Table 2.

Patient Self-Assessed Burdens Using the ICAN Discussion Aid

Number (%) of Patients (n = 635)*
Burden or Both Burden and SatisfactionSatisfaction or Help
Family and friends84 (13.2)546 (86.0)
Work or finances97 (15.2)503 (79.2)
Free time, relaxation, fun41 (6.4)580 (91.3)
Spirituality and life purpose25 (3.9)567 (89.3)
Where I live43 (6.7)582 (91.7)
Getting out and transportation57 (9.0)568 (89.4)
Being active102 (16.1)523 (82.4)
Social media, TV or screen watching71 (11.1)539 (84.9)
Emotional life99 (15.6)518 (81.6)
Memory or attention104 (16.4)514 (80.9)
The food I eat95 (15.0)531 (83.6)
Take medication34 (5.3)510 (80.3)
Monitor symptoms31 (4.9)452 (71.2)
Manage diet and exercise98 (15.4)444 (69.9)
Get enough sleep100 (15.8)428 (67.4)
Come in for appointments or labs40 (6.3)512 (80.6)
Reduce alcohol use, smoking, and so forth11 (1.7)320 (50.4)
Insurance or support services44 (6.9)379 (59.7)
Manage stress55 (8.7)401 (63.1)
  • * Unless indicated otherwise. Percentages may not total to 100% because some responses were left blank or were unclear.