Parent perceptions of and preferences for participation in child health research: results from a pediatric practice-based research network
SA Engster, C Fascetti, K Daw… - The Journal of the …, 2019 - Am Board Family Med
Background: Recruitment efforts for child health research are often based on assumptions,
therefore improving knowledge about parents' perceptions and preferences could enhance …
therefore improving knowledge about parents' perceptions and preferences could enhance …
Bringing parent voices into a pediatric research network through a virtual parent panel
SA Engster, C Fascetti, A Mykita… - The Journal of the …, 2020 - Am Board Family Med
Background: Additional strategies are needed for longitudinal engagement of parents as key
stakeholders in practice-based research networks (PBRNs). Our objective was to create a …
stakeholders in practice-based research networks (PBRNs). Our objective was to create a …
An online survey to assess parents' preferences for learning about child health research
L Knisley, A Le, SD Scott… - Nursing …, 2021 - Wiley Online Library
Aim Ethical and logistical issues often exacerbate recruitment problems in child health
studies. This study aims:(a) to provide new knowledge on how parents want to hear about …
studies. This study aims:(a) to provide new knowledge on how parents want to hear about …
Paediatric patient family engagement with clinical research at a tertiary care paediatric hospital
C Gill, MJ Ansermino, S Sanatani… - Paediatrics & Child …, 2014 - academic.oup.com
BACKGROUND: Subject recruitment is essential for conducting clinical research; however,
there are very few studies evaluating research uptake by families in a paediatric setting …
there are very few studies evaluating research uptake by families in a paediatric setting …
Parental views of facilitators and barriers to research participation: systematic review
JM Nathe, TT Oskoui, EM Weiss - Pediatrics, 2023 - publications.aap.org
BACKGROUND AND OBJECTIVES Low enrollment within pediatric research increases the
cost of research, decreases generalizability, and threatens to exacerbate existing health …
cost of research, decreases generalizability, and threatens to exacerbate existing health …
The impact of patient and family engagement in child health research: a scoping review
SM Vanderhout, M Bhalla, A Van, DA Fergusson… - The Journal of …, 2023 - Elsevier
Objective To identify impacts of patient and family engagement in child health research on
the research process, research teams, and patient and family partners. Study design A …
the research process, research teams, and patient and family partners. Study design A …
Partnering with parents to advance child health research
Although patient engagement in research is widely touted as an important foundation for
improving the relevance and sustainability of research findings, there is little consensus on …
improving the relevance and sustainability of research findings, there is little consensus on …
Children's and their parents' views on facing research risks for the benefit of others
D Wendler, T Jenkins - Archives of pediatrics & adolescent …, 2008 - jamanetwork.com
Objective To assess children's and parents' attitudes regarding pediatric research that poses
minimal risk or a minor increase over minimal risk and does not offer the potential to benefit …
minimal risk or a minor increase over minimal risk and does not offer the potential to benefit …
Why families choose not to participate in research: Feedback from non‐responders
R Barratt, P Levickis, G Naughton… - … of paediatrics and …, 2013 - Wiley Online Library
Aim Subjects who did not respond to an invitation to participate in a community‐based
randomised controlled trial for childhood obesity in M elbourne, A ustralia were approached …
randomised controlled trial for childhood obesity in M elbourne, A ustralia were approached …
[HTML][HTML] Why do children decide not to participate in clinical research: a quantitative and qualitative study
Background: More pediatric drug trials are needed, but although specific pediatric
regulations warrant safety, recruitment of children for these trials remains one of the main …
regulations warrant safety, recruitment of children for these trials remains one of the main …