OpenUrlCrossRefPubMed
  23. 23.↵
    NorTex [Internet]. North Texas Primary Care Research-Based Network; 2020 [cited 2021 May 20]. Available at: https://www.unthsc.edu/research/nortex/.
  24. 24.↵
    IBM Corp. Released 2017. IBM SPSS Statistics for Windows, Version 25.0.. Armonk, NY: IBM Corp.
  25. 25.↵
    Heart disease and African Americans [Internet]. Office of Minority Health; 2020 [cited 2021 May 20]. Available at: https://minorityhealth.hhs.gov/omh/browse.aspx?lvl=4&lvlid=19.
  26. 26.↵
    1. Virani SS,
    2. Alonso A,
    3. Benjamin EJ
    , American Heart Association Council on Epidemiology and Prevention Statistics Committee and Stroke Statistics Subcommitteeet al. Heart disease and stroke statistics—2020 update: a report from the American Heart Association. Circulation. 2020;141:e139–e596.
    OpenUrlCrossRefPubMed
  27. 27.↵
    1. Der Ananian C,
    2. Winham DM,
    3. Thompson SV,
    4. Tisue ME
    . Perceptions of heart-healthy behaviors among African American adults: a mixed methods study. IJERPH 2018;15:2433.
    OpenUrl
  28. 28.↵
    1. Giardina EV,
    2. Paul TK,
    3. Hayes D,
    4. Sciacca RR
    . Cardiovascular disease risk among young urban women. J Womens Health 2016;25:1139–46.
    OpenUrl
  29. 29.
    1. Flink LE,
    2. Sciacca RR,
    3. Bier ML,
    4. Rodriguez J,
    5. Giardina EGV
    . Women at risk for cardiovascular disease lack knowledge of heart attack symptoms. Clin Cardiol 2013;36:133–8.
    OpenUrlCrossRefPubMed
  30. 30.↵
    1. Bairey Merz CN,
    2. Andersen H,
    3. Sprague E,
    4. et al
    . Knowledge, attitudes, and beliefs regarding cardiovascular disease in women: The Women;s Heart Alliance. J Am Coll Cardiol 2017;70:123–32.
    OpenUrlFREE Full Text
  31. 31.↵
    National diabetes statistics report [Internet]. Centers for Disease Control and Prevention; 2020 [cited 2021 May 20]. Available at: https://www.cdc.gov/diabetes/pdfs/data/statistics/national-diabetes-statistics-report.pdf.
  32. 32.↵
    Summary Health Statistics: National Health Interview Survey: 2018. Table A-4a [Internet]. Centers for Disease Control and Prevention; 2018 [cited 2021 May 20]. https://ftp.cdc.gov/pub/Health_Statistics/NCHS/NHIS/SHS/2018_SHS_Table_A-4.pdf.
  33. 33.↵
    1. Ledford CJW,
    2. Seehusen DA,
    3. Crawford PF
    . Geographic and race/ethnicity differences in patient perceptions of diabetes. J Prim Care Community Health 2019;10:215013271984581.
    OpenUrl
  34. 34.↵
    1. Walker RJ,
    2. Smalls BL,
    3. Hernandez-Tejada MA,
    4. Campbell JA,
    5. Davis KS,
    6. Egede LE
    . Effect of diabetes fatalism on medication adherence and self-care behaviors in adults with diabetes. Gen Hosp Psychiatry 2012;34:598–603.
    OpenUrlCrossRefPubMedWeb of Science
  35. 35.↵
    1. Chlebowy DO,
    2. Hood S,
    3. LaJoie AS
    . Gender differences in diabetes self-management among African American adults. West J Nurs Res 2013;35:703–21.
    OpenUrlCrossRefPubMedWeb of Science
  36. 36.↵
    Cancer and African Americans [Internet]. Office of Minority Health; 2020 [cited 2021 May 20]. Available at: https://minorityhealth.hhs.gov/omh/browse.aspx?lvl=4&lvlid=16.
  37. 37.↵
    SEER Cancer Statistics Review (CSR) 1975–2016 [Internet]. National Cancer Institute; 2020 [cited 2021 May 20]. Available at: https://seer.cancer.gov/archive/csr/1975_2016/index.html#contents.
  38. 38.↵
    1. Henley SJ,
    2. Ward EM,
    3. Scott S,
    4. et al
    . Annual report to the nation on the status of cancer, part I: National cancer statistics. Cancer 2020;126:2225–49.
    OpenUrlCrossRef
  39. 39.↵
    1. Duma N,
    2. Vera Aguilera J,
    3. Paludo J,
    4. et al
    . Representation of minorities and women in oncology clinical trials: review of the past 14 years. JOP 2018;14:e1–e10.
    OpenUrl
  40. 40.
    1. Harvey VM,
    2. Enos CW,
    3. Chen JT,
    4. Galadima H,
    5. Eschbach K
    . The role of neighborhood characteristics in late-stage melanoma diagnosis among Hispanic men in California, Texas, and Florida, 1996–2012. J Cancer Epidemiol 2017;2017:8418904.
    OpenUrl
  41. 41.↵
    1. Nonzee NJ,
    2. Ragas DM,
    3. Ha Luu T,
    4. et al
    . Delays in cancer care among low-income minorities despite access. J Womens Health (Larchmt) 2015;24:506–14.
    OpenUrlCrossRefPubMed
  42. 42.↵
    Cancer and men [Internet]. Centers for Disease Control and Prevention; 2020 [cited 2021 April 30]. Available at: https://www.cdc.gov/cancer/dcpc/resources/features/cancerandmen/index.htm.
  43. 43.↵
    1. Nardi C,
    2. Sandhu P,
    3. Selix N
    . Cervical cancer screening among minorities in the United States. JNP 2016;12:675–82.
    OpenUrl
  44. 44.↵
    1. Ward EC,
    2. Wiltshire JC,
    3. Detry MA,
    4. Brown RL
    . African American men and women's attitude toward mental illness, perceptions of stigma, and preferred coping behaviors. Nurs Res 2013;62:185–94.
    OpenUrlCrossRef
  45. 45.↵
    1. Kuehner C
    . Why is depression more common among women than among men? Lancet Psychiatry 2017;4:146–58.
    OpenUrlPubMed
  46. 46.↵
    1. Cardarelli R,
    2. Mann C,
    3. Fulda KG,
    4. Balyakina E,
    5. Espinoza A,
    6. Lurie S
    . Improving accuracy of medication identification in an older population using a medication bottle color symbol label system. BMC Fam Pract 2011;12:142.
    OpenUrlCrossRefPubMed
  47. 47.↵
    1. Winham D,
    2. Jones K
    . Knowledge of young African American adults about heart disease: a cross-sectional survey. BMC Public Health 2011;11:248.
    OpenUrlCrossRefPubMed
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The Journal of the American Board of Family     Medicine: 35 (2)
The Journal of the American Board of Family Medicine
Vol. 35, Issue 2
March/April 2022
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Patient Research Interest Differences by Gender and Race/Ethnicity: A North Texas Primary Care Practice-Based Research Network (NorTex) Study
Tanjina Shabu, Anna M. Espinoza, Sydney Manning, Roberto Cardarelli, Kimberly G. Fulda
The Journal of the American Board of Family Medicine Mar 2022, 35 (2) 225-234; DOI: 10.3122/jabfm.2022.02.210340

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Patient Research Interest Differences by Gender and Race/Ethnicity: A North Texas Primary Care Practice-Based Research Network (NorTex) Study
Tanjina Shabu, Anna M. Espinoza, Sydney Manning, Roberto Cardarelli, Kimberly G. Fulda
The Journal of the American Board of Family Medicine Mar 2022, 35 (2) 225-234; DOI: 10.3122/jabfm.2022.02.210340
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