Article Figures & Data
Tables
No. (%) Practice-based research network Minnesota Academy of Family Practice 43 (28) Penn State Ambulatory Research Network 55 (35) Research Involving Outpatient Settings Network 58 (37) Male Gender 90 (58) Profession Physician Family medicine 115 (74) Internal medicine* 20 (13) No board certification reported 2 (1) Nurse practitioner 13 (8) Physician assistant 6 (4) Electronic medical records used in practice 134 (86) Mean (SD) Age (years) 50 (9) Year training completed 1989 (10) Cancer patients† seen during last year 20 (30) Colorectal cancer patients† seen during last year 3 (4) Survivors† of any cancer seen during last year 44 (67) Survivors† of colorectal cancer survivors seen during last year 6 (9) - Table 2. Primary Care Physicians' Perspectives Regarding Information about Individual Colorectal Cancer Survivors' Diagnosis and Treatment Characteristics
Topic* Very Important To Know Not Enough Information Diagnosis Stage of the patient's disease 143 (92) 63 (40) Grade of the patient's disease 122 (78) 68 (44) Site of the patient's disease (colon or rectum) 113 (73) 34 (22) Relevant pathology of the patient's disease 104 (67) 64 (42) Where the patient received treatment 93 (60) 38 (24) Method of diagnosis 76 (49) 36 (23) Surgery Whether patient had surgery 144 (92) 15 (10) Any lingering effects of surgery 140 (90) 84 (55) What the patient's anatomy is after surgery 126 (81) 97 (63) If there were surgical complications 108 (69) 87 (56) Date of the patient's surgery 89 (57) 32 (21) Chemotherapy Whether patient had chemotherapy 147 (94) 28 (18) Reason for terminating chemotherapy 123 (79) 93 (60) Whether there were problems with chemotherapy 120 (77) 104 (68) Contact information for the doctor who administered chemotherapy 96 (62) 66 (42) Name of each chemotherapy drug administered 56 (36) 67 (43) Dates each regimen of chemotherapy was completed 43 (28) 73 (47) Dose of each chemotherapy drug administered 8 (5) 71 (46) Radiation Whether patient had radiation therapy 146 (94) 26 (17) Whether there were problems with radiation therapy 128 (82) 93 (60) Reason for terminating radiation therapy 111 (72) 87 (56) Location where radiation was administered 97 (62) 69 (45) Contact information for the doctor who administered radiation therapy 86 (55) 62 (40) Date radiation therapy was completed 85 (54) 61 (39) Dose of radiation 25 (16) 64 (41) Other aspects of treatment Whether patient was hospitalized for complications during treatment 109 (70) 76 (49) Whether psychosocial services were provided during treatment 69 (44) 103 (66) Whether patient was in a clinical trial 63 (40) 87 (56) Whether other supportive services were provided during treatment 59 (38) 99 (63) Whether nutritional services were provided during treatment 58 (37) 103 (66) Coordination of care Whether cancer care provider(s) intend(s) to monitor the patient for recurrences and second primaries 153 (98) 90 (58) Whether cancer care provider(s) intend(s) to monitor the patient for cancers at other sites 141 (90) 109 (71) Medical reports Pathology report 106 (68) 71 (46) Operative report 73 (47) 62 (40) Values provided as n (%).
↵* Adapted from Institute of Medicine Report.1
- Table 3. Primary Care Physicians' Perspectives Regarding Colorectal Cancer Survivorship Issues
Topic* Very Important to Know Not Enough Information Any increased risks for second colorectal cancers, other cancers, and other diseases 153 (98) 122 (78) The schedule of recommended colorectal cancer surveillance 153 (98) 79 (51) Possible signs of recurrence and second tumors 145 (93) 93 (60) The schedule of recommended screenings for noncolorectal cancers 139 (89) 85 (54) Chemoprevention strategies for secondary prevention (eg, tamoxifen in women at high risk for breast cancer) 135 (87) 112 (72) The possible long-term risks and complications from radiation therapy 135 (87) 104 (67) The possible long-term risks and complications from chemotherapy 131 (85) 114 (73) Other types of follow-up care providers that may be needed (eg, rehabilitation, fertility, psychology) 124 (79) 111 (71) Genetic counseling and testing to identify high-risk individuals who could benefit from more comprehensive cancer surveillance 122 (78) 129 (83) Possible effects of cancer on marital/partner relationship, sexual functioning, work, parenting, and future needs for psychosocial support 117 (75) 99 (63) Support groups and other resources for colorectal cancer survivors 100 (64) 105 (67) Values provided as n (%). Total number of respondents does not always equal 156 due to missing data.
↵* Adapted from Institute of Medicine Report.1
Participants Who Would Like This Format Printed document 129 (83) Website 39 (25) E-mail 44 (28) Conversation with cancer care provider 50 (32) Delivery From the patient at an office visit 32 (21) Directly from the cancer care provider's office 153 (98) Values provided as n (%). Percentages do not add to 100 because respondents could select multiple formats or styles of delivery.
- Table 5. Primary Care Physicians' Perspectives Regarding Receipt and Usefulness of Information about Colorectal Cancer Survivors
Component of Survivorship Care Plan N Ever Received Component (Yes) Component Was Extremely Useful* Component Was Somewhat Useful* Summary of diagnosis 156 130 (86) 99 (76) 30 (23) Summary of treatment 155 133 (86) 102 (77) 30 (23) Recommendations for ongoing primary care 156 45 (29) 36 (80) 9 (20) Information on what aspects of care PCP and cancer care providers are responsible for 156 31 (20) 25 (81) 6 (19) Values provided as n (%).
↵* Of those who ever did receive the component.
- Topic 1: Diagnosis Summary
When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how important is it for you to know: Not Important Somewhat Important Very Important Undecided 19. … the method of diagnosis ○ ○ ○ ○ 20. … where the patient received treatment ○ ○ ○ ○ 21. … the site of the patient's disease (colon or rectum) ○ ○ ○ ○ 22. … the stage of the patient's disease ○ ○ ○ ○ 23. … the grade of the patient's disease ○ ○ ○ ○ 24. … the relevant pathology of the patient's disease ○ ○ ○ ○ When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how much information do you typically have about: Not Enough Just the Right Amount Too Much It Varies Too Much To Say 25. … the method of diagnosis ○ ○ ○ ○ 26. … where the patient received treatment ○ ○ ○ ○ 27. … the site of the patient's disease (colon or rectum) ○ ○ ○ ○ 28. … the stage of the patient's disease ○ ○ ○ ○ 29. … the grade of the patient's disease ○ ○ ○ ○ 30. … the relevant pathology of the patient's disease ○ ○ ○ ○ - Topic 2: Surgery
When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how important is it for you to know: Not Important Somewhat Important Very Important Undecided 31. … whether the patient had surgery ○ ○ ○ ○ 32. … the date of the patient's surgery ○ ○ ○ ○ 33. … whether there were surgical complications ○ ○ ○ ○ 34. … what the patient's anatomy is after surgery ○ ○ ○ ○ 35. … whether there are lingering effects of surgery ○ ○ ○ ○ When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how much information do you typically have about: Not Enough Just the Right Amount Too Much It Varies Too Much To Say 36. … whether the patient had surgery ○ ○ ○ ○ 37. … the date of the patient's surgery ○ ○ ○ ○ 38. … if there were surgical complications ○ ○ ○ ○ 39. … what the patient's anatomy is after surgery ○ ○ ○ ○ 40. … whether there are lingering effects of surgery ○ ○ ○ ○ - Topic 3: Chemotherapy
When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how important is it for you to know: Not Important Somewhat Important Very Important Undecided 41. … whether the patient had chemotherapy ○ ○ ○ ○ 42. … the dates each regimen of chemotherapy was completed ○ ○ ○ ○ 43. … the name of each chemotherapy drug administered ○ ○ ○ ○ 44. … the dose of each chemotherapy drug administered ○ ○ ○ ○ 45. … the possible long-term risks and complications from chemotherapy ○ ○ ○ ○ 46. … the contact information for the doctor who administered chemotherapy ○ ○ ○ ○ 47. … the reason for terminating chemotherapy ○ ○ ○ ○ 48. … whether there were problems with chemotherapy ○ ○ ○ ○ When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how much information do you typically have about: Not Enough Just the Right Amount Too Much It Varies Too Much To Say 49. … whether the patient had chemotherapy ○ ○ ○ ○ 50. … the dates each regimen of chemotherapy was completed ○ ○ ○ ○ 51. … the name of each chemotherapy drug administered ○ ○ ○ ○ 52. … the dose of each chemotherapy drug administered ○ ○ ○ ○ 53. … the possible long-term risks and complications from chemotherapy ○ ○ ○ ○ 54. … the contact information for the doctor who administered chemotherapy ○ ○ ○ ○ 55. … the reason for terminating chemotherapy ○ ○ ○ ○ 56. … whether there were problems with chemotherapy ○ ○ ○ ○ - Topic 4: Radiation Therapy
When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how important is it for you to know: Not Important Somewhat Important Very Important Undecided 57. … whether the patient had radiation therapy ○ ○ ○ ○ 58. … the date radiation therapy was completed ○ ○ ○ ○ 59. … the location where radiation was administered ○ ○ ○ ○ 60. … the dose of radiation ○ ○ ○ ○ 61. … the contact information for the doctor who administered radiation therapy ○ ○ ○ ○ 62. … the possible long-term risks and complications from radiation therapy ○ ○ ○ ○ 63. … the reason for terminating radiation therapy ○ ○ ○ ○ 64. … whether there were problems with radiation therapy ○ ○ ○ ○ When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how much information do you typically have about: Not Enough Just the Right Amount Too Much It Varies Too Much To Say 65. … whether the patient had radiation therapy ○ ○ ○ ○ 66. … the date radiation therapy was completed ○ ○ ○ ○ 67. … the location where radiation was administered ○ ○ ○ ○ 68. … the dose of radiation ○ ○ ○ ○ 69. … the contact information for the doctor who administered radiation therapy ○ ○ ○ ○ 70. … the possible long-term risks and complications from radiation therapy ○ ○ ○ ○ 71. … the reason for terminating radiation therapy ○ ○ ○ ○ 72. … whether there were problems with radiation therapy ○ ○ ○ ○ - Topic 5: Other Aspects of Treatment
When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how important is it for you to know: Not Important Somewhat Important Very Important Undecided 73. … whether the patient was in a clinical trial ○ ○ ○ ○ 74. … if the patient was hospitalized for complications during treatment ○ ○ ○ ○ 75. … whether psychosocial services were provided during treatment ○ ○ ○ ○ 76. … whether nutritional services were provided during treatment ○ ○ ○ ○ 77. … whether other supportive services were provided during treatment ○ ○ ○ ○ When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how much information do you typically have about: Not Enough Just the Right Amount Too Much It Varies Too Much To Say 78. … whether the patient was in a clinical trial ○ ○ ○ ○ 79. … whether the patient was hospitalized for complications during treatment ○ ○ ○ ○ 80. … whether psychosocial services were provided during treatment ○ ○ ○ ○ 81. … whether nutritional services were provided during treatment ○ ○ ○ ○ 82. … whether other supportive services were provided during treatment ○ ○ ○ ○ - Topic 6: Continuity of Care
When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how important is it for you to know: Not Important Somewhat Important Very Important Undecided 83. … whether the cancer care provider(s) intend(s) to monitor the patient for recurrence and second primaries ○ ○ ○ ○ 84. … whether the cancer care provider(s) intend(s) to monitor the patient for cancers at other sites ○ ○ ○ ○ When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how much information do you typically have about: Not Enough Just the Right Amount Too Much It Varies Too Much To Say 83. … whether the cancer care provider(s) intend(s) to monitor the patient for recurrence and second primaries ○ ○ ○ ○ 84. … whether the cancer care provider(s) intend(s) to monitor the patient for cancers at other sites ○ ○ ○ ○ Please tell us about any other topics that are important to you that we did not ask about. These topics can be about diagnosis, surgery, chemotherapy, radiation therapy, other aspects of treatment, continuity of care, or any other aspect of patient care. When you see patients who have completed treatment for colon or rectal cancer and do not have active disease, how much information do you typically have about this topic? Please list any topics that are important to you below Not Enough Just the Right Amount Too Much It Varies Too Much To Say 85. ____________________ ○ ○ ○ ○ 86. ____________________ ○ ○ ○ ○ 87. ____________________ ○ ○ ○ ○ 88. ____________________ ○ ○ ○ ○ 89. ____________________ ○ ○ ○ ○ This set of questions is about information you receive about your patients who have had colon or rectal cancer.
- Topic 7: Medical Reports
When you see patients who have completed treatment for colon or rectal cancer and do NOT have active disease, how important is it for you to have: Not Important Somewhat Important Very Important Undecided 90. … the operative report ○ ○ ○ ○ 91. … the pathology report ○ ○ ○ ○ When you see patients who have completed treatment for colon or rectal cancer and do NOT have active disease, how much information do you typically have about: Not Enough Just the Right Amount Too Much It Varies Too Much To Say 92. … the operative report ○ ○ ○ ○ 93. … the pathology report ○ ○ ○ ○ This set of questions is about general knowledge about treating patients who have had colon or rectal cancer.
- Topic 8: General Knowledge
For patients who have completed treatment for colon or rectal cancer and do not have active disease, how important is it for you to know about: Not Important Somewhat Important Very Important Undecided 94. … the schedule of recommended colorectal cancer surveillance ○ ○ ○ ○ 95. … the schedule of recommended screening for noncolorectal cancers ○ ○ ○ ○ 96. … any increased risks for second colorectal cancers, other cancer, and other diseases ○ ○ ○ ○ 97. … possible signs of recurrence and second tumors ○ ○ ○ ○ 98. … possible effects of cancer on marital/partner relationship, sexual functioning, work, parenting, and future needs for psychosocial support ○ ○ ○ ○ 99. … genetic counseling and testing to identify high-risk individuals who could benefit from more comprehensive cancer surveillance ○ ○ ○ ○ 100. … chemoprevention strategies for secondary prevention (eg, tamoxifen in women at high risk for breast cancer) ○ ○ ○ ○ 101. … other types of follow-up care providers that may be needed (eg, rehabilitation, fertility, psychology) ○ ○ ○ ○ 102. … support groups and other resources for colorectal cancer survivors ○ ○ ○ ○ For patients who have completed treatment for colon or rectal cancer and do not have active disease, how much do you know about: Not Enough Enough It Varies Too Much To Say 103. … the schedule of recommended colorectal cancer surveillance ○ ○ ○ 104. … the schedule of recommended screening for noncolorectal cancers ○ ○ ○ 105. … any increased risks for second colorectal cancers, other cancer, and other diseases ○ ○ ○ 106. … possible signs of recurrence and second tumors ○ ○ ○ 107. … possible effects of cancer on marital/partner relationship, sexual functioning, work, parenting, and future needs for psychosocial support ○ ○ ○ 108. … genetic counseling and testing to identify high-risk individuals who could benefit from more comprehensive cancer surveillance ○ ○ ○ 109. … chemoprevention strategies for secondary prevention (eg, tamoxifen in women at high risk for breast cancer) ○ ○ ○ 110. … other types of follow-up care providers that may be needed (eg, rehabilitation, fertility, psychology) ○ ○ ○ 111. … support groups and other resources for colorectal cancer survivors ○ ○ ○ Please tell us about any other area of general knowledge that is important to you that we did not ask about. These topics can be about any aspect of care for patients who have completed treatment for colon or rectal cancer. Please list below any areas of knowledge that are important to you: How much do you know about this area? Not Enough Enough It Varies Too Much To Say 112. __________________________ ○ ○ ○ 113. __________________________ ○ ○ ○ 114. __________________________ ○ ○ ○ 115. __________________________ ○ ○ ○ 116. _________________________ ○ ○ ○
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