| “PBRNs capture health care events that reflect the selection and observer bias that characterize primary care in community-based patient populations.” | The DD-PBRN intends to capture phenomena relevant to primary health care of people with DD that may precede, occur during, or occur subsequent to actual health care events. Selection and observer biases vary according to specific networks and participants. |
| “PBRNs provide access to the practice experience and care provided by full-time primary care clinicians.” | The DD-PBRN intends to access the experience of 3 stakeholder groups: primary care clinicians, their patients, and other persons in the community who are relevant to the primary health care of the persons with DD (ie, representatives of the advocacy and service communities) |
| “PBRNs focus their activities on practice-relevant research questions, apply appropriate, multi-method research design, and generally avoid the tendency to permit research methods to define the question.” | The DD-PBRN intends to focus its activities on the primary health care of people with DD and applies appropriate multimethod research designs that vary according to the research questions proposed; studies vary in site, target stakeholder group, and stakeholder perspectives. |
| “PBRNs strive for the systematic involvement of network clinicians in defining the research questions, participating in the study design, and interpreting study results.” | The DD-PBRN intends to strive for the systematic involvement of primary care clinicians, people with DD, and other stakeholders in the community who are relevant to the primary health care of people with DD in defining research questions, participating in the study design, and interpreting study results. |