Parent Responses on How Participating in a Practice-based Research Network Parent Panel Can Improve Children's Health*
| Parent responses demonstrating how participation can help research |
| “Better awareness of what is important to parents at the moment means health professionals can address these concerns and better children's health.” |
| “I think it can give researchers and practitioners a better understanding of what we, as parents, have concerns about when it comes to our child's health. I also feel like it might possibly draw attention to issues that aren't generally thought about.” |
| “I think the more you learn about children's health, the more you can positively influence it.” |
| “I hope the collective opinions of the group can influence procedures and policies. If enough of us parents share a similar experience or feeling, I hope it's taken into consideration for future adjustments.” |
| “I hope the collective opinions of the group can influence procedures and policies. If enough of us parents share a similar experience or feeling, I hope it's taken into consideration for future adjustments.” |
| “Our answers will contribute to research that can determine causes, cures, and prevention.” |
| “By giving researchers the insight I have with my child to compare with other kids.” |
| “Provide input as a mom and healthcare provider into programs to help other parents.” |
| “I look forward to contributing a parent's point of view by sharing my opinions, thoughts, ideas and experiences to improve the services that children receive.” |
| “Help guide the choices and priorities of healthcare groups.” |
| “Hopefully with many people participating it will help in some way to improve some child's health and in turn the family and the entire health community.” |
| “The more information that can be captured and utilized to inform the understanding of health, the better.” |
| Parent responses demonstrating how participation can help parents |
| “They can show what might be the best for everyone, and what I can change.” |
| “Having an easy way to reach out to parents to inform them of research opportunities.” |
| “By me having more knowledge.” |
| “Learning what works for others may also help my children.” |
| “If parents have the tools and information they need from their primary care physician, many gaps can be addressed. Parents trust their Pediatrician.” |
| “If we can learn how to reach parents better we can then help kids better.” |
| Parent responses demonstrating how participation can help both parents and research |
| “I believe that it can help those that play a role in my child's healthcare to understand where parents are coming from. It also makes me aware of up and coming ideas or things going on in the healthcare field.” |
| “Again, having insight as a healthcare provider and a mother, I feel sometimes it helps to be able to see both sides of care.” |
| “I am the mom of a son with autism and epilepsy and also a pediatric nurse. I can view information from [different] points.” |
↵* Survey question “How do you think your participation in the Pediatric PittNet Parent Panel can improve children's health?”