@article {Engster685, author = {Stacey A. Engster and Carrie Fascetti and Kristine Daw and Evelyn Cohen Reis}, title = {Parent Perceptions of and Preferences for Participation in Child Health Research: Results from a Pediatric Practice-Based Research Network}, volume = {32}, number = {5}, pages = {685--694}, year = {2019}, doi = {10.3122/jabfm.2019.05.190030}, publisher = {The Journal of the American Board of Family Medicine}, abstract = {Background: Recruitment efforts for child health research are often based on assumptions, therefore improving knowledge about parents{\textquoteright} perceptions and preferences could enhance engagement.Aim/Objective: 1) To describe parents{\textquoteright} perceptions about and preferences for participation in child health research within a pediatric practice-based research network (PBRN), and 2) to investigate any associations with the presence of on-site PBRN research staff, office location, and child age.Methods: We conducted a 2-phase study with a convenience sample of parents from diverse office settings. Phase 1 was a qualitative assessment using semistructured, in-person interviews. Phase 2 consisted of a quantitative self-administered survey assessing: 1) perceptions of importance, benefits/motivations, and risks/barriers of child health research, and 2) preferences for recruitment method and enrollment location.Results: Parents (n = 627) uniformly perceived child health research to be important in prevention (89\%), diagnosis (89\%), and treatment (92\%). They were motivated to participate most commonly by altruism and rarely by compensation. Parents perceived side effects (60\%), discomfort (52\%), and time (45\%) as the main risks of participation. Most parents preferred to learn about research opportunities at their pediatric office (70\%), and if interested, to enroll their child in their pediatric office (57\%) or in their home (52\%). Parents were significantly more altruistic and interested in participation in offices with on-site PBRN research staff and greater proximity to the University.Conclusions: Child health researchers could enhance participation by using recruitment resources and enrollment strategies that match parent preferences, including engagement by on-site PBRN staff.}, issn = {1557-2625}, URL = {https://www.jabfm.org/content/32/5/685}, eprint = {https://www.jabfm.org/content/32/5/685.full.pdf}, journal = {The Journal of the American Board of Family Medicine} }