Effectiveness of clinical decision support based intervention in the improvement of care for adult sickle cell disease patients in primary care

AG Mainous, PJ Carek, K Lynch… - The Journal of the …, 2018 - Am Board Family Med
Introduction: Although most patients with rare diseases like sickle cell disease (SCD) are
treated in the primary care setting, primary care physicians may find it challenging to keep …

[HTML][HTML] Attitudes toward management of sickle cell disease and its complications: a national survey of academic family physicians

AG Mainous, RJ Tanner, CA Harle, R Baker… - Anemia, 2015 - hindawi.com
Objective. Sickle cell disease (SCD) is a disease that requires a significant degree of
medical intervention, and family physicians are one potential provider of care for patients …

Awareness and use of the sickle cell disease toolbox by primary care providers in North Carolina

SO Ibemere, P Tanabe, E Bonnabeau… - Journal of Primary …, 2021 - journals.sagepub.com
Background Sickle cell disease (SCD) is a complex chronic blood disorder characterized by
severe disease complications ideally managed by both hematologists and primary care …

Patients' views on improving sickle cell disease management in primary care: focus group discussion

G AlJuburi, KJ Phekoo, NVO Okoye, K Anie… - JRSM short …, 2012 - journals.sagepub.com
Objectives To assess sickle cell disease (SCD) patient and carer perspectives on the
primary care services related to SCD that they receive from their general practitioner (GP) …

Views of patients about sickle cell disease management in primary care: a questionnaire-based pilot study

GA Juburi, O Okoye, A Majeed, Y Knight… - JRSM short …, 2012 - journals.sagepub.com
Objectives To determine how patients with sickle cell disease (SCD) perceive the quality of
care that they receive from their primary healthcare providers. Design A questionnaire …

Barriers to care for persons with sickle cell disease: The case manager's opportunity to improve patient outcomes

J Brennan-Cook, E Bonnabeau, R Aponte… - Professional case …, 2018 - journals.lww.com
ABSTRACT Purpose and Objectives: The purpose of this discussion is to review the barriers
to care for patients with sickle cell disease (SCD). Chronic pain and the perception of …

[HTML][HTML] Management strategies and satisfaction levels in patients with sickle cell disease: interim results from the international sickle cell world assessment survey …

J James, B Andemariam, BPD Inusa, F El-Rassi… - Blood, 2019 - Elsevier
Background: Sickle cell disease (SCD) is a complex genetic disorder affecting mainly
people of African origin. A hallmark of SCD is vaso-occlusive crisis (VOC)-this event is …

[HTML][HTML] What are the expectations of patients in decision making process for disease modifying therapies for sickle cell disease: do they care about shared decision …

D Ross, N Bakshi, K Khemani, C Sinha, G Loewenstein… - Blood, 2016 - Elsevier
Background Medical decisions regarding disease modifying therapy for sickle cell disease
(SCD) such as chronic blood transfusion, hydroxyurea, and bone marrow transplantation are …

Caring for the adult with sickle cell disease: results of a multidisciplinary pilot program

N Artz, C Whelan, S Feehan - Journal of the National Medical Association, 2010 - Elsevier
Background Care for adults with sickle cell disease (SCD) is often fragmented and costly.
The chronic care model is recommended as a best practice approach to providing care for …

A primary care provider's guide to preventive and acute care management of adults and children with sickle cell disease

A Pack-Mabien, J Haynes Jr - Journal of the American Association …, 2009 - journals.lww.com
Purpose: To familiarize primary care providers (PCPs) with the pathophysiological
processes, diagnostic evaluation, and medical management of sickle hemoglobinopathies …