Community-engagement strategies of the developmental disabilities practice-based research network (DD-PBRN)

CV Tyler, JJ Werner - The Journal of the American Board of …, 2014 - Am Board Family Med
There is often a rich but untold history of events that occur and relationships that form before
a practice-based research network (PBRN) is launched. This is particularly the case in …

[HTML][HTML] Establishing and sustaining authentic organizational partnerships in childhood disability research: lessons learned

PG McPhee, K Pozniak, MA Khetani… - Research Involvement …, 2023 - Springer
There is an increased interest from both researchers and knowledge users to partner in
research to generate meaningful research ideas, implement research projects, and …

Moving the frontiers forward: incorporating community-based participatory research into practice-based research networks

AC Macaulay, PA Nutting - The Annals of Family Medicine, 2006 - Annals Family Med
Practice-based research networks (PBRNs) were developed in North America more than 20
years ago to study the health and health care events that are common in everyday primary …

[PDF][PDF] Disability Research and Dissemination Center 2013-2014 Annual Report

C Morley, E Mader, B Cameron - 2014 - disabilityresearchcenter.com
This annual report presents a summary of the results of work conducted by the Disability
Research and Dissemination Center(DRDC). The DRDC is composed of professionals from …

A community engagement process for families with children with disabilities: Lessons in leadership and policy

CM Vargas, C Arauza, K Folsom, MR Luna… - Maternal and child …, 2012 - Springer
This article examines a community engagement process developed as part of leadership
training for clinical trainees in the Oregon Leadership Education for Neurodevelopmental …

Partnering for Research in the Field of Intellectual/Developmental Disabilities--Lessons For Participant Recruitment.

H Ouellette-Kuntz, Y Lunsky… - Journal on …, 2013 - search.ebscohost.com
The importance of including persons with intellectual and developmental disabilities (IDD) in
research is widely recognized, yet recruitment is difficult and participation rates are low. In …

Practice-based research networks (PBRNs): meeting the challenges of the future

WL Calmbach, JG Ryan… - The Journal of the …, 2012 - Am Board Family Med
Practice-based research networks (PBRNs) are useful tools for conducting studies in the
busy primary care setting, but their continued existence is threatened by a range of …

You say you want a revolution: An empirical study of community-based participatory research with people with developmental disabilities

KE McDonald, E Stack - Disability and health journal, 2016 - Elsevier
Background Community-based participatory research (CBPR) seeks to improve the
responsiveness of science to community priorities and foster positive community change …

[PDF][PDF] Practice-based research networks (PBRNs) in the United States: growing and still going after all these years

J Hickner, LA Green - The Journal of the American Board of …, 2015 - Am Board Family Med
Ten years have passed since we wrote “A Short History of Primary Care Practice-based
Research Networks: From Concept to Essential Research Laboratories.” 1 In that essay we …

Measuring the impact of practice-based research networks (PBRNs)

JJ Werner - The Journal of the American Board of Family …, 2012 - Am Board Family Med
Practice-based research networks (PBRNs) continue their upward trajectory in scope and
numbers, now engaging community practices that reach approximately 15% of the US …