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Brief ReportBrief Report

Children’s Special Health Care Needs and Caregivers’ Well-Being During the COVID-19 Pandemic

Melisa Pasli and Dmitry Tumin
The Journal of the American Board of Family Medicine October 2023, 36 (5) 731-738; DOI: https://doi.org/10.3122/jabfm.2022.220406R2
Melisa Pasli
From the Brody School of Medicine at East Carolina University, Greenville NC (MP), Department of Pediatrics, Brody School of Medicine at East Carolina University, Greenville NC (DT).
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Dmitry Tumin
From the Brody School of Medicine at East Carolina University, Greenville NC (MP), Department of Pediatrics, Brody School of Medicine at East Carolina University, Greenville NC (DT).
PhD
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Abstract

Background: Caregivers of children with special health care needs (SHCN) report worse self-rated health when compared with caregivers of children without SHCN and have experienced significant stress during the COVID-19 pandemic. We sought to determine whether COVID-19 pandemic-era declines in well-being among caregivers of children with SHCN were steeper than among caregivers of children without SHCN.

Methods: We used 2020 to 2021 (pandemic-era, n = 89,560) and 2018 to 2019 (pre-pandemic, n = 57,927) data from the National Survey of Children’s Health. Caregiver-reported physical and mental health outcomes were analyzed using multivariable ordinal logistic regression.

Results: The pandemic era was associated with 26% higher odds of reporting worse mental health among caregivers of children with SHCN (95% confidence interval [CI]: +16%, +38%), and 20% higher odds of reporting worse mental health among caregivers of children without SHCN (95% CI: +15%, +26%). The magnitudes of these changes were not significantly different from one another (P = .341).

Conclusions: Although caregivers of children with SHCN faced significant burdens and increased stress during the pandemic, decline in self-rated mental health among this group was similar to the trend seen among caregivers of children without SHCN.

  • Caregivers
  • Child
  • Community-Based Research
  • COVID-19
  • Epidemiology
  • Logistic Regression
  • Mental Health
  • Pandemics
  • Special Health Care Needs
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The Journal of the American Board of Family     Medicine: 36 (5)
The Journal of the American Board of Family Medicine
Vol. 36, Issue 5
September-October 2023
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Children’s Special Health Care Needs and Caregivers’ Well-Being During the COVID-19 Pandemic
Melisa Pasli, Dmitry Tumin
The Journal of the American Board of Family Medicine Oct 2023, 36 (5) 731-738; DOI: 10.3122/jabfm.2022.220406R2

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Children’s Special Health Care Needs and Caregivers’ Well-Being During the COVID-19 Pandemic
Melisa Pasli, Dmitry Tumin
The Journal of the American Board of Family Medicine Oct 2023, 36 (5) 731-738; DOI: 10.3122/jabfm.2022.220406R2
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Keywords

  • Caregivers
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  • Community-Based Research
  • COVID-19
  • Epidemiology
  • Logistic Regression
  • Mental Health
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