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Research ArticleOriginal Research

The Impact of Race on Advanced Care Planning: Results of a Quality Improvement Project

Aaron Lear, Michael Arnold, Rachida Bouhenni, Caroline Mangira, Megan Adelman, Kevin Baldie and Estee George
The Journal of the American Board of Family Medicine September 2026, 39 (1) 167742; DOI: https://doi.org/10.3122/jabfm.2025.250310R1
Aaron Lear
1 Cleveland Clinic Akron General Center for Family Medicine
MD, MSc, CAQ
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Michael Arnold
1 Cleveland Clinic Akron General Center for Family Medicine
2 Neighborhood Family Practice
DO
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Rachida Bouhenni
3 Cleveland Clinic Akron General Graduate Medical Education and Research
PhD
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Caroline Mangira
3 Cleveland Clinic Akron General Graduate Medical Education and Research
MPH
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Megan Adelman
1 Cleveland Clinic Akron General Center for Family Medicine
PharmD
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Kevin Baldie
1 Cleveland Clinic Akron General Center for Family Medicine
MD
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Estee George
3 Cleveland Clinic Akron General Graduate Medical Education and Research
PhD
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  • Article
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Article Figures & Data

Tables

    • View popup
    Table 1. Associations Between Patient Characteristics and ACP
    CharacteristicAll patients
    (n = 22,372)
    ACP
    (n = 7,678)
    No ACP
    (n = 14,694)
    P-⁠value
    Race
    Black
    Other
    White

    2,471 (11.19)
    316 (1.43)
    19,295 (87.38)

    723 (29.26)
    81 (25.63)
    6,792 (35.20)

    1,748 (70.74)
    235 (74.37)
    12,503 (64.80)

    < 0.0001
    Sex
    Female
    Male

    11,510 (51.45)
    10,861 (48.55)

    4,079 (35.44)
    3,598 (33.13)

    7,431 (64.56)
    7,263 (66.87)

    0.0003
    Age 74.10 (69.36-80.46)76.23 (71.0-83.38)73.03 (68.7-79.03)< .0001
    Ethnicity
    Hispanic
    Not Hispanic

    101 (0.47)
    21,594 (99.53)

    23 (22.77)
    7,488 (34.68)

    78 (77.23)
    1,4106 (65.32)

    0.0121
    Marital Status
    Divorced
    Married
    Other
    Single
    Widowed

    2,414 (10.87)
    12,229 (55.07)
    160 (0.72)
    2,908 (13.09)
    4,497 (20.25)

    859 (35.58)
    3,741 (30.59)
    58 (36.25)
    947 (32.57)
    2,023 (44.99)

    1,555 (64.42)
    8,488 (69.41)
    102 (63.75)
    1,961 (67.43)
    2,474 (55.01)

    < .0001
    Religion
    Catholic
    Other*
    Other Christian
    Traditional Protestant
    Non-Christian World Religions^

    3,952 (28.45)
    311 (2.24)
    3,381 (24.34)
    5,961 (42.92)
    285 (2.05)

    1,490 (37.70)
    121 (38.91)
    1,234 (36.50)
    2,375 (39.84)
    108 (37.89)

    2,462 (62.30)
    190 (61.09)
    2,147 (63.50)
    3,586 (60.16)
    177 (62.11)

    0.0235
    Insurance Coverage
    Medicaid
    Medicare
    Private
    Self-pay

    1,171 (5.29)
    19,496 (88.01)
    1,478 (6.67)
    8 (0.04)

    364 (31.08)
    6,801 (34.88)
    414 (28.01)
    2 (25.00)

    807 (68.92)
    12,695 (65.12)
    1,064 (71.99)
    6 (75.00)

    < .0001
    Updated Charlson Index
    < 2
    ≥ 2

    18,424 (82.35)
    3,948 (17.65)

    5,478 (29.73)
    2,200 (55.72)

    12,946 (70.27)
    1,748 (44.28)

    < .0001

    Notes: Statistics presented as n (%) or median (Q1-Q3). Percentages do not reflect missing values. Abbreviations: ACP = Advanced care planning. *Other = self-identified by patients at registration on electronic health record. ^Non-Christian World Religions includes Buddhism, Hinduism, Islam, Judaism.

      • View popup
      Table 2. Multiple Logistic Regression Estimates for Effect of Race on Advanced Care Planning After Controlling for Other Demographic Characteristics, (n = 21,771)
      CharacteristicAdjusted Odds Ratio (95% Confidence Interval)P-⁠value
      Race
      Black vs White
      Other vs White

      0.64 (0.58-0.71)
      0.63 (0.48-0.82)

      < .0001
      0.0007
      Sex
      Female vs Male

      1.02 (0.96-1.08)

      0.6339
      Age (Decades) 1.48 (1.42-1.54)< .0001
      Marital Status
      Divorced vs Married
      Other vs Married
      Single vs Married
      Widowed vs Married

      1.26 (1.14-1.39)
      1.40 (0.99-1.96)
      1.12 (1.02-1.23)
      1.35 (1.24-1.46)

      < .0001
      0.0541
      0.0149
      < .0001
      Insurance Coverage
      Medicaid vs Private
      Medicare vs Private
      Self-pay vs Private

      1.02 (0.85-1.22)
      1.10 (0.97-1.24)
      1.06 (0.20-5.53)

      0.8260
      0.1401
      0.9467
      Updated Charlson Index 1.32 (1.30-1.35)< .0001
      • View popup
      Table 3. Bivariate Associations Between Patient Characteristics and Sub-Group ACP Discussion with Clinician (n = 22,372)
      CharacteristicACP Discussion with clinician
      (n = 2298)
      No ACP Discussion with clinician
      (n = 20074)
      P-⁠value
      Race
      Black
      Other
      White

      315 (12.75)
      28 (8.86)
      1,925 (9.98)

      2,156 (87.25)
      288 (91.14)
      17,370 (90.02)

      < 0.0001
      Gender
      Female
      Male

      1,247 (10.83)
      1,051 (9.68)

      10,263 (89.17)
      9,810 (90.32)

      0.0004
      Age 78.26 (72.06-85.39)73.75 (69.15-79.90)< .0001
      Ethnicity
      Hispanic
      Not Hispanic

      11 (10.89)
      2,241 (10.38)

      90 (89.11)
      19,353 (89.62)

      0.8660
      Marital Status
      Divorced
      Married
      Other
      Single
      Widowed

      253 (10.48)
      1,013 (8.28)
      15 (9.38)
      307 (10.56)
      691 (15.37)

      2,161 (89.52)
      11,216 (91.72)
      145 (90.63)
      2,601 (89.44)
      3,806 (84.63)

      < .0001
      Religion
      Catholic
      Other*
      Other Christian
      Traditional Protestant
      Non-Christian World Religions^

      398 (10.07)
      28 (9.00)
      350 (10.35)
      705 (11.83)
      37 (12.98)

      3,554 (89.93)
      283 (91.00)
      3,031 (89.65)
      5,256 (88.17)
      248 (87.02)

      0.0215
      Insurance Status
      Medicaid
      Medicare
      Private
      Self-Pay

      151 (12.89)
      1,988 (10.20)
      117 (7.92)
      1 (12.50)

      1,020 (87.11)
      17,508 (89.80)
      1,361 (92.08)
      7 (87.50)

      0.0005
      CCI 1.0 (0.0-3.0)0.0 (0.0-0.0)< .0001
      Updated CCI Score
      < 2
      ≥ 2

      1,269 (6.89)
      1,029 (26.06)

      17,155 (93.11)
      2,919 (73.94)

      < .0001
      Advance Directive and/⁠POA
      No
      Yes

      1,232 (7.74)
      1,066 (16.54)

      14,694 (92.26)
      5,380 (83.46)

      < .0001

      Notes: Statistics presented as n (%) or median (Q1-Q3). Percentages do not reflect missing values. *Other = self-identified by patients at registration on electronic health record. ^Non-Christian World Religions includes Buddhism, Hinduism, Islam, Judaism.

      Abbreviations: ACP = advanced care planning, POA = healthcare power of attorney, CCI = updated Charlson comorbidity index.

        • View popup
        Table 4. Bivariate Associations Between Patient Characteristics and Sub-Group Advance Directives and/POA, (n = 22,372)
        CharacteristicAdvance Directive and/POA
        (n = 6446)
        No Advance Directive/POA
        (n = 15926)
        P-⁠value
        Race
        Black
        Other
        White

        536 (21.69)
        64 (20.25)
        5,780 (29.96)

        1,935 (78.31)
        252 (79.75)
        13,515 (70.04)

        < 0.0001
        Gender
        Female
        Male

        3,422 (29.73)
        3,023 (27.83)

        8,088 (70.27)
        7,838 (72.17)

        0.0017
        Age76.13 (70.91-83.10)73.30 (68.84-79.43)< .0001
        Ethnicity
        Hispanic
        Not Hispanic

        18 (17.82)
        6,290 (29.13)

        83 (82.18)
        15,304 (70.87)

        0.0125
        Marital Status
        Divorced
        Married
        Other
        Single
        Widowed

        730 (30.24)
        3,139 (25.67)
        48 (30.00)
        800 (27.51)
        1,682 (37.40)

        1,684 (69.76)
        9,090 (74.33)
        112 (70.00)
        2,108 (72.49)
        2,815 (62.60)

        < .0001
        Religion
        Catholic
        Other*
        Other Christian
        Traditional Protestant
        Non-Christian World Religion^

        1,313 (33.22)
        104 (33.44)
        1,052 (31.12)
        2,029 (34.04)
        92 (32.28)

        2,639 (66.78)
        207 (66.56)
        2,329 (68.88)
        3,932 (65.96)
        193 (67.72)

        0.0748
        Insurance Status
        Medicaid
        Medicare
        Private
        Self-Pay

        283 (24.17)
        5,747 (29.48)
        340 (23.00)
        1 (12.50)

        888 (75.83)
        13,749 (70.52)
        1,138 (77.00)
        7 (87.50)

        < .0001
        Updated CCI Score
        < 2
        ≥ 2

        4,738 (25.72)
        1,708 (43.26)

        13,686 (74.28)
        2,240 (56.74)

        < .0001
        Advanced Care Planning Discussion with Clinician
        No
        Yes


        5,380 (26.80)
        1,066 (46.39)


        14,694 (73.20)
        1,232 (53.61)


        < .0001

        Notes: Percentages do not reflect missing values. Statistics presented as n (row%) or median (Q1-Q3). *Other = self-identified by patients at registration on electronic health record; ^Non-Christian World Religions includes Buddhism, Hinduism, Islam, Judaism.

        Abbreviations: POA = healthcare power of attorney, CCI = updated Charlson comorbidity index.

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        1 Jan 2026
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        The Impact of Race on Advanced Care Planning: Results of a Quality Improvement Project
        Aaron Lear, Michael Arnold, Rachida Bouhenni, Caroline Mangira, Megan Adelman, Kevin Baldie, Estee George
        The Journal of the American Board of Family Medicine Sep 2026, 39 (1) 167742; DOI: 10.3122/jabfm.2025.250310R1

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        The Impact of Race on Advanced Care Planning: Results of a Quality Improvement Project
        Aaron Lear, Michael Arnold, Rachida Bouhenni, Caroline Mangira, Megan Adelman, Kevin Baldie, Estee George
        The Journal of the American Board of Family Medicine Sep 2026, 39 (1) 167742; DOI: 10.3122/jabfm.2025.250310R1
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