Parent perceptions of and preferences for participation in child health research: results from a pediatric practice-based research network

SA Engster, C Fascetti, K Daw… - The Journal of the …, 2019 - Am Board Family Med
Background: Recruitment efforts for child health research are often based on assumptions,
therefore improving knowledge about parents' perceptions and preferences could enhance …

Bringing parent voices into a pediatric research network through a virtual parent panel

SA Engster, C Fascetti, A Mykita… - The Journal of the …, 2020 - Am Board Family Med
Background: Additional strategies are needed for longitudinal engagement of parents as key
stakeholders in practice-based research networks (PBRNs). Our objective was to create a …

An online survey to assess parents' preferences for learning about child health research

L Knisley, A Le, SD Scott… - Nursing …, 2021 - Wiley Online Library
Aim Ethical and logistical issues often exacerbate recruitment problems in child health
studies. This study aims:(a) to provide new knowledge on how parents want to hear about …

Paediatric patient family engagement with clinical research at a tertiary care paediatric hospital

C Gill, MJ Ansermino, S Sanatani… - Paediatrics & Child …, 2014 - academic.oup.com
BACKGROUND: Subject recruitment is essential for conducting clinical research; however,
there are very few studies evaluating research uptake by families in a paediatric setting …

Parental views of facilitators and barriers to research participation: systematic review

JM Nathe, TT Oskoui, EM Weiss - Pediatrics, 2023 - publications.aap.org
BACKGROUND AND OBJECTIVES Low enrollment within pediatric research increases the
cost of research, decreases generalizability, and threatens to exacerbate existing health …

The impact of patient and family engagement in child health research: a scoping review

SM Vanderhout, M Bhalla, A Van, DA Fergusson… - The Journal of …, 2023 - Elsevier
Objective To identify impacts of patient and family engagement in child health research on
the research process, research teams, and patient and family partners. Study design A …

Partnering with parents to advance child health research

JA Curran, A Bishop, J Chorney… - Healthcare …, 2018 - journals.sagepub.com
Although patient engagement in research is widely touted as an important foundation for
improving the relevance and sustainability of research findings, there is little consensus on …

Children's and their parents' views on facing research risks for the benefit of others

D Wendler, T Jenkins - Archives of pediatrics & adolescent …, 2008 - jamanetwork.com
Objective To assess children's and parents' attitudes regarding pediatric research that poses
minimal risk or a minor increase over minimal risk and does not offer the potential to benefit …

Why families choose not to participate in research: Feedback from non‐responders

R Barratt, P Levickis, G Naughton… - … of paediatrics and …, 2013 - Wiley Online Library
Aim Subjects who did not respond to an invitation to participate in a community‐based
randomised controlled trial for childhood obesity in M elbourne, A ustralia were approached …

[HTML][HTML] Why do children decide not to participate in clinical research: a quantitative and qualitative study

IM Hein, PW Troost, MC de Vries, CAJ Knibbe… - Pediatric …, 2015 - nature.com
Background: More pediatric drug trials are needed, but although specific pediatric
regulations warrant safety, recruitment of children for these trials remains one of the main …