Description of Patient-Centered Outcomes Research Institute Patient Engagement Rubric with Examples from the Study
| Engagement Principle | Example from Study |
|---|---|
| Reciprocal relationships: Roles of researchers, patients, and stakeholders are determined collaboratively and clearly stated. | • Latino patient advisory board (LPAB) was formed with the goal of adapting the Group Lifestyle Balance intervention. |
| • The first LPAB meeting included a discussion of roles, responsibilities, and ground rules. | |
| Colearning: Researchers, patients, and other stakeholders share their expertise with each other for mutual benefit. | • Focus groups were used for researchers to learn from patients about their experience. |
| • The LPAB provided their expertise in the cultural adaptation process. | |
| • Researchers shared their expertise in behavioral interventions with the LPAB during the adaptation process. | |
| Partnerships: Time and contributions of patients and stakeholders are valued and demonstrated in fair financial compensation. Also refers to a commitment to diversity and cultural competence. | • Focus group participants were compensated for their time. |
| • LPAB members were provided a meal and a stipend for each meeting they attended. | |
| Transparency, honesty, and trust: Information is readily shared among all partners. | • LPAB members made recommendations and these were discussed with researchers until consensus was reached. |