Skip to main content
Log in

Interpreting Diabetes Mellitus: Differences between Patient and Provider Models of Disease and their Implications for Clinical Practice

  • Published:
Culture, Medicine and Psychiatry Aims and scope Submit manuscript

Abstract

Current medical literature suggests that Type 2 diabetes mellitus can becontrolled by diet and hypoglycemic agents or diet and insulin therapy.Nevertheless, adhering to a low glucose dietary regimen remainsproblematic for a majority of patients, and management of the disease isan ongoing source of frustration for physicians and other providers.While calling for more research on the physician's experience oftreating chronic conditions like diabetes, the authors argue that muchof the current frustration stems from the different frames orexplanatory models that physicians and patients use to understand thedisease. By comparing physician narratives collected in several clinicalcontexts (e.g., medical lectures, precepting sessions, patient caresessions and personal interviews) with patient stories obtainedprimarily through narrative interviews, the authors highlight crucialdifferences in the way physicians and patients experience and thinkabout the disease. In particular, the authors highlight differencesbetween physicians and patients across five dimensions: etiology,symptoms/signs, factors which affect blood sugar, ideal blood sugar,and future prospects. In concluding, the authors sketch out elements ofa theory of clinical practice involving diabetes care. Data for thestudy was collected at two family practice training sites in Chicago.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Similar content being viewed by others

REFERENCES

  • Anderson, R.M. 1986 The Personal Meaning of Having Diabetes: Implications for Patient Behavior and Education or Kicking the Bucket Theory. Diabetic Medicine 3: 85-89.

    Google Scholar 

  • Bradley, C. 1995 Health Beliefs and Knowledge of Patients and Doctors in Clinical Practice and Research. Patient Education and Counseling 26: 99-106.

    Google Scholar 

  • Broyard, A. 1993 Intoxicated by my Illness and Other Writings on Life and Death. New York: Fawcett Columbine.

    Google Scholar 

  • Callaghan, D. and A. Williams 1994 Living with Diabetes: Issues for Nursing Practice. Journal of Advanced Nursing 20: 132-139.

    Google Scholar 

  • Clark, J. and E. Mishler 1992 Attending to Patient Stories Sociology of Health and Illness 14(3): 344-371.

    Google Scholar 

  • Cohen, M.Z., T. Tripp-Reimer, C. Smith et al. 1994 Explanatory Models of Diabetes: Patient-Practitioner Variation. Social Science and Medicine 38(1): 59-66.

    Google Scholar 

  • COSSMHO-The National Coalition of Hispanic Health and Human Service Organizations 1990 Delivering Preventative Health Care to Hispanics. Washington D.C.

  • Cox, D.J. and L. Gonder-Frederick 1992 Major Developments in Behavioral Diabetes Research. Journal of Consulting and Clinical Psychology 60(4): 628-638.

    Google Scholar 

  • Cox Dzurec, L. 1994 Research to Understand Living with Diabetes. The Diabetes Educator 16(4): 277-281.

    Google Scholar 

  • Dietrich, U.C. 1996 Factors Influencing the Attitudes Held by Women with Type II Diabetes: A Qualitative Study. Patient Education and Counseling 29: 13-23.

    Google Scholar 

  • Ellison G.C. and K. Rayman 1998 Exemplars' Experience of Self-Managing Type 2 Diabetes. The Diabetes Educator 24(3): 325-330.

    Google Scholar 

  • Fabrega, H. Jr. 1997 Earliest Phases in the Evolution of Sickness and Healing. Medical Anthropology Quarterly 11(1): 26-55.

    Google Scholar 

  • Fadiman, A. 1997 The Spirit Catches You and You Fall Down: A Hmong Child, Her American Doctors, and the Collision of Two Cultures. New York: Farrar, Straus and Giroux.

    Google Scholar 

  • Feldman, J. 1992 The French are Different: French and American Medicine in the Context of AIDS. Western Journal of Medicine 157: 345-349.

    Google Scholar 

  • Gaines, A. 1985 The Once and the Twice Born: Self and Practice Among Psychiatrists and Christian Psychiatrists. In Physicians of Western Medicine: Anthropological Approaches to Theory and Practice. Robert Hahn and Atwood Gaines, eds. Dordrecht, Reidel.

    Google Scholar 

  • 1992 (ed.) Ethnopsychiatry: The Cultural Construction of Professional and Folk Psychiatries. Albany, NY: State University of New York Press.

    Google Scholar 

  • Good, B. 1994 Medicine, Rationality and Experience: An Anthropological Perspective. Cambridge: Cambridge University Press.

    Google Scholar 

  • Gould, S.J. 1998 The Median isn't the Message. In Narrative-Based Medicine: Dialogue and Discourse in Clinical Practice. Trish Greenhalgh and Brian Hurwitz, eds. London: BMJ Books.

    Google Scholar 

  • Hahn R.A. 1985 A World of Internal Medicine: Portrait of an Internist. In Physicians of Western Medicine: Anthropological Approaches to Theory and Practice. Robert Hahn and Atwood Gaines, eds. Dordrecht, Reidel.

    Google Scholar 

  • Hahn, R.A. and A. Gaines (eds.) 1985 Physicians of Western Medicine: Anthropological Approaches to Theory and Practice. Dordrecht, Reidel.

    Google Scholar 

  • Helman, C.G. 1985 Psyche, Soma and Society: The Social Construction of Psychosomatic Disorders. Culture, Medicine and Psychiatry 9(1):1-26.

    Google Scholar 

  • Helz, J.W. and B. Templeton 1990 Evidence of the Role of Psychological Factors in Diabetes Mellitus: A Review. American Journal of Psychiatry 147(10): 1275-1282.

    Google Scholar 

  • Hunt, L., M. Valenzuela and J. Pugh 1998 Porque Me Toco a Mi? Mexican American Diabetes Patient's Causal Stories and their Relationship to Treatment Behaviors. Social Science and Medicine 46(8): 959-969.

    Google Scholar 

  • Hunt, L., A. Nedal and A. Larme 1998 Contrasting Patient and Practitioner Perspectives in Type 2 DiabetesManagement. Western Journal of Nursing Research 20(6): 656-682.

    Google Scholar 

  • Jefferson, G. 1978 Sequential Aspects of Storytelling in Conversation. In Studies in the Organization of Conversational Interaction. J Schenkein, ed. New York: Academic Press.

    Google Scholar 

  • Kleinman, A. 1988 The Illness Narratives: Suffering Healing and the Human Condition. New York: Basic Books.

    Google Scholar 

  • Kuzel, A. and R. Like. 1991 Standards of Trustworthiness for Qualitative Studies in Primary Care. In Primary Care Research: Traditional and Innovative Approaches. Peter Norton et al., eds. Newbury Park, CA: Sage Publications.

    Google Scholar 

  • Lang, G. 1989 "Making Sense" about Diabetes: Dakota Narratives of Illness. Medical Anthropology 11: 305-327.

    Google Scholar 

  • Langellier, K. 1989 Personal Narratives: Perspectives on Theory and Research. Text and Performance Quarterly 9: 243-276.

    Google Scholar 

  • Larme, A. and J.A. Pugh 1998 Attitudes of Primary Care Providers Toward Diabetes: Barriers to Guideline Implementation. Diabetes Care 21(9): 1991-1996.

    Google Scholar 

  • Lipton, R., L. Losey, A. Giachello et al. 1998 Attitudes and Issues in Treating Latino Patients with Type 2 Diabetes: Views of Healthcare Providers. The Diabetes Educator 24(1): 67-71.

    Google Scholar 

  • Loewe, R., J. Schwartzman, and J. Freeman et al. 1998 Doctor Talk and Diabetes: Towards an Analysis of the Clinical Construction of Chronic Illness. Social Science and Medicine 47(9): 1267-1276.

    Google Scholar 

  • Lock, M. 1985 Models and Practice in Medicine: Menopause as Syndrome or Life Transition. In Physicians of Western Medicine: Anthropological Approaches to Theory and Practice. Robert Hahn and Atwood Gaines, eds. Dordrecht, Reidel.

    Google Scholar 

  • McCord, E. and C. Brandenburg 1995 Beliefs and Attitudes of Persons with Diabetes. Family Medicine 27: 267-271.

    Google Scholar 

  • Miles, M.B. and A.M. Huberman 1984 Qualitative Data Analysis: A Sourcebook for New Methods. Beverly Hills CA: Sage Publications.

    Google Scholar 

  • Minuchin, S. 1978 The Psychosomatic Family. In Psychosomatic Families: Anorexia in Context. Salvador Minuchin, Bernice Rosman and Lester Baker, eds. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Mishler, E.G. 1995a Narrative Accounts in Clinical and Research Interviews. In The Construction of Professional Discourse. B.L. Gunderson, P. Linell and B. Nordberg, eds. London: Longman.

    Google Scholar 

  • 1995b Models of Narrative Analysis: A Typology. Journal of Narrative and Life History 5(2): 87-123.

    Google Scholar 

  • O'Connor, P.J., B.F. Crabtree and M.K. Yanoshik 1997 Differences Between Diabetic PatientsWho Do and Do Not Respond to a Diabetes Care Intervention: A Qualitative Analysis. Family Medicine 29(6): 424-428.

    Google Scholar 

  • Ohkubo, Y., H. Kishikawa, E. Araki et al. 1995 Intensive Insulin Therapy Prevents the Progression of Diabetic Microvascular Disease in Japanese Patients with Non-Insulin Dependent Diabetes Mellitus: A Randomized Prospective 6-Year Study. Diabetes Research and Clinical Practice 28(2): 103-107.

    Google Scholar 

  • Payer, L. 1988 Medicine and Culture: Varieties of Treatment in the United States, England, West Germany and France. New York, NY: Henry Holt.

    Google Scholar 

  • Polanyi, L. 1985 Conversational Storytelling: Discourse and Dialogue. In Handbook of Discourse Analysis. T. van Dijk, ed., Vol. 3 (4 Vols) London: Academic Press, pp. 98-115.

    Google Scholar 

  • Qualitative Solutions and Research Pty Ltd. 1994 Nud.ist 3.0.4c for Microsoft Windows. Melbourne: Quantitative Solutions and Research.

  • Rood, R. 1996 Patient and Physician Responsibility in the Treatment of Chronic Illness: The Case of Diabetes. American Behavioral Scientist 39(6): 729-751.

    Google Scholar 

  • Rosenberg, C.E. and J. Golden 1992 Framing Disease: Studies in Cultural History. New Brunswick NJ: Rutgers University Press.

    Google Scholar 

  • Rubel, A.J., C.W. O'Neill and R.C. Ardon 1984 Susto: A Folk Illness. Berkeley, CA: University of California Press.

    Google Scholar 

  • Sacks, O. 1984 A Leg to Stand On. New York: Summit Books.

    Google Scholar 

  • Scheder, J.C. 1988 Sickly Sweet Harvest: Farmworker Diabetes and Social Equality. Medical Anthropology Quarterly 2(3): 251-277.

    Google Scholar 

  • Schon, D.A. 1987 Educating the Reflective Practitioner: Toward a New Design for Teaching and Learning in the Professions. San Francisco: Jossey-Bass.

    Google Scholar 

  • Stein, H. 1985 The Contest for Control: A Case of Diabetes Mellitus in Multiple Contexts. In The Psychodynamics of Medical Practice: Unconscious Factors in Patient Care. University of California Press.

  • Stewart, M., J.B. Brown and H. Boon et al. 1999 Evidence on Doctor Patient Communication. Cancer Prevention and Control 3(1): 25-30.

    Google Scholar 

  • Surwit, R.S. and M.S. Schneider 1993 Role of Stress in the Etiology and Treatment of Diabetes Mellitus. Psychosomatic Medicine 55: 380-393.

    Google Scholar 

  • Ternulf Nyhlin, K. 1990 A Contribution of Qualitative Research to a Better Understanding of Diabetic Patients. Journal of Advanced Nursing 15: 796-803.

    Google Scholar 

  • United Kingdom Prospective Diabetes Study Group 1998 Intensive Blood-Glucose Control with Sulphonylureas or Insulin Compared with Conventional Treatment and Risk of Complications in Patients with Type 2 Diabetes Lancet 252: 837-853.

    Google Scholar 

  • Wooldridge, K.L., K. Wallston and A.L. Graber et al. 1992 The Relationship between Health Beliefs, Adherence and Metabolic Control of Diabetes. The Diabetes Educator 18(6): 495-500.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Rights and permissions

Reprints and permissions

About this article

Cite this article

Loewe, R., Freeman, J. Interpreting Diabetes Mellitus: Differences between Patient and Provider Models of Disease and their Implications for Clinical Practice. Cult Med Psychiatry 24, 379–401 (2000). https://doi.org/10.1023/A:1005611207687

Download citation

  • Issue Date:

  • DOI: https://doi.org/10.1023/A:1005611207687

Navigation