Abstract
The Glades Health Survey, a population-based survey of tuberculosis and HIV infection, provides a model for building community-research partnerships with local health departments in ethnically diverse communities. The survey was initiated without broad community participation; a year and a half of organizing established community leadership of the project. Essential factors in the success of the project included a shared objective, direct confrontation of fears about research, inclusion of all socioeconomic and racial/ethnic groups, and community participation in performing the research. These activities led to establishment of a community-based organization that received funding for HIV counseling and testing and HIV prevention case management.
This is a preview of subscription content, log in via an institution to check access.
Similar content being viewed by others
References
Centers for Disease Control. Reported Tuberculosis in the United States, 2000. Atlanta, Ga: United States Department of Health and Human Services; 2001:47–51.
Castro KG, Lieb S, Jaffe HW, et al. Transmission of HIV in Belle Glade, Florida: lessons for other communities in the United States. Science. 1988;239:193–7.
Grey MR. Syphilis and AIDS in Belle Glade, Florida, 1942 and 1992. Ann Intern Med. 1992;116:329–34.
Valway SE, Richard SB, Kovacovich J, et al. Outbreak of multidrug-resistant tuberculosis in a New York State prison, 1991. Am J Epidemiol. 1994;140:113–22.
Daley CL, Small PM, Schecter GF, et al. An outbreak of tuberculosis with accelerated progression among persons infected with the human immunodeficiency virus. An analysis using restriction-fragment-length polymorphisms. N Engl J Med. 1992;326:231–5.
Moss AR, Hahn JA, Tulsky JP, et al. Tuberculosis in the homeless. A prospective study. Am J Respir Crit Care Med. 2000;162:460–4.
Profiles of General Demographic Characteristics. 2000 Census of Population and Housing. Florida. Washington DC: United States Census Bureau; 2001.
Hathaway F. From five infected to 36.1 million. Palm Beach Post. June 10, 2001.
National Minority AIDS Council. The Impact of HIV on Communities of Color. Washington DC: National Minority AIDS Council; 1992.
United States Conference of Mayors. Assessing the HIV Prevention Needs of Gay and Bisexual Men of Color. Washington DC: United States Conference of Mayors; 1994.
U.S. Department of Health and Human Services. Planned Approach to Community Health: Guide for the Local Coordinator. Atlanta, Ga: USDHHS, Centers for Disease Control and Prevention, NCCDPHP; 1993.
Kreuter MW. PATCH, its origin, basic concepts, and links to contemporary public health policy. J Health Educ. 1992;23:135–9.
Macaulay AC, Commanda LE, Freeman WL, et al. Participatory research maximizes community and lay involvement. BMJ. 1999;319:774–8.
Foote-Whyte W, ed. Participatory Action Research. Newbury Park, Calif: Sage Publications; 1991.
Nichter M. Project community diagnosis: participatory research as a first step toward community involvement in health. Soc Sci Med. 1984;19:237–52.
Fawcett SB, Paine-Andrews A, Francisco VT, et al. Using empowerment theory in collaborative partnerships for community health and development. Am J Community Psychol. 1995;23:677–97.
Author information
Authors and Affiliations
Corresponding author
Additional information
During the period of the initiation of the Glades Health Survey, Dr. Stratford was with the University of Florida, Gainesville, Fla; Mr. Abbott was director of the Palm Beach County Health Department Branch, Belle Glade, Fla; and Dr. Horsburgh was with Emory University, Atlanta, Ga.
Project support was from the Centers for Disease Control and Prevention, Atlanta, Ga.
Rights and permissions
About this article
Cite this article
Stratford, D., Chamblee, S., Ellerbrock, T.V. et al. Integration of a participatory research strategy into a rural health survey. J GEN INTERN MED 18, 586–588 (2003). https://doi.org/10.1046/j.1525-1497.2003.21038.x
Issue Date:
DOI: https://doi.org/10.1046/j.1525-1497.2003.21038.x