Table 1.

Description of Patient-Centered Outcomes Research Institute Patient Engagement Rubric with Examples from the Study

Engagement PrincipleExample from Study
Reciprocal relationships: Roles of researchers, patients, and stakeholders are determined collaboratively and clearly stated.• Latino patient advisory board (LPAB) was formed with the goal of adapting the Group Lifestyle Balance intervention.
• The first LPAB meeting included a discussion of roles, responsibilities, and ground rules.
Colearning: Researchers, patients, and other stakeholders share their expertise with each other for mutual benefit.• Focus groups were used for researchers to learn from patients about their experience.
• The LPAB provided their expertise in the cultural adaptation process.
• Researchers shared their expertise in behavioral interventions with the LPAB during the adaptation process.
Partnerships: Time and contributions of patients and stakeholders are valued and demonstrated in fair financial compensation. Also refers to a commitment to diversity and cultural competence.• Focus group participants were compensated for their time.
• LPAB members were provided a meal and a stipend for each meeting they attended.
Transparency, honesty, and trust: Information is readily shared among all partners.• LPAB members made recommendations and these were discussed with researchers until consensus was reached.