Associations of Parent Perceptions of and Preferences for Child Health Research Participation*
| On-site PBRN Research Staff, OR (95% CI)† | <15 Miles Away from University, OR (95% CI)‡ | Child Age ≥5 Years, OR (95% CI)§ | |
|---|---|---|---|
| Parent perceptions of benefits | |||
| We could improve care of children (earlier diagnoses, treatment) | 1.10 (0.72, 1.67) | 0.58 (0.38, 0.89) | 0.92 (0.58, 1.46) |
| We could find answers that may help other children and families | 1.32 (0.89, 1.95) | 0.70 (0.75, 1.32) | 1.17 (0.75, 1.30) |
| My child may get better care (tests/treatment) | 1.80 (1.24, 2.63) | 1.62 (1.11, 2.38) | 1.00 (0.67, 1.49) |
| We could learn more about my child's health condition | 1.91 (1.32, 2.77) | 1.37 (0.94, 1.99) | 1.24 (0.83, 1.85) |
| Parent perceptions of risks | |||
| Side effect concerns from treatments | 0.52 (0.36, 0.76) | 0.74 (0.51, 1.09) | 0.78 (0.52, 1.16) |
| Concerns about discomfort from tests/treatments | 0.59 (0.41, 0.85) | 0.69 (0.48, 1.01) | 0.62 (0.42, 0.92) |
| My family is too busy | 1.29 (0.89, 1.87) | 1.20 (0.82, 1.76) | 1.09 (0.74, 1.62) |
| Would take too much time | 1.38 (0.93, 2.05) | 1.11 (0.74, 1.66) | 0.99 (0.66, 1.50) |
| Parent preferences for enrollment | |||
| Asked in this office | 1.30 (0.89, 1.89) | 0.99 (0.67, 1.44) | 0.74 (0.49, 1.11) |
| Asked via email/text | 0.93 (0.64, 1.37) | 1.03 (0.69, 1.53) | 1.50 (1.00, 2.25) |
| Parent preferences for participation | |||
| In this office | 2.14 (1.40, 3.27) | 1.45 (0.95, 2.20) | 0.89 (0.57, 1.39) |
| Your Home | 1.81 (1.19, 2.74) | 1.15 (0.76, 1.74) | 0.83 (0.53, 1.28) |
| Pediatric Practice nearby | 1.56 (1.02, 2.39) | 1.48 (0.96, 2.28) | 1.13 (0.72, 1.78) |
OR, odds ratio; PBRN, practice-based research network; CI, confidence interval.
↵* Bolded OR's are statistically significant with P < .05.
↵† Logistic regression models are controlled for parent age, gender, race, and previous participation in research; child age, gender, health insurance, and previous participation in research; and office <15 miles from the University.
↵‡ Logistic regression models are controlled for parent age, gender, race, and previous participation in research; child age, gender, health insurance, and previous participation in research; and on-site PBRN research staff.
↵§ Logistic regression models are controlled for parent age, gender, race, and previous participation in research; child gender, health insurance, and previous participation in research; presence of on-site PBRN research staff; and office <15 miles from the University.